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Sjogrens Topics => Living With Sjogren's => Topic started by: kathylee on July 28, 2008, 07:27:27 PM

Title: My Daddy died
Post by: kathylee on July 28, 2008, 07:27:27 PM
Not sure what to say. I havent been able to have my feelings about this cause it happened 5 days before my daughter was scheduled for major surgery ( wrote about this elsewhere) and the second day I was in the hospital for the myasthenic crisis......It is kinda a blur. Then because my myasthenia got worse again I was readmited to the hospital so i was in the hospital for Daddy's funeral. My dad was was the closest thing to a Dad my youngest daughter had..the one that was due for the surgery. She was soooooooooo mad that I couldnt come...and I hate that I wasnt there for her. I was harder on her than anyone....I should have been there. For my Dad it was a blessing that he went. He was 87 and had addtional strokes that lleft him unalbleto swallow. He hadnt talked inteligably for some time. I miss talking to or just hearing  Dad talk. But that hadnt happened for years like it did when Daddy and would go to grammas and grandpas for coffe just him and me.
My sister and mom decided that to put him into the hospitalf or invasive tests and ultimately a feeding tube would not be what he would want or the loving thing to do.
Thats all I can say for now.
Kathylee
Title: Re: My Daddy died
Post by: eyeamdry on July 28, 2008, 07:29:08 PM
Kathylee, I'm so sorry about the loss of your Father.  Please accept my condolences.  Lucy
Title: Re: My Daddy died
Post by: lynnmarie219 on July 28, 2008, 07:50:45 PM
((((((((Kathylee))))))) I am so sorry for the loss of your dear dad and for all that you have gone through. I don't know the words to say....but do know that I am saying a prayer for you and hoping you can find some peace for yourself soon.

Sending lots of hugs your way....please come back here if you need someone...we are here for you!   
Title: Re: My Daddy died
Post by: Scottietottie on July 28, 2008, 08:00:14 PM
(http://i62.photobucket.com/albums/h81/Scottietottie/71deepestsympathyheart.gif)

I'm so sorry Kathylee. It must have been so hard not to have been there as well. Your daughter will get over her anger. She's just grieving and hitting out at the world and unfortunately, those closest seem to get it first.

Take care - Scottie
Title: Re: My Daddy died
Post by: irish on July 28, 2008, 08:06:56 PM
kathylee, My deepest sympathy goes out to you and thank you for sharing this with us. This was really a very hard time for you and as the time passes I hope that you can remember more of what went on so that you can talk more with your daughter.

It was unfortunate that you were not able to attend the funeral but sometimes things happen that we don't understand. Please know that I am thinking of you and please rest and de-stress so you don't have any more crises. Hugs Irish ;D
Title: Re: My Daddy died
Post by: kimbo on July 28, 2008, 08:24:03 PM
Kathylee,

So sorry for the loss and for your daughter also. Huggs for both of you and prayers of great comfort to you and your whole family.
Maybe when the time is right you may have a remembering party. It is so pleasant to remember good times and fun times and share great memories.

I will pray for a good recovery for your daughter. And also for your health.   May you feel love and comfort and peace in due time.

kim
Title: Re: My Daddy died
Post by: Pooh on July 28, 2008, 08:42:56 PM
So sorry about your Dad and daughter.  I hope with time the pain will go and the healing will begin.  It's never easy to lose a parent or grandparent. 

Hugs and God Bless,
Pooh
Title: Re: My Daddy died
Post by: susanep on July 28, 2008, 11:57:45 PM
KathyLee, I am so sorry to hear of the passing of your precious father, and I am sorry for all you and your daughter are going through. I have said a prayer for both of you, and your family.

susanep :(
Title: Re: My Daddy died
Post by: Katybarstool on July 29, 2008, 12:14:18 AM
Kathylee

My thoughts and prayers are with you and your daughter.

God bless.

Kathyx
Title: Re: My Daddy died
Post by: Linda196 on July 29, 2008, 03:43:33 AM
Kathylee, please accept my condolences, too.

What a terrible time for all of you, facing loss, illness and surgery, and unable to be together. Kim's thought of a "remembering party" sounds wonderful, and what an opportunity to celebrate your Dad's life. Your Mom and Sister made a loving and brave decision.
Title: Re: My Daddy died
Post by: Skylar on July 29, 2008, 06:32:55 AM
I'm sorry, what a sad and stressful time for your whole family - please accept my condolences for your loss.

Skylar
Title: Re: My Daddy died
Post by: modistee on July 29, 2008, 06:47:46 AM
I am sooooo sorry Kathylee.  *big hugs*

Modistee
Title: Re: My Daddy died
Post by: Sjenny on July 29, 2008, 09:23:04 AM
Kathylee:

I am so sorry for your loss.  Please accept my deepest sympathies for you and your family.

