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Sjogrens Topics => Living With Sjogren's => Topic started by: LenV on September 07, 2008, 04:30:23 PM

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Post by: LenV on September 07, 2008, 04:30:23 PM
I'm offline for awhile.  My reading and answers has been sketchy I know.  But by now all of you should know I'm moving.  The movers come in two days and my husband has to take all the computer equipment apart and pack it.  Will check back in when it's all over.  I see my rheumie on Weds. 

Billye
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Post by: lynnmarie219 on September 07, 2008, 04:51:55 PM
Hi Billye!


Good luck with the move!! We will be here when you get settled into the new place, are rested up and all set up again computer wise! Make sure you don't overdo it so your body doesn't go into a flare.....I know easier said than done!  ;)


Btw.....good luck at the rheumy appt. too!
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Post by: Patze on September 07, 2008, 05:36:59 PM
Hi Billye,

Hang in there and good luck with the moving!!!

I'll also keep my fingers crossed for you and your visit to the rheumy!


Patze
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Post by: Scottietottie on September 07, 2008, 05:37:37 PM
Hi Billye  :)

We look forward to seeing you back here after the move. You're not going to take it easy till then - are you? Hope everything goes smoothly.

Take care - Scottie  :)
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Post by: pudmott on September 07, 2008, 07:26:08 PM
Hey Billye,
Good luck with the move. See you when you are back online. Take it easy and rest up when you can.

Be good to you

Pud
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Post by: irish on September 07, 2008, 09:15:52 PM
billye, Take a deep breath, back up and punt and we will be awaiting your return. Rest up and don't try to do it all---I know how it goes cause we women want things all in the right place so our "nest" is in order. Hugs Irish ;D
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Post by: Pooh on September 07, 2008, 09:44:59 PM
Take care and don't overdo.  I know that just went in one ear and out the other, but try!  We will be here when you get back on line. 

Hugs, Pooh
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Post by: LenV on September 13, 2008, 12:58:07 PM
Well,
I'm back.  Maybe I should say,..what's left of me is back.  Sure enough, I'm in a massive flare.  It's so bad that the Rheumatologist told me he wanted me to start using a patch for pain.  I didn't ask for it.  He commented "I know you are in lots of pain and this will help".  It has helped and I've been able to cut back on the other pain med because of it.

But exhaustion is my biggest problems.  Doesn't help that I'm a little obsessive right now too.  I need to get this all done,....know what I mean??  I sent my husband to bed about 11:00 last night and I kept going.  Several hours later I finally sat down in one of the kitchen chairs to rest.  I fell asleep in my chair almost instantly, fell and whacked the cheekbone/eye socket area.  This morning I have a large knot and a black eye and I'm struggling to stay awake.  The storm has us slowed down.  I'm planning an early bedtime tonight.  I guess something had to stop this nesting I was doing.

Gonna go shower.  I'll try to catch up soon.

Billye,
oh..question.  Any of you ever had your tongue not work normally when you are so tiered?
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Post by: pudmott on September 13, 2008, 03:45:46 PM
Billye billye billye,
What are you doin girl? You know if you keep punishing your body it will punish you back twice as bad. Having said that i know what you mean about obsessing about things and having to get them done. We never learn do we?

As for the tongue, mine never works properly usually because my foot is in the way of it. In your case yes exhaustion will impair your ability to speak as well as many other things.

Take it easy honey and have an early night. Get some ice on that eye too.

Pud
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Post by: Patze on September 13, 2008, 04:52:42 PM
Billye, girl - what Pud said!!! ;D  My fingers are tongue tied tonight! ;)

Anyway, please take it easy, you're going to get yourself hospitalized if you're not careful, and the boxes are not going anywhere!

Take care of yourself now -

Patze
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Post by: SeaBreeze on September 13, 2008, 05:11:18 PM
Billye, I can relate to the woes of moving.  I moved last weekend too.  I was so stressed because I'm recently separated and had to do all the packing and unpacking my self... I had prof movers, but it is still a big task.  I've been shuffling boxes around for days.  I finally had to stop because my body was screaming, my fingers and hands were numb. Once I sat down I literally couldn't get up. I'm sure you know what I mean... I just goes on and on...I'm having a hard time 'remembering' where I put stuff now too. I'm having a hard time pacing myself too... I know how it feels to want it 'done'... but I had to stop and rest most of today and I plan to rest a good part of tomorrow. Good luck with the rest of it...
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Post by: lynnmarie219 on September 13, 2008, 08:24:08 PM
Oh Billye! My goodness.......

I'm glad that you are getting things done, but please take a rest!!! I know you want it all done now but your body is telling you to STOP!!!! And as Patze said...the boxes will be there even if they have to wait for a few days! 


Please rest some and take care of that eye!
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Post by: irish on September 13, 2008, 10:07:17 PM
billye, I know that I have had trouble making my mouth/tongue say what I wanted when I was really tired.

I would think that you are beyond tired. I bet when they gave you the Pain patch that your body got almost stoned from the patch kicking in plus the fatigue.

I can't imagine how much longer you can keep this up. I wish some one could come and help you. I can't imagine you not ending up in the hospital from this huge stress. If anything I think it makes me realize even more how much "junk" I need to get rid of because my moving days are getting closer. Hubby says he won't move from here but he may not have any choice!!!! LIfe is not certain.

Please, Please, sit down once an hour for 15 minutes to rest and go to bed on time. I know how obsessive one needs to be with moving as I have done it myself several times. There are some things that can't be done until the day before anyway and if you rest you will be more able to cope physically and mentally.

Make your list and cross it off as you do it. All obsessive people do this. When I moved I had list of my list!!!!Irish ;D
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Post by: mim on September 14, 2008, 01:37:07 AM
Lots and lots of that fuzzy warm stuff called LOVE ...... ;)

Mim xxx
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Post by: genko_b on September 14, 2008, 03:01:05 PM
Hi Billye:

I do not see how you are able to do what you are doing. I am still recovering from clearing out 50 years' accumulation from our mother's house three years ago. Moving is stressful in the best of circumstances. I am convinced it is what started the flare that I'm still dealing with a couple of years later.

I hope you will take everyone's advice to slow down a bit. Just chip away at the boxes when you are able.

The blinking thing does not sound good. If it were me I would rest for a good 24 hours and if the blinking did not make itself right by then, at that point I would see a neurologist.

Take care and get some rest!

Genko
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Post by: LenV on September 14, 2008, 07:36:58 PM
Thanks all!!!!
I did go to bed but am still exhausted.  My husband is one of those who waits until the day before moving to start packing.  Then he totally exhausts himself and pushes me.  I am so afraid he will hurt himself that I push myself harder.  Yesterday it rained gushes and gushes.  I discovered that my new sunroom addition leaks under one wall.  I put every clean towel I had in the floor to soak it up.  (Had just folded them all to fit the shelves in this house.)  Then last night my husband decided the glass hingeless shower door would better be cleaned if he pushed it backwards into the shower.  Well the door didn't like that and it is now hanging by one hinge.  I caught it and propped it against the opening.  It was so heavy but I was afraid it would shatter and cut me. Now I have one bathroom to use and it's not handicap friendly.  It just never ends.  I've got so much to do tomorrow.  I see the neuro tomorrow (the one who is a pain specialist) and I also see the surgeon about my knee.  I'm just not sure I'll get everything stuffed into one day.

I'm asking him about my tongue.  I think I'm just beyond tired.

Patze...rest...rest!

Billye