Hello again, I'd like to know if any of you had been, in the past, diagnosed with the above mentioned viruses and/or Chronic Fatigue Syndrome...
Just some personal statistics...I have and I have read some medical paper that support the involvement of these 2 viruses in the Sjogren...
Thanks
Valentina
Hi Valentina :)
Is Epstein Barr the virus that causes infectious mononucleosis? (Glandular fever) I've certainly had it - twice. It nearly killed me.
Take care - Scottie :)
Yes, it is Scottie...some researchers suggest that is the reactivation of this virus that causes the onset and subsequent inflammation of the glands.
I was wondering that, maybe, if one could keep the virus at bay and prevent it from get active again, one might keep the inflammation down, hence the flare ups. I had felt last March very much like I did when I had CFS and recalled that when I first got glandular fever my salivary glands were very painful and swollen and my mouth drier, although not as badly as now...
I'm going to try to get my doctor to test my blood for Epstein Barr antibodies. Wish me luck...
Thanks again and have a nice weekend
REally interesting - can someone do a poll on this? (Not sure how or I would). I had glandular fever badly in my early 20s. Fascinated to know how many others had this?
Yes, I tested positive for Epstein Barr many years ago. Later I was diagnosed with Fibromyalgia. About twelve years later, while on a routine visit to my rheumy, he noticed my swollen glands under my chin and tested me and I was told I had Sjogren's. This is very interesting, indeed.
Had what they termed "atypical mono" as a teen, which now i know to be CMV because when i worked at childrens hospital it was one of the things they tested me for, since i was working around children and could be exposed.. i had the antibodies which meant i had had it.. that is the only time i had ever been told that and had the glandular involvement. i spent my entire teen years having horrid sinus infections and strep throat..
weird and never really thought about it!
Thanks for bringing the subject up.
christi
i am a parent of a 4 year old diagnosed with ssj who also tested positive for the epstein barr virus first. i was told by a pediatric rhumy at dupont hospital for children in deleware that the virus can cause ssj the body attacts the virus and just keeps attacking itself after the virus is dormant.
I had a bad mono case about two years ago, it really knocked a lot out of me! Based on the bloodwork, my doc could tell somehow that this was not my first time having mono. I have no idea when I would have had it before, but maybe it wasn't as bad when I was younger. I just got diagnosed with Sjogren's last month.
hi i am new here. about 12 years ago i was diagnosed with epstein barr and have been chronic ever since. every blood test shows possitive/ active. that was my begining. since, low iron, recent bone marrow show no iron stored, im anemic often, i also like many have very low vit. B and D, i wanted some of you to know, please get your vitamin D tested, if it is low it will cause lots of problems, pain, joint muscle..etc. for years they thought i may have ms, then lupus, all tests show nothing, fibromyalgia wast he only diag. i have gotten worse over the years but in combination...i had alot of stress during that time, my mom was very ill in hosp with leukemia, i was raising 2 kids with bi polar husb. working full time, spending every spare second at hospital almost an hour away, for 6 months, she unfort. passed. stress con, with bi polar hus. divorce followed, pain, symptoms, sick feeling, colds, etc, got much worse and constant. constant doctors , in and out of work on temp. disability, now after many years of torture... diagnosed with fibro, RA, chronic epstein barr, sjog new diag, tendontis, neuropathy, i also have a very loww IGG, IGA, IGM, level- immune system. many vit. tests are low. B, D, FOLIC ACID, CALCIUM, MAGN. , low red blood cells, ringing in ears, sinus issues, double vision, ect it continues so long to much to write.
i relate with all of you. i do keep a list, new doctors i go to, i bring it always, i feel it all is important, i will forget it all
i am sorry for anyone that suffers from this. i read a web site that said stay away from all grain products, ALL, www.home-remedies-for-you.com
there was alot of interesting information,
take care and dont give up. i wish the best for all of you.
I test postive for the Epstein Barr Virus too. Didn't know I ever had it. I did a post on my blog of it a few months ago and have a little research on the relationship between SS and EBV.
I found it interesting.
Take CAre!
Vicky
Hi :)
Apparently there was a test on quite a large group of elderly people, for EBV and 95% showed up positive. It is quite possible to be a carrier and yet never to have had 'mono' oneself.
Take care - Scottie :)
Yes I have tested positive for Epstein-Barr Virus and Fibromyalgia and now Sjogrens is coming up positive as well. I think all these viruses lay dormant in our bodies and then rise from the dead and cause many problems. I have had fibro for many many years and the rheumy always told me that it does not involve inflammation. I totally disagree with that since every flare I have had especially in the neck and shoulder area....these areas were quite warm to the touch. Doctors seem to be in the dark in regards to these syndromes. A syndrome is the worst diagnosis which means they have no clue as to what causes it and what will fix it.