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Sjogrens Topics => Living With Sjogren's => Topic started by: meirish on December 04, 2021, 07:21:41 PM

Title: How have any of you folks been doing in regards to your covid boosters?
Post by: meirish on December 04, 2021, 07:21:41 PM
I am going to be getting my J&J booster on Dec 9th and just wonder if all of you are getting your boosters or just bypassing them for now. I had a hard time finding a pharmacy that was giving the J&J? Still have thoughts about skipping it but then someone said that it would be good to have these boosters as Delta is still around and the boosters seem to help with this variant. It started out being a confusion and has never stopped being a confusion and I, for one, am sick of the whole shooting match. :o  meirish
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Floridalady on December 05, 2021, 04:57:32 PM
Irish,

I had the J&J on March 5th, Fast forward to Labor Day and I felt like I was getting a cold. I was kind of shocked because my husband and I hadn?t been anywhere except grocery store and haircuts. I had a sore throat, achy and very tired. Then I ran a fever of 101 for one day and the next day I was better.
Two weeks later I told my doctor and she said it sounds like Covid. She tested my antibodies and they were high and suggestive of a Covid infection.
To answer your question I feel like my infection is a booster shot. We live in Florida and currently cases are very low.
I hope you come to peace with whatever decision you make.
Anna
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: jazzlover on December 05, 2021, 08:46:35 PM
Research more .... Stew Peters on Rumble exposes the truth about the jabs.

Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Jenny on December 06, 2021, 04:34:04 AM
I had the J&J in March. I decided to get the Maderna booster. No reactions at all.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: araminta on December 06, 2021, 10:03:09 AM
I had the Pfizer booster in one arm and the flu shot in the other.

I felt fluey the next day, and of course both arms were sore, actually the flu arm was much worse than the Pfizer arm!

The day after that I was OK again.

Good luck meirish, I hope your choice is a good one for you.

Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Scottietottie on December 07, 2021, 04:32:34 PM
Hi  :)

I had a Pfizer booster having had two AstraZeneca shots before that. Top of my arm was a bit tender the next day - but that was all. Basically no side effects.

good luck!

Take care - Scottie  :)
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Confused on December 07, 2021, 07:59:26 PM
123
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: meirish on December 10, 2021, 09:57:50 PM
Well, I cancelled my booster shot for now. I have felt lousy for quite a few weeks and even more so the past 3 wks or so. I have not been on my hydroxychloroquin as my new neuro would not renew it and neither would my primary PA. They have their reasons, but I know the real reasons and it makes me upset. So, I have really been miserable with body pain. I have had a really lousy experience with my first neuro that has dragged on and been unbelievable. And then she cut my IVIG product dose in 1/2 and that same day the infusion center called and asked me what is going on with that doctor. The infusion center is very concerned that I could start having increase in some symptoms and increase in my myasthenia issues.

I have had some days that were not so good. Thankfully I am seeing another neurologist that specializes in myasthenia and hope that both these issues can get resolved. This has been extremely upsetting to me and that stress is not good for autoimmune disease as we all know. With the fact that I have felt bad I also have felt like I was high risk for some more intense reactions to the booster. Johnson and Johnson have kicked their booster up a notch and it works very well.

I feel weak in general and don't feel like my body has the strength to cope with added stress. Hopefully,  I will endure these issues. The state of MN has been inundated with covid and the hospitals in the middle of the state and into the larger cities around us have really filled the hospitals to the max. Good time to stick around home. Have a good week. It is snowing here since 2PM today. meirish
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Confused on December 11, 2021, 12:10:29 AM
Irish,

You are in my thoughts and in my prayers.  I have no understanding or answers.  I keep seeing this same thing happening here to so many and for no good reason.  I have a friend whose doctor retired and she can get no help.  May the Christmas spirit fill all those doctors who seem to forget what becoming a doctor is really supposed to mean.

