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Sjogrens Topics => Living With Sjogren's => Topic started by: SassieCat on April 17, 2009, 09:44:00 PM

Title: Pain everywhere
Post by: SassieCat on April 17, 2009, 09:44:00 PM
Since I took of the generic HRT my heart rate is still not stable, nor is my blood pressure.   But they are now the least of my problems.  The flare up of pain is getting worse day by day.  Last night along with my head and back pain, my jaw started to hurt and there was nothing I could do to stop it.  It's gone today but pain is hop-skip-and-jumping everywhere.  I feel like my CNS has just gone wacko.  My eye keeps twitching, my legs feel like I have AC currant running through them, I thought I had bugs crawling on my arms and I'm going nuts. 

Why do things always get worse on the weekends? 
Title: Re: Pain everywhere
Post by: Scottietottie on April 18, 2009, 07:50:15 AM
Hi Sassiecat  :)

Things do have a habit of going wrong at night, weekends and especially holiday weekends!!

Can you see your doc next week? I think he needs to know what's going on here and hopefully get you some relief from it. If you are having chest pain, or your heart feels well out of control, go to ER and get it checked out!!

Keep us posted.

Take care - Scottie  :)
Title: Re: Pain everywhere
Post by: wednesday mc haggis on April 18, 2009, 11:52:32 AM
sassie
just seems to be one thing after another eh ??

cant comment on the meds, but i can understand fully some of the symptoms youve had, pain everywhere, jaw pain and crawling sensation on the skin, horrible i know !

have you been checked out for fibromyalgia ?? these symptoms for me came with that,even my eyelids wel left one was twitching alot.

Now i know it might not help everyone, but candida overgrowth and fibro seem to be so simialr its untrue, and since i cut out yeast, gluten, dairy and sugar, my fibro symptoms have resolved, if i reintroduce them it comes back fast, obviously speak to a doctor before starting any new plan diet wise, i went on the candida diet and feel alot better, no theyve not helped my SJS symptoms one bit, but to be free of the crawling skin, pain everywhere, aching jaw, twicthing etc, is great for me, amazing what symptoms candida  can cause.
hope this helps, but as i say speak to your doctor before doing anything

T x

Title: Re: Pain everywhere
Post by: Joe S. on April 18, 2009, 06:55:59 PM
Practice a simple breathing exercise over the next month.
Breathe in and think "I am"...
Breathe out and thing "calm"...
Breathe deep into your tummy.

It takes time and practice but it will help.
Title: Re: Pain everywhere
Post by: kimbo on April 18, 2009, 09:13:07 PM
Hey Joe,

I like that breathing excercise

kimbo
Title: Re: Pain everywhere
Post by: SassieCat on April 20, 2009, 11:14:13 PM
Sorry it took so long to get back to you.  My internet was down for a few days for some reason. 

Yes, I like that breathing exercise too.  Easy to remember.  Thanks!