I was diagnosed with Sjogrens about 12 years ago. I was put on plaquenil and have been on it ever since. My eyes have been checked regularly by ophthalmologist and retina specialist and everything was fine, until March, when I was diagnosed with toxicity in retina of right eye. I stopped immediately and will get checked again next week to see if the damaged has increased or has it damaged by left eye, too.
Now, my concern is what else has plaquenil damaged?
I'm now going through heart testing, have kidney issues, and other stuff.
Now, I'm not on any medication for Sjogrens since I have reacted badly to 2 others:methatrexate and possibly Avara.
My warning : if you're on Plaquenil, get off it !
So sorry to hear about your eye problem, and I hope your other tests will be OK.
I decided not to ever go on it, and this was lucky because I was later diagnosed with macular degeneration.
However, plenty of members here find it helpful, and no doubt they all weigh up the benefits and risks before they take it.
All the best.