My hands, feet and nose all feel cold to touch, yet I'm perspiring. It's like a clammy feeling.. This happens frequently. I am not taking any meds for SjS. Any ideas?
My feet are like frozen blocks of clammy ice all the time.
I think it's Raynauds related.
Same weirdness here. Hands and feet usually cold. Sweatshirt over t-shirt comes on and off as needed. It's Michigan and cold here.....so the house is chilly at times as we try to conserve on heating bills. I still keep it at 70 and sometimes that's freezing. Other times it's hot. Lucy
Yep, same here. Then when I get warm I feel like I've been scalded. We can't win with this disease. I don't even try anymore. Ewwwwww!!!
Pooh
I do the same thing BounsMon, and I tend to agree with Janna, I haven't been dxd yet, but I see Rheumy on Thursday, he may have to cancel my Orencia treatment and I'm so frustrated about that!
Yep I have been saying for years that my thermostat is broken. The neuro says it could be related to the autonomic neuropathy. I hate when the feet get bone cold and nothing seems to warm them up! I get no sleep when they feel like that.
Agreed Salsen - think I need a central heating engineer too as my thermos wonky as well ... boy if only it was so easy!!! When I find one, I'll send him round to you as well.
Wen x