Sue
Title: Re: My Daddy died
Post by: Cheryl on July 29, 2008, 04:50:46 PM
Kathylee,
   I'm so sorry to hear that you lost your dad.   It must have been torment for you to be unable to attend his funeral.  I get the feeling that you are carrying a lot of guilt about it.   It's not your fault.   You don't deserve to carry this extra burden, when you already have so much to deal with.   
  He sounds like a wonderful dad and grandfather.   I hope you and your daughter can find a mutual peace of mind in remembering and loving him together.
   God bless you.
Cheryl
Title: Re: My Daddy died
Post by: LenV on July 29, 2008, 07:39:14 PM
I'm so very sorry about all that has happened to you.  I was unable to be at the funeral for my Mom so I can understand the feelings you are having.  Your Dad would know and understand why you weren't there.  I'm sure he's looking down and saying don't fret about this, just take care of you.

My sincerest condolences to you and your family,
Billye
Title: Re: My Daddy died
Post by: SilberKatze on July 29, 2008, 09:14:12 PM
Kathylee, I'm so sorry about your Father. My wishes and luck for you and your family.
I really don't know what to say as I have never had something even remotely close to this happen, but all I can say is that I wish for the best for you. *Hugs*

Once again, I'm so sorry. =(
Title: Re: My Daddy died
Post by: wen.uk on July 30, 2008, 03:02:02 AM
Oh Kathylee, words don't even come close to saying how sorry I am for you.  As others have said you daughter will come to terms in time but it's always our nearest and dearest we hit out at when we're hurting.

Be gentle and give yourself time to grieve and heal.

Love Wen x x
Title: Re: My Daddy died
Post by: kathylee on July 30, 2008, 07:47:22 PM
Hi,
I did not know how raw I am....I dont really know where I am with this.....writing here was what I needed to 'break' the wall it seems but now I pulled back....I havent read all your notes cause..cause I seem to be scared of something. It has all been too, too much... the hospitalization, my daughter having a scary surgery that came out well but at first it looked very, very bad ( wrote about this elsewhere..her Dad died shortly after this type of surgery-exporatory). Ive lost control of so much right now..having a hard time getting my bearings...its hour by hour most days now cause I'm not responding as strongly to mestinon for the MG which I was in the hospital for...the wonderful GIFT here is I do not feel alone in all this with all of you ou there. Thank you so.

Kathylee
Title: Re: My Daddy died
Post by: kathylee on August 01, 2008, 07:35:51 PM
Hi all,
Its been a good day so I wanted to tell you thank you again for me and both my daughters...the oldest one handled it better than my baby one. Wiht this better day I was able to finis reading all you notes. You are so amazing. I have been crying off and on which felt more normal.

HUGS to you all
Kathylee
Title: Re: My Daddy died
Post by: lynnmarie219 on August 01, 2008, 08:16:22 PM
I'm glad that today was better for you....take good care of yourself.......you will heal in your own way and time.

We will always be here if you need to "talk" or get things out of your system.  Hugs to you and both of your daughters!
Title: Re: My Daddy died
Post by: salsen on August 01, 2008, 10:11:45 PM
Kathy , you and your family are in my prayers.  Making difficult decisions for the elderly is always sad and causes guilt even when we know it is the right thing to do.  I went through that with my grandmother when she basically forgot even the basics like eating.  Our hearts wanted to get food in her anyway we could just to keep her near but our heads told us that at 94 a feeding tube would be painful and cruel.

I know it must have been very hard not to attend the funeral but your Dad knew your love.  That is what it is about - letting our loved ones know how much we care while they are here around us.  You did that very well. 

May God bless you with peace and beautiful memories of your father.
Title: Re: My Daddy died
Post by: danilee on August 02, 2008, 07:10:20 PM
I am new here,but I just wanted to give my condolences. I am so sorry for your loss.. Hugs
Danielle
Title: Re: My Daddy died
Post by: genko_b on August 02, 2008, 09:28:52 PM
So glad to hear you are doing a bit better. It is perfectly understandable that this has been an overwhelming time for you. Please take care and allow yourself time to get through all your feelings as they unfold. This is a great group of people who provide us all with such good support.

Genko
Title: Re: My Daddy died
Post by: Gerri on August 03, 2008, 06:11:02 AM
Kathylee, it's been 11 years since my Dad died, there is not one day I don't think of him.  I don't have to go far to tell him I love him.  Because he is with me in my heart. 

My thoughts and prayers for you and your family for better times.  I am glad to hear that your daughter is doing better after her surgery. 

Just know you are not along that you have your father memories always there in your heart, as I continue to hold my father's memories close to me even after 11 years.

Hugs

Gerri