Print Page - Homeless again, and nowhere to turn next/Lip biopsy results

Title: Homeless again, and nowhere to turn next/Lip biopsy results
Post by: Stillinlimbo on May 27, 2009, 02:30:10 PM

Negative, normal, negative,,,,,"Sorry,,,,,,,,,,yada yada
Cathy :( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'(

Title: Re: Homeless again, and nowhere to turn next/Lip biopsy results
Post by: Dolly Dimples on May 27, 2009, 03:35:19 PM

Story of our lives Cathy!
Better luck next time.. Dolly. x

Title: Re: Homeless again, and nowhere to turn next/Lip biopsy results
Post by: jaygee on May 27, 2009, 03:47:35 PM

I suppose what you have to think is that they just don't know exactly what the diagnosis is yet. Sorry, hun. xx

Title: Re: Homeless again, and nowhere to turn next/Lip biopsy results
Post by: seren on May 27, 2009, 03:49:42 PM

I really feel for you cathy...it is so frustrating and it makes you cry and want to scream as you know you have sjs (I mean what else could it be?) and the bloods/biopsies don't play ball!!! I am so dreading my results on 10th June as I think I am gonna hear the same as you :(

Hope you get things sorted soon!

Paula X

Title: Re: Homeless again, and nowhere to turn next/Lip biopsy results
Post by: forest on May 27, 2009, 04:58:24 PM

Cathy, sorry to hear that you didn't get the answer you were looking for. I am in the same boat as well. I wish you luck finding a diagnosis.

Paula, I also have an appointment on June 10th to get the test results for my antibody testing. I pretty much know my answer as well, as they would have called me by now if it was positive.

limboland is not fun!

Scott

Title: Re: Homeless again, and nowhere to turn next/Lip biopsy results
Post by: Scottietottie on May 27, 2009, 05:06:09 PM

Hi Cathy

I'm truly sorry you got no answers. Now what you need to do is to get someone to treat the symptoms. Dryness is measureable. Not treating it isn't good enough. Obviously it would be good to have a definitive reason for symptoms but getting those symptoms treated is even more important.

Take care - Scottie :)

Title: Re: Homeless again, and nowhere to turn next/Lip biopsy results
Post by: Patze on May 28, 2009, 10:22:56 AM

Hi Cathy,

Boy, I know that feeling well...one more negative, ugh! I'm sorry to hear about the lip biopsy, I was hoping it would come up positive.

Scottie has a good point, will this doctor treat your symptoms? If not, can you find another doctor or get another opinion about your symptoms?

Hang in there, okay?

Patze

Title: Re: Homeless again, and nowhere to turn next/Lip biopsy results
Post by: Stillinlimbo on May 28, 2009, 12:11:22 PM

Thanks Patze
No, no and no.
My GP is just sending me for consults, and the consult is done, and I'm left lost again. The only thing my GP keeps treating with is prednisone, which I just stopped because I think it is making me feel worse.
I've seen 8 neuros, 1 rheumy, 1 ent, I dont know what other opinion or where else to go. ? Alot of ppl I talk to, keep telling me I have chronic lyme.........????????????
I really dont have the strength to start a new quest right now.
So digusted here.
C

Title: Re: Homeless again, and nowhere to turn next/Lip biopsy results
Post by: jonnell on May 28, 2009, 01:50:44 PM

Cathy, Im sorry you are down, I hope you feel better thoughts are with you. Hugs and Kissess Jonnell and Jenna

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Sjogrens Topics => Living With Sjogren's => Topic started by: Stillinlimbo on May 27, 2009, 02:30:10 PM