From the rheummy in Pittsburgh,, he asked if I had gottena call from the neuro,, about going in the hospital and getting the IV steroids, i toold him no i had not,, they called back a bit ago and want me to go to Pittsburgh to go in and start te Steroids,, I pray that is what is making me lose motor function in my limbs,, it was pretty bad over the weekend,, constant pain,, cold intolerance,, just tottaly insane,, but mayne i have found some answers before tis all cripples me,, as you recall,, he has told me,, I dnt care what your blodwork says,, you have SS, and nows its become a CNS problem,, wish me luck
navydad
good luck !! I know your worried right now, but you might feel miles better, and thatd be quite something ! go and have faith, keep you in my thoughts
T x
Lots of good luck NavyDad, you sure have waited long enough for it. Thank goodness your doctor won't give up on you. I pray this treatment slows down the involvement of CNS for you. I know only to well what you are going through.
GOOD LUCK and let us know when you get back.
Pooh
Navydad,
Sounds like your on a roll, I assume that the infection as cleared or nearly cleared and now steroid therapy, good luck Dude!
Hi Navydad
I'm so pleased to hear you are being taken serously, and have some treatment planned. I'll be keeping my fingers crossed that this is the beginning of your healing process.
Kathyx
Navydad,
Sure hope you have a positive response from this treatment. I'll sure be thinking of you and praying for the best. Hang in there!!!!!! It can get discouraging.
Anna
Good luck Navydad - I just really hope you've found a good doc at last. Fingers crossed.
Take care - Scottie :)
Navydad,
I'll shout out a guarded, "Bravo!" and hope they fix the problem!
Thinking of you and wishing you wellness,
Janna
Navydad, Good luck hun I will keep you in my thoughts and prayers...I hope they find you something soon to help with the pain, I know it can just be so frustrating!
Hang in there, Cortnee'
It's been a long road, Navydad:
I can't add any more than to echo everyone else's wishes that this is going to be the answer for you.
Hoping for the best outcome,
Sheila
navydad, Finally, a doc who gets it!!! You should have some improvement with the steroid therapy. You have had a long haul these past couple of years. HOpefully they will get you well enough to enjoy living again. Prayers will be offered up for your improvement and for you and your family. IRish ;D