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Is there a forum for family to talk about their loved one with sjogrens?

Started by saranski, January 23, 2010, 10:29:56 AM

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saranski

Hi,
My hubby wants to learn more about sjogren's from "real" people, not a medical website.  He also wants a place to go where he can ask questions of other people with family members who have sjogren's.  Is there a place?  or is it ok if he uses this site???
Please let me know.

Sarah

Linda196

Sarah, he would be most welcomed here. We already have some members who joined to support or find information for their family members who suffer from SjS, whether the SjS patient was a member or not.

We really appreciate family who want to learn, support and advocate for their loved ones, and he will get a very warm reception!
Please check out our home page at http://www.sjogrensworld.org/index.html {{INCLUDES A LINK TO AMAZON SHOPPING!!}}
; and live chat at https:https://sjogrensworld.org/index.php?board=30.0

Bucky

Sarah,

By all means, your husband is welcome to read all he wants here on our forum - posts by actual patients with Sjogren's.  He can ask questions too.  We have several family members who come here to find answers and become more aware of this strange disease called Sjogren's.  

This is the only sight I visit, so I don't know if there are other "family" sights for Sjogren's out there.  I think our sight is a wealth of information and the members compassionate, caring and fun.   ;D

Bucky
Come sit a spell and join in live chat - we serve non-fattening, zero calorie goodies while discussing all kinds of things.  ;D

http://www.sjogrensworld.org/chats.htm   (find our chat times here!)

lynnmarie219

Hey Sarah,

Let your hubby know he is most welcome here as the others have already said! We look forward to meeting him! !

Patze

Hi Sarah,

We'd love to talk to him too!  Please have him join us as well, and as the others have mentioned, there are several family members that are here as well.

Take care of yourself -

Patze
Our home page  http://www.sjogrensworld.org/index.html
Live chats  http://sjogrensworld.org/chats.htm

Everything has beauty, but not everyone sees it - Confucius

The important thing is not to stop questioning ~ Albert Einstein ~

Sero Negative Queen

wen.uk

Hi Sarah
It's great your hubby wants to know more about this illness and to compare notes with others.  Yes he is more than welcome to use this site, and should he feel he wants to he can send a private message that I will pass on to my hubby, who I know will only be too happy to be of help and support should he need another man to talk to. 
Wen x