http://clinicaltrials.gov/ct2/show/NCT00023491?cond=%22Sjogren%27s+Syndrome%22&rank=23 (http://clinicaltrials.gov/ct2/show/NCT00023491?cond=%22Sjogren%27s+Syndrome%22&rank=23)
This study has been completed (in 2004, apparently). Did anyone here participate? Does anyone know how this study turned out? I'm still crossing my fingers for a better treatment for lack of saliva (hopefully sooner rather than later)!!
Thanks for any info.
Cathy
Cathy:
I sent an email to NIDCR asking for the results of the study - so will await a possible reply. This looks very promising!
Sue
Thanks Sue. You are such an asset to this forum!
Cathy
Cathy:
Thanks! I feel the same way about you! No word back as yet, after a few days, I will try again.
The study is being done by the National Institute of Dental and Craniofacial Research and here is their Contact Page http://www.nidcr.nih.gov/ContactUs.htm
It is cllinical trial NCT00023491.
I would encourage any forum members to contact them also - there is strength in numbers!
Sue
Got caught up on the holidays and lost track of this - but I'm going to get more aggressive about contacting them next week.
In the meantime, what do you think of this?
http://www.ncbi.nlm.nih.gov/pubmed/16522169?dopt=AbstractPlus
Is it my understanding that a combination of blueberry, green tea, catechin, carnosine, and vitamin D(3) stimulate endogenous stem cells to promote healing and regeneration. Might have some indirect applicaton to us?
Sue
Hi Sue and everyone,
Thanks Sue for your diligence. I'm continuing to hope and pray everyday that a cure will be found in the not too distant future.
I've been absent for awhile as I'm dealing with a lot and have somewhat withdrawn as an attempt to cope. My 13 year old daughter is having a number of health issues, possibly autoimmune. She goes for testing tomorrow.
I check in periodically in hope that some new therapy or discovery toward a cure can be found.
I still think of you all and miss the interaction. I hope you are all doing well (as well as possible, that is).
Hello Janna! I miss you!
I'll post more after Jessica's pediatric rheumatologist appt.
Love,
Cathy
Cathy:
I am so sorry to hear your daughter is having health issues - I will pray for you both!
It is so much worse when our kids are ill, we would take their place in a heartbeat.
I hope the doctor has answers for you.
Love,
Sue
Thanks Sue,
Jessica has Raynaud's. The Dr. did a lot of bloodwork. I should know something within a week. I hope all the tests are negative. Thanks for your prayers!
Cathy
OK this is what I want to see - except the stem cells from the patient are turned into salivary gland cells and implanted in the parotids (or any gland needed).
http://www.telegraph.co.uk/health/healthnews/4569971/Trials-for-revolutionary-stem-cell-surgery-in-UK-within-a-year.html
Sue