Not sure if any of you caught it tonight, but the TV show "House" just had a new episode where this gal had Sjogrens. It was really good. It showed how serious it can be. I know she had some seizures and some lung issues...they didnt mention the dryness until the very end so I couldnt figure it out...anyways, just an FYI
I love that show but usually catch it in re-runs only... Thanks for the heads up...
funny i never watch and tonight i did... I said something to my daughter when she was being treated like a hypochronidic... and then the fatigue.. I thought .. sounds like me... very interesting.. you can watch the episode online if you want to see it for those of you that missed it
HI>>>I saw it too...SOOOO Exited.....IS anyone on the Methylpredisone they talked about? Denisezesh
My husband watched the show and taped it for me... I've never heard of that med..I'm going to research it now.. anyone on it???? WOW Sjogerns on a show like HOUSE. that means we are 'one of a kind people' cause House dosen't treat 'normal' illnesses.. LOL!
Methylprednisolone is an intermediate duration corticosteroid like prednisone, with a slightly higher relative strength...4 mg of methylprednisone (Medrol) equals 5 mg Prednisone.
Wow...thats interesting! I don't usually watch House....but I might try to catch this episode online!
Thanks for letting us know!
interested episode - cannot imagine that the girl would not have complained of dry eyes if she could not produce tears - my eyes are dry - but I can cry and make tears - I have not been diagnosed yet - should know in a few days - but I was given methylpredisone by my ENT last visit - 6 day supply - did not do anything for me - but I am not sure what 6 day pack will do anyway
I watched it too but wouldnt have ever caugt it from the symptoms that lead up to the dx. Was kinda weird but did like the fact that they showed that it could be a serious condition. She had developed cysts in her lungs as a complication , fatigue was a biggie but she had a seizure( but I think that was due to some drugs she had taken) and some neurological issues..neuropathy. But they didnt talk about the lack of tears or dry mouth until the very end. But I love House I watch it all the time and he only takes the really tough cases. She had been trying to get him to take her case for a while b/c all the other docs had said there was nothing wrong with her. Havent we all been there!
Oh man. I wish I'd caught this episode. Where can I find it online? What's the name of this episode?
I didn't watch it--and usually don't. Make that never. Will the folks who do watch the show try and alert us next time for a rerun. I'm thrilled though that so many saw the show. I'm thrilled that the disease had a name. Lucy :)
I'm pretty much a House junkie, so I just finished watching tonight's episode. I thought it was really really good. I think it's funny she had lung cysts, when so many doctors think that sjogrens has no lung symptoms.
I caught the final scene when they discussed the Sjogren's. I enjoy the show and thought they already did a show with sjogren's. I'm on regular prednisone right now. I just started to cut back on my daily dose because my itching is gone.
dave
Aparently you can watch it online at www.fox.com or you can purchase it from itunes
It wont be available on fox.com for 8 days aparently. Im in aus so cant get it yet. we are behind but will keep trying
Pud
As I watched the episode, I almost immediately thought she had sarcoidosis...that would have explained every one of her symptoms including the seizures, fatigue, lung cysts, lack of tears and aplastic anemia. How they made the leap to SjS without labs to tell the difference, I'll never know!
They've used both SjS and sarc as differentials in the past, but then both diseases can be so vague, they can be a differential for just about any systemic disease you can think of.
I was disappointed (after watching it for a second time) at how blase' House was with the girl having Sjogern's.. he was like "Oh she can't cry she has Sjogern's" but I was happy the girl was having all the problems cause now my HUSBAND understands that what I have is REAL and it's PAINFUL and it HURTS.....
I looked up that med.. I think the brand name is Medrol... I kid you not, the side effects seem far worse than Sjogern's.... I'm disappointed.. I thought House had found a cure...
Here's a fun TV trivia... did you know Patrick Dempsey went out for the role of House? He didn't get it... Did you know Shondra Rimes (creator of Grey's Anatomy) wanted Rob Lowe to be Dr. McDreamy? He passed and went to Brothers and Sisters... So now we have Patrick as Dr. McDreamy and Hugh Laurie as House... neat huh?
I'm so mad I missed it. My boyfriend acts so not interested in what I'm going threw. That is his favortie show and we missed it. I guess we have to wait a couple of weeks to watch it online because they are behind the online versions.
http://www.fox.com/fod/play.php?sh=house I guess we have to wait 8 days after the episode b4 we can watch it online.
Awareness!
Me too!
I tried to log in right away last night and I forgot my password I was too excited!
Perhaps someone will post it on youtube themselves...
http://www.youtube.com/user/FoxBroadcasting
3 previews
It is Episode "Lucky Thirteen" and the air date is 10/21
http://www.youtube.com/watch?v=2MLnjIH5mUs&feature=user
It is On Demand now
8 weeks it will be on their site:
For full length episodes visit: http://www.fox.com/fod
Cheers,
P.
I was totally blown away when they started started talking about her lack of tears and then said she had sjs! But my husband was watching it with me and perked up and asked "can sjogrens really cause all of that?" I went on to explain to him about a lot of organs that SJS could affect. I thought it was great that he could see (without any prodding from me) it.
That episode freaked my boyfriend right the heck out. Same as your husband, Rita -- "can it do that?"
So I explained ... yeah, lungs, kidneys, neuropathy... all in the realm of possibility. It's such a "fun" illness. ::)
You know, as the episode progressed, I wondered... you all know -- the fatigue plus the seizure, you gotta figure lupus is a possibility -- but of course the joke on the show is "it's never lupus." Then, for just a moment with the numbness on the hip, I wondered.. but they explained that away (so we thought).
And of course when they got to the onion test... yeah, I slapped myself in the head. D'oh!!!
I saw the last 10 minutes. When he asked "Does she have tears?" I knew it was Sjogrens. I have several people stopping me asking me more about Sjogrens because they saw it last night. Also my blog has got a couple of hits from people searching about House and Sjogrens.
Vicky
www.sjogrensandme.blogspot.com
You know, if anybody missed this episode, you might be able to catch it on www.hulu.com within a couple of days. They have the last three on there already, including last weeks. It's a website where you can watch tv shows, movies, etc. Check it out. My son told me about it maybe a month ago and it's great. Dale
I noticed you all type Prednisone when you refer to steroids. I am on prednisolone - is that the same thing?
Beverley
ps Sorry - great House fan but I guess it won't be in the UK for a while.
Quote from: beverley on October 22, 2008, 02:50:22 PM
I noticed you all type Prednisone when you refer to steroids. I am on prednisolone - is that the same thing?
Prednisone is a prodrug, meaning, it turns into another drug (Prednisolone) in the Liver. So you are more or less taking the same thing, it just doesnt have to be converted in the liver first.
Hi Beverley :)
I was definitely given Prednisolone drops for my eyes for a while.
Take care - Scottie :)