Blessings for all of us
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: eye2dry on December 11, 2021, 07:56:49 AM
I have no shots at all...neither has our kids, grandkids or even my 82 and 90 year old in-laws. None of us has had Covid that we know of. We do not wear masks. We have always gotten together for cook outs, thanksgiving and Christmas.....no one I'll. It's been this way since January 2020.
It works for us.


Shelly
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: meirish on December 11, 2021, 10:07:46 PM
At Thanksgiving I was looking around the table and there were 12 of us. Eight of the family had had Covid. One is a nurse and works with it a lot. One was a college student and had it in college. My one son and his wife and 2 kids went on a weekend vacation with other relatives that had had it months ago and a few who hadn't. When son and family came home they were all ill and quarantined by 7 days.

Of that group. my nurse DIL had covid and then had the vaccine some months later. The college student had it and then had vaccine some months later. I had the vaccine and was never ill but didn't get it until March. One never had covid but got the vaccine so he could go on a cruise this winter and one teenager got the vaccine without having covid.

Sooo, 7 have still not had the vaccine of which of which 6 had covid.... and 5 had vaccine of which 1 had covid. I did all this math for my own curiosity Those who had covid without vaccine feel they have natural immunity. I have not gotten into any arguments with family about this. I have just told them that I would not be around them much til things settled down.

What a crazy time for all of our families. I can't help but think that by now many of us may have had a very mild case and built up antibodies. I didn't go out much before vaccine and always wore a mask and limited my trips and the places I went. Now I am a little more apt to get together with my kids but I still stay away from places and wear a mask.

A doctor was on a show tonight who has a lot of experience is many areas and he said that there have been no deaths world wide that have been reported to the new variant and it is a much milder covid. He is hopeful that this many mean that some herd immunity is starting to build up around the globe because so many people are just getting aches and pains and a cold. Time will tell. Take care all. meirish
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: sixty on December 16, 2021, 11:14:07 PM
I got my phizer booster yesterday and my arm's sore today.  I also felt on the verge of a flare this morning but that only lasted for a few hours.  So all in all it turned out okay.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: jazzlover on December 18, 2021, 09:36:13 AM
So sorry to hear that your doctors are not cooperating, irish. Many have indeed forgotten how to doctor.

My doctor has not had the V and neither has his staff. All are fine.

My husband had it and never knew it. We are not vaccinated and I am supposedly the one with all the health issues. I was tested for the antibodies but still no results. I need to call my Dr's office again on Monday.

eye2dry .. :)
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: finallyadx on December 23, 2021, 06:24:29 AM
Hello, I had Moderna for the first two shots and went back for my booster and got Moderna as well.  Second Moderna felt achy and flu-like the next day.  Booster shot I felt worse than after the second shot the second day but was fine next day.

Wishing you luck.  I took Tylenol later in the afternoon after my booster that same day.  Took Advil the day after my booster shot later in the afternoon.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: meirish on December 23, 2021, 10:35:52 PM
I still haven't had my booster and get so disgusted when there is all the info blaming this vaccination and others for all these side effects. Makes one wonder if any of them are safe. I know that all meds have side effects and some of them can be very serious. If you get on internet and keep searching and get into the hard core info you will find that all off the vaccinations have problematic side effects but so many of them are not talked about. Who the heck do we believe.

I am waiting to see what this omicron variant does because if is isn't as dangerous as the others then it is possible that just having it will help us with our herd immunity and possibly put us into endemic instead of pandemic. The "rumor" is by several doctors that many of the highly contagious viruses are not as dangerous.

Remember the days when mothers took their preschoolers to someone's house in order to expose their kids to chickenpox? They wanted the kids to have them before they went to school so they didn't have to miss so much school after they went to school and caught them.  All the contagious diseases that we dealt with as kids were infectious and some extremely infectious and after we had them we had immunity.

This is called the science of contagious disease that I studied in nurses training. All of a sudden they want to ignore this herd immunity and I don't get it one bit. Again, what is going on with all the inundation we are getting with conflicting information. Not trying to start a discussion but I am sick and tired of us being told so many different things. I think we just have to listen to all the info we can find and do a lot of research and not panic. Panic and fear won't help us as we really are not sure what we should really fear. I have never seen the medical field be so conflicted. My humble "sick of being home and wearing a mask" opinion. I can tolerate having to follow some rules but when the rules are so conflicted and literally being fought over I am stressed and disgusted.

