Hello,
I am really sorry to vent, this is one place that understands what is happening to me. I used to be able to do alot. But now it seems like I can't do anything. I had a flare up and was in bed for 2 days. I am better but still tired. couldn't lay in bed any more my legs were hurting. It seems like my eyes are still in a flare up i can't seem to see very well. It makes me so mad. I always try to be positive but hey I am only human. And i am tired and my family doesn't understand. They think it was a virus. I can't even keep my house uncluttered any more. At least I have my eye apt at John Hopkins next wed. But I am so tired of not being able to see very well. I was so sick when I had my flare up. It must has been a flare up CZ when I got up from bed for a moment and called for hubby outside and the sun almost blinded me. Sometimes I just want to scream.!!!!!!! and how can I make everyone understand? that makes me want to scream louder, well enough venting time to get on with life
Thanks for letting me vent.
Theresa
Oh vent as much as you want!! You know we understand. I try not to complain too much around my friends and family as I can tell they just don't want to hear it. My partner says I can have 5 minutes to vent a day. Well sometimes I NEED MORE. Thats why this place is great.
I understand about being tired. I wake up and think I need to do this and this and this today but in reality I can do one thing and thats it. Whatever I choose to do I better choose wisely because I won't have the stamina to do the second thing on my list.
Steve
Hi theresa
Sorry your feeling so unwell at the moment, i hope things will improve quickly, it is so debiletating, i feel that when your physically fatigued the whole emotional well being goes down as well. I know for me personally the emotion and physical fatigue goes hand in hand.
Having problems with sight is so restricting, i hope they will help with that at the apt on Wed next, all the best, meanwhile take care of yourself, i do plenty of venting to my lot at home but here on this site they truely are sensitive and can emphaise with how we feel.
Take care now, hope you feel better very soon.
loulou
Hi Theresa. Yes we have all been there too, so we do completely understand and sympathise .. It's a true saying that no one can understand how bad a thing is unless they too have been there.
I pray that the John Hopkins hospital will be able to fix the eye problem, please let us know what happens. I have had a bad time with my eyes this winter , tho my vision is not too bad . This complaint has been tagged with numerous words as it shows no mercy at times. We all need to be strong for each other when things go so badly.so hang on in there and the best of luck, Dolly.
Hi Theresa :)
I'm sorry you're having a bad spell. I understand about the family not understanding - and hey - my house has been cluttered for years now. I wouldn't know where to begin with it. If I'm at the computer - it's behind me - and I can't see it. I can't see it when I'm out at work either!
Has an opthamologist or optician been able to explain the lack of vision?
This is a good place to vent. I hope the flare subsides soon, leaving you feeling better.
Take care - Scottie :)
Theresa,
Yep, it does get old, not feeling well most of the time or being so darn tired, you can hardly make it from one end of the house to the other.
If venting helps, go to it, everyone at here understands exactly what your going through ;)
Theresa
course your human, i think alot of the problem comes from no one understanding , have you let your family read the spoons theory ?? helped my partner get what i was saying , ans how i was feeling.
Hope the eye doc has some answers when you go , till then vent away, this should always be a place where you can, lets face it for many its the only place they can
take care thought with you
T x