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Sjogrens Topics => Living With Sjogren's => Topic started by: tmarie0183 on May 16, 2009, 03:45:02 PM

Title: Plaquenil
Post by: tmarie0183 on May 16, 2009, 03:45:02 PM
Just one more for you :)  Has anyone ever been weaned off of plaquenil and done okay without it??
Title: Re: Plaquenil
Post by: Joe S. on May 16, 2009, 07:01:30 PM
I was never on it for any length of time. I tried one pill, went blind for 6 hours and refused to try any more. I have been using alternatives for my auto immune illnesses. I wish you luck getting off it. Work with your doctor to get off it.
Title: Re: Plaquenil
Post by: Patze on May 17, 2009, 02:58:05 PM
I've been on it going on four years now, and the rheumy has recently mentioned that he wants to cut the dosage down a bit and seeing how I do.


Patze
Title: Re: Plaquenil
Post by: lynnmarie219 on May 19, 2009, 03:08:46 PM
Hi tmarie,

Ive been on Plaquenil for about 4 and a half years now (I think) with no problems and my rheumy hasn't mentioned cutting my dosage down.

If you do...just make sure you are doing it under the guidance of your Doctor and communicate with him/her during the process as to how you are doing!

Good luck!
Title: Re: Plaquenil
Post by: Butterfly on May 19, 2009, 03:29:28 PM
I've been on plaquenil for about 2 1/2 yrs now. My dosage gets adjusted as my weight fluctuates (the dosage is determined by the patient's weight). I haven't experienced any problems with the adjustments. I don't have any experience with stooping this medication. I agree with the others-it's important that you do this with the guidance of your physician.