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Sjogrens Topics => Living With Sjogren's => Topic started by: sunflower on May 02, 2024, 12:50:35 PM

Title: Interesting article from Medscape
Post by: sunflower on May 02, 2024, 12:50:35 PM
Hello Sjo-journers,

Updated Sjögren Disease Guideline Takes New Approach, Format

This is a helpful new article from Medscape today.  I hope you can access it (I'm a registered user, no fee).

https://www.medscape.com/viewarticle/updated-sjogren-disease-guideline-takes-new-approach-2024a10008g1?ecd=wnl_edit_tpal_etid6486462&uac=223218FV&impID=6486462

Best to you all,
Sunflower
Title: Re: Interesting article from Medscape
Post by: Linda196 on May 03, 2024, 04:04:34 AM
I think this is an excellent article, and a great new direction for the treatment of Sjogren Disease. I've always been lucky enough to have a rheumatologist who embraced the holistic school of thought, and always referred to it as disease rather than syndrome.

Basically the only differences I see in this new paper from the treatment I've received, is the change in the use of steroids and immunosuppressives, but after 20 years of treatment with them, I can't see them being withdrawn in my case, especially the steroids.

It's also good to see some detail and adjustment in the Lymphoma risk odds, rather than a flat out statement of increased risk across the board, which needlessly concerned people in a lot of cases.

Thank you, Sunflower, for bringing this to our attention. I love your name for us, Sjo-journers!
Title: Re: Interesting article from Medscape
Post by: sunflower on May 03, 2024, 04:19:29 PM
Thanks, Linda.   :)
I was encouraged by the fact that Sjogren Disease is being evaluated and updated - in-depth and from a variety of angles.
I'm probably not the first person who has thought of the name. I glad you like it.
Title: Re: Interesting article from Medscape
Post by: Kathy57 on May 08, 2024, 10:00:31 AM
Sunflower,

Thanks for sharing this.  I found it interesting and informative.  I just wish there were an easy cure!

Kathy