Hi everyone, I have a post that's about something that is a real bug-a-boo for me and wondered if i was alone. It's about my size. What I mean is I have 3 sizes in my closet and I use them all, all the time, often in the space of a few hours. ??? The problem arises from fluid I suppose. Oh when i am at the largest size I am miserable, trully, feel like a sloth and it makes me hurt. My stomach turns into a watermelon.... my fingers are like sausages and am bigger everywhere, my clothes are all pinchy.. Oh it's just awful.
When it's at it's worst I head straight to my tea pot and brew up a few cups. (decafe of coarse) Then through the night I can be up to visit the potty 5-6 times! And by morning it's gone, well most of anyway. What is up with that??? I find it's when I am unusually dehydrated and thirsty, so I drink like a camel but it's like the water doesn't do what it's supposed to, it just sits on/in my tummy??? Am I weird or do any of you deal with this? I have some other AI issues and wonder if this particular little gem is from the sjs or something else. Thanks Sandra
Hi Sandra :)
I don't change size but I'm several sizes larger than I used to be. I'm blaming some of it on my thyroid and some of it on lack of exercise due to SjS.
I think you should ask your doc about water retention. Maybe you could be prescribed a diuretic or something.
Take care - Scottie :)
Sandra,
I change size frequently and I did nothing differently, that was until my doctor put me on methotrexate, which evened out the my changing sizes overnight. my clothes may go from feeling tight to loose over night, but the size I wear has remained the same. The swelling throughout my body has also decreased. All my testing for SS and AI diseases were neg, except I have a low wbc and high sodium; the doc decided to try methtrexate to see if I had any improvement in my symptoms.
Hope you can find a solution to your frequent changes in sizes soon.
Collie
I hold water too, but I think it is due to my hypothyroid. I have gained so much weight due to the sjogrens, and fibromyalgia. For a while I lost about 20 pounds , because I felt a little better, but then after the holidays I have gained it back. I am trying to gear myself up to try again. Surely, I would feel a bit better with some weight off.
susanep :)
my weight as in body fat has been stable sinc emy second son.
yet i can bloat up a dress size , and feel so as you say sloth and yukky that i just get into loose pyjamas if i can. yet all of a sudden its gone and i drop down again, sometimes my stomach looks 9 months pregnant, rheumy asked me if i blaoted up and shrank downa gain i said i very much did, he said it was symptoms of the fibromylagia. have felt alot better recently by making a few changes , i posted about in coconut oil update thread
thought with you its not nice feeling good one minute and feeling that bloated the next you feel like green peace will have to start protecting you :-s
T x
I always have at least 3sizes for weight changes but thank
goodness I've stabilized for the last yr.The problem is I'm so uncomfortable from midafternoon on.I wear loose sweats and baggy shirts,a bra kills my back.Still I put on a loose nightgown as soon as I can.I have asked my Dh if I could buy the housedresses my mother used to wear.He gives me the evil eye if I have on the flannel gown at dinner so I guess not.I look like a bag lady all the time!I am always on the lookout for a baggy shift I can wear during the day.
Ruby
I live in my PJ's....unless we go out to get groceries, during the summer when we go to rallies,
do a bike run, or go to our monthly ABATE meeting and the occasional out with friends nite..I'm all PJ's.
I eat from a desert plate...I do not have large portions...but I end up feeling as though I ate the kitchen sink.
I take BP med that has HCTZ in it because I do retain water...but I'm dry...how confusing is that...
But the cool part is when my BF gets home..straight into the PJ's he goes..so I'm not the only one
looking like a slob....lol
JJ
Sandra,
This might be due to one of your medications. I just went through a week of this exact same thing and it was caused by a new heart medication my cardio put me on. It was the oddest reaction I have ever had to a med. My hands swelled a little, but from my waist down to my knees it was horrible. I couldn't wear any of my slacks or skirts. I lived in sweats the whole week.
Even with 40 mg. of Lasix the swelling kept increasing. I finally gave up and called my cardio and he took me off it for a week and now I'm back to where I was before I started it.
Check the side effects of your medications. It can't hurt, even if they aren't new.
Also when you mentioned TEA it rang a bell with me. I can't drink tea of any kind because of swelling. The last time I drank ice tea my hubby had to cut my rings off my fingers.
Pooh
Gee Pooh isn't Lasix a fluid pill ? My mom was just put on it as she has kidney cancer with mets to her lung and in Dec she got pneumonia. Isn't it strange that it would act in the reverse for you?
As far as the oh so elegant loose clothing me too, not only do they have to be real loose but preferably soft too. I think it's the sjs for loose ie fluid retention and the soft for the fibro for pain control.
I am a real weight watcher too, I totally get the small plates, small portions and still feeling like I ate the "whole thing". What's up with that? My hubby is always on me for not eating enough. i try to be active too lots of walks and keeping busy with our masonry business and my mom. But boy the weight can really stick easy but it sure doesn't come off the same. My GP explains with the prednisone the body metabolizes food differently storing as fat instead of energy. When i ask her about how to combate that and help lose the weight gained after a bad spell I get the "be happy you're alive look" :-\
I too have gained 20 pounds in the last 2 years, I beleive an auto accident I was in in 2007 started the whole thing. Anybody have a weight control success story to share. Still determined, Sandra
Did you know that if you don't eat enough calories your body can retain weight because it thinks you are going into famine? My Mum has had this problem for years. She complains all the time that she can't lose weight and that she eats like a fly, but actually she eats below subsistence level much of the time, so her body protects itself by storing fat. I thought this couldn't possibly be right when we were told it by a nutritionist, but then her Dr. said something similar so I guess it must be sort of correct.
I'm like you though, I can fluctuate hugely during the course of a couple of days and my scale weight varies by as much as 1/2 a stone in the same period of time. I never have worked it out, except water retention does seem favourite. Some nights I am up and down like a yo yo!
Beverley