Sjogrens World Forums

Sjogrens Topics => Living With Sjogren's => Topic started by: nussy on May 30, 2008, 10:45:21 AM

Title: I'VE BEEN WAITING AND WORRIED........
Post by: nussy on May 30, 2008, 10:45:21 AM
I've been kinda worried about my dry eyes, mouth, tooth loss, brain fog that have been going on for years....
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I've been eyeballing doctors and they've been eyeballing me...(the psycho)
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I've been waiting and hoping for a Dx that never seems to come....
(http://id.mind.net/~barbados/waiting-dog.JPG)
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The docs have shined me on and kept me hanging....
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But, I did blood tests Monday and Tuesday I GOT A REFERRAL TO A RHEUMATOLOGIST!!!!
So now I'm KINDA HAPPY!!!!!

(http://id.mind.net/~barbados/kinda-happy.JPG)


I'll let you know what happens on the 11th!
Title: Re: I'VE BEEN WAITING AND WORRIED........
Post by: Skylar on May 30, 2008, 12:42:22 PM
LOL - you're a riot. ::)
Title: Re: I'VE BEEN WAITING AND WORRIED........
Post by: JannaLee on May 30, 2008, 01:58:43 PM
Nussy,

Your post is very artistic.  I'm wondering if you're a poet and didn't mention it before?

I'll be thinkin' on ya come the 11th!

Janna


Title: Re: I'VE BEEN WAITING AND WORRIED........
Post by: Annj5 on May 30, 2008, 02:51:10 PM
Hi Nussy,

Loved the cute pix!!
Glad you've got an appointment with your rheumy.
Keep us posted,
Julia
Title: Re: I'VE BEEN WAITING AND WORRIED........
Post by: Nettie on May 30, 2008, 04:14:10 PM
What a great way to update us.  Good luck with your appointment.  I love the pics!!!

Nettie
Title: Re: I'VE BEEN WAITING AND WORRIED........
Post by: Patze on May 30, 2008, 05:08:49 PM
Aw Nuss,

You're are just too much! :)  Did your doctor say why he was sending you to the rheumy?  Good luck on the 11th!!!!

Patze
Title: Re: I'VE BEEN WAITING AND WORRIED........
Post by: nussy on May 30, 2008, 05:41:24 PM
Hey, all!

No, I don't have a clue.  All I know is that I had the blood work on Monday and my primary doc called for an appt.  plus the rheummy called for an appt. the same time!

Must be something....wouldn't think one would get a rheummy referral for nothing.(????)

Probably Hodgkins.  sigh.... ;)
Title: Re: I'VE BEEN WAITING AND WORRIED........
Post by: Scottietottie on May 30, 2008, 06:04:11 PM
Good luck on the 11th. Let us know how it goes!

Take care - Scottie  ;D
Title: Re: I'VE BEEN WAITING AND WORRIED........
Post by: YICKelly on May 30, 2008, 07:37:49 PM
Best of Luck at the Rhuemy.  That was a fast appointment, I had to wait over two months to get mine!! 
Title: Re: I'VE BEEN WAITING AND WORRIED........
Post by: nussy on May 30, 2008, 07:54:41 PM
"......That was a fast appointment, I had to wait over two months to get mine!! "

I know.  That's why I think it must be serious!

There are only six (6) rheummies in our city of 100,000.  Otherwise one must go north or south 300 miles.

Many have to wait months for an appointment.

Oh, well......I'll just wait it out and be brave, yes?

(http://id.mind.net/~barbados/worried-dog.JPG)
Title: Re: I'VE BEEN WAITING AND WORRIED........
Post by: JannaLee on May 31, 2008, 05:59:59 AM
On the 11th imagine all of us walking in there with you...because we are all concerned for you and wondering what is up.  It is kind of cruel to call YOU for an appointment without telling why.

If you are losing sleep over this you could call and ask for your test results over the phone.  Then you will have time to absorb and read about whatever it is before you go in...and write down any questions.

I mean after all, the test results belong to you. 
Title: Re: I'VE BEEN WAITING AND WORRIED........
Post by: Patze on May 31, 2008, 09:43:25 AM
By all means, have them tell you the results or if you have a fax machine, have them fax the results to you.  Janna is right, the results do belong to you and you have a right to know what is going on. 

Isn't it so frustrating having to wait months to see a doctor?  I thought waiting for an endo was tough, I now have to wait to see the pulmonalogist too; boy their unions are tough!!! ;D

Hang in there Nussy and let us know what the rheumy thinks!

Patze
Title: Re: I'VE BEEN WAITING AND WORRIED........
Post by: nussy on May 31, 2008, 10:25:44 AM
Thanks to you all for your concern and kind words.  I always feel better when I come here, as you are all so knowledgeable and nice.

Patze, I don't think we even have pulmonalogists here.  I asked a local about them once and they told me I'd find them on the Pullman cars hooked to the trains that go north to Alaska!  We have a very shallow gene-pool here......

Maybe I'll just wait.  If I did have the results faxed to me, you guys would have to interpret them. I used to sit in on the med lectures at UC Berkeley while waiting for my engineering class, but only learned enough to be dangerous.  Plus, that was back when dirt was new and things must have changed, yes?

Anyway, at least I'm moving ahead.  Thank you all !

-nuss-

(http://id.mind.net/~barbados/happy-cat.JPG)
Title: Re: I'VE BEEN WAITING AND WORRIED........
Post by: Patze on May 31, 2008, 02:10:32 PM
Aw Nuss,

I do so enjoy your pictures - they are so cute and apropos. :) 

There was dirt and it was new?  Wow, some folks had the best childhoods! ;D

Patze :D
Title: Re: I'VE BEEN WAITING AND WORRIED........
Post by: LenV on May 31, 2008, 06:30:29 PM
Nuss!
I loved the animal pictures!!!!  You are so great with your expressions.  I'd ask for your test results too.  Usually there are interpretations from whoever reads the testing.

Thanks for your pictures.  They made me laugh.

Billye
Title: Re: I'VE BEEN WAITING AND WORRIED........
Post by: nussy on May 31, 2008, 06:47:44 PM
Hi, Billie!

If I made you laugh (or even smile), I, too am happy.

Life is so hard and this afflication is difficult, but you wonderful people take it in stride.

Sometimes I have to turn off the confuser because I read about so many of you that are so much worse off than I.

I sometimes think of this afflication as a life-enhancing disease.....

The little things now are what are important...... The things I once took for granted.

Each day I covet a smile.  A touch, or an understanding glance.  An "I feel for you " gets the brass ring."

I think of those of you that don't get the minimums and I .......and I......pray for you. You are truly the strong ones.

God Bless, and a big hug to you all........

(http://id.mind.net/~barbados/tiger-hug.JPG)
:) :) :)
Title: Re: I'VE BEEN WAITING AND WORRIED........
Post by: Dolly Dimples on June 01, 2008, 09:01:00 AM
   Well done  Nussie!   Applause all round, just what we all need on the site..
    Seriously, I pray all goes well for you, but with an attitude such as yours , I'm sure it will... Dolly x