Sjogrens World Forums

 Sjogren's World from now forward will use the term Sjogren's disease (acronym SjD) on our site in alignment with a recent decision by an international team and published in Nature Reviews Rheumatology.

 You will find the details in the article:
 https://www.nature.com/articles/s41584-025-01268-z?utm_campaign=14666363-Patient%20Education%20Misc.%20%7C%20Engagement%20%7C%202025&utm_medium=email&_hsenc=p2ANqtz--Cemlh8oUneNsLiOO8wfGZfIYOyq4aXPeXQpclvISAuykQrAy57zBcUqYuVclt8HRBOuw0DStfCtAnE7GvLqO3GSjOfg&_hsmi=372241917&utm_content=372241917&utm_source=hs_email

 Sjogren's World from now forward will use the term Sjogren's disease (acronym SjD) on our site in alignment with a recent decision by an international team and published in Nature Reviews Rheumatology.

 You will find the details in the article:
 https://www.nature.com/articles/s41584-025-01268-z?utm_campaign=14666363-Patient%20Education%20Misc.%20%7C%20Engagement%20%7C%202025&utm_medium=email&_hsenc=p2ANqtz--Cemlh8oUneNsLiOO8wfGZfIYOyq4aXPeXQpclvISAuykQrAy57zBcUqYuVclt8HRBOuw0DStfCtAnE7GvLqO3GSjOfg&_hsmi=372241917&utm_content=372241917&utm_source=hs_email

 Sjogren's World from now forward will use the term Sjogren's disease (acronym SjD) on our site in alignment with a recent decision by an international team and published in Nature Reviews Rheumatology.

 You will find the details in the article:
 https://www.nature.com/articles/s41584-025-01268-z?utm_campaign=14666363-Patient%20Education%20Misc.%20%7C%20Engagement%20%7C%202025&utm_medium=email&_hsenc=p2ANqtz--Cemlh8oUneNsLiOO8wfGZfIYOyq4aXPeXQpclvISAuykQrAy57zBcUqYuVclt8HRBOuw0DStfCtAnE7GvLqO3GSjOfg&_hsmi=372241917&utm_content=372241917&utm_source=hs_email

Sjogren's World from now forward will use the term Sjogren's disease (acronym SjD) on our site in alignment with a recent decision by an international team and published in Nature Reviews Rheumatology.

 You will find the details in the article:
 https://www.nature.com/articles/s41584-025-01268-z?utm_campaign=14666363-Patient%20Education%20Misc.%20%7C%20Engagement%20%7C%202025&utm_medium=email&_hsenc=p2ANqtz--Cemlh8oUneNsLiOO8wfGZfIYOyq4aXPeXQpclvISAuykQrAy57zBcUqYuVclt8HRBOuw0DStfCtAnE7GvLqO3GSjOfg&_hsmi=372241917&utm_content=372241917&utm_source=hs_email

Sjogren's World from now forward will use the term Sjogren's disease (acronym SjD) on our site in alignment with a recent decision by an international team and published in Nature Reviews Rheumatology.

 You will find the details in the article:
 https://www.nature.com/articles/s41584-025-01268-z?utm_campaign=14666363-Patient%20Education%20Misc.%20%7C%20Engagement%20%7C%202025&utm_medium=email&_hsenc=p2ANqtz--Cemlh8oUneNsLiOO8wfGZfIYOyq4aXPeXQpclvISAuykQrAy57zBcUqYuVclt8HRBOuw0DStfCtAnE7GvLqO3GSjOfg&_hsmi=372241917&utm_content=372241917&utm_source=hs_email

 Sjogren's World from now forward will use the term Sjogren's disease (acronym SjD) on our site in alignment with a recent decision by an international team and published in Nature Reviews Rheumatology.

 You will find the details in the article:
 https://www.nature.com/articles/s41584-025-01268-z?utm_campaign=14666363-Patient%20Education%20Misc.%20%7C%20Engagement%20%7C%202025&utm_medium=email&_hsenc=p2ANqtz--Cemlh8oUneNsLiOO8wfGZfIYOyq4aXPeXQpclvISAuykQrAy57zBcUqYuVclt8HRBOuw0DStfCtAnE7GvLqO3GSjOfg&_hsmi=372241917&utm_content=372241917&utm_source=hs_email

Thanks for your reply with the good information. I went to the ER as I continued to swell and bruise and I was concerned. The dr at ER was worried I had sustained a nick or perforation from the endoscopy and they kept me for quite awhile. Happily a CT showed just angry parotid glands, no perforation. I started the warm compresses when I returned home this morning and I can eat and drink without bad pain now and hopefully the swelling improves soon. The prep makes people dehydrated and that doesn't help I suppose.

I'm sorry you are in such a painful situation, but there are "home remedies" available. Warm compresses can help increase saliva flow, and sucking on sour candies, or sipping lemon water might help, too. I'm attaching the Sjogren's Foundation instructions for gland massage. I hope some of these help quickly. If not, I'm afraid your next step is a doctor or dentist.

https://sjogrens.org/sites/default/files/inline-files/Salivary%20Glands%20Massage%20Patient%20Education%20Sheet.pdf

Hi, had an upper endoscopy today due to upper abdominal pain and to check my esophagus. After the procedure I felt ok and a friend took me home. After fasting since last night I was super hungry, but when I took a bite of my pasta it hurt under my jaw so much I dropped my fork in pain. It felt like I did when I had the mumps as a kid but a 100 times worse. My neck under my jaw on my left side is swollen and tender to the touch. When food or drink touches my tongue or mouth pain shoots to what I think is a submandibular salivary gland and perhaps the pain is because it is blocked and can't release saliva. I called the on call service and the doctor who did the procedure called and said it was probably a bruise use ice, but it is not a bruise. I am sure someone on here has perhaps dealt with a salivary gland issue. I can drink water, but am super hungry! Thank you.

Thank you Linda, I'm glad my concern is valid and I'm not just overthinking this.

My first couple of rheumatologists stressed being on a medication. The next couple of rheumatologists said I was "stable" so I didn't need medication unless labs/symptoms got worse. Now my labs and symptoms have gotten worse but my new rheumatologist isn't willing to do much of anything so I really don't understand the criteria for all of this.
I have taken prednisone maybe three or four times in the past(it makes me either emotional or apathetic so I only take it when symptoms get really bad). I was given a two week taper of prednisone in January because I was having a bad flare and I couldn't move my right wrist at all and it was clearly swollen and painful. It worked well for my wrist. Steroids were brought up on my last phone call but my doctor essentially said we shouldn't use the steroids too often because it can cause osteoporosis. But I'm also 30, have great bones, get plenty of calcium, and aren't looking for a high dose or long term use so I don't really understand the hesitation.