With that off my chest I want you to know that I wish you all a Merry Christmas with your families, loved ones and friends. I discovered this Dec. that there is Christmas music playing almost all day on quite a few radio stations. It has been a few years since I have heard this much Christmas music. These are not even the Christian radio stations. Some of the country stations playing a lot also. I have found that listening to these a couple of times a day for an hour or so just calms me and helps me remember the good times we had over the years.

We must never lose hope and must never let go of our need for getting our life back to normal. It seems like we need to have the special holidays with our families and the encouragement and feeling of being loved and cared for. That is what these holidays are about. Take care and stay safe all of you. meirish
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: jazzlover on December 24, 2021, 08:04:28 AM
I pray everyone avoids the boosters.

Stay safe and Merry Christmas!

(Rumble is your friend)
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Joe S. on December 26, 2021, 08:44:13 PM
I am allergic to one of the items in the Pfizer shot. I take a benadryl before and 2 after. 4 hour dosing between. I am fully vacinated. Waiting for my 4th shot.
I had it in December 2019. Traced to Wuhan China in 2 hops. I killed it in 24hours with 365,000Hz as a kill frequency. Later I found out the actual kill frequency is 365,555Hz.

I also supplement with Lactoferrin and zinc. I upped my vitamins C intake when I read that Wuhan China ordered 500 tons from Australia.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: jazzlover on December 28, 2021, 05:49:59 PM
I have a rife machine. Thanks for the frequency!
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Confused on December 30, 2021, 12:22:11 AM
Jazzlover

What is a rife Machine and where do you get one?  I would love to try Joe's options and I'm just not sure how to do it.

Wish I still had the brain power I once had.

Thanks

Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: jazzlover on December 30, 2021, 10:44:03 AM
I bought one in 2005, following fairly successful treatment for Lyme disease. I wanted to use it to keep the spirochetes at bay.

I found mine through friends. I don't know if the man I bought mine from is still living. He made them at cost and sold them for about $450. It's an EMEM5A.

I saved this name I ran across a few months ago. You could try googling her name .. or look up the EMEM5A machine.

Her name is Michelle Fielding.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: bluegardenia on December 30, 2021, 05:23:05 PM
Joe S. please could u explain better what you are doing with frequencies? thanks
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Confused on December 31, 2021, 12:09:01 PM

Thank you Jazzlover!

Happy New Year
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: jazzlover on December 31, 2021, 01:55:12 PM
bluegardenia

Most rife machines you just set the frequency and then sit in front of the machine.

Start out slowly. Some begin with only 2 minutes.

Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: sunflower on January 01, 2022, 04:08:12 PM
Because of my significant reaction to the two Pfizers, I have a deferral from my doctor so I can avoid a booster.  I am grateful.

I have been mindful of my health since getting the shots in summer and I have been surprised at how my symptoms have ramped up.  That includes cardiac symptoms as well as autoimmune.  I am quite disheartened.

I would encourage everyone to monitor their health carefully and to research judiciously.  These effects don't necessarily appear right away, they can appear months later.  We do well to keep watch, especially since the mRNA process directly impacts our immune system in a way that has never been tried before on humans.  Don't hesitate to report these to your doctors even if they disagree.  Thankfully mine listened,

Sunflower
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: meirish on January 01, 2022, 05:01:35 PM
sunflower, I am almost to the point of declining my booster vaccination. I got the J&J one shot in March and had what I considered to be pretty normal reactions afterwards. I had researched an enormous amount and have been very leary of the RNA from the get go. I felt I would do better with the J&J and after much more research canceled by booster as I was having so many health issues and my new neuro had cut my IVIG in half and I was having breakthrough myasthenia symptoms also.

I have now read a couple articles where a doctor from South America said that he felt that one or two vaccinations would help cut down on the severity of the covid infections but he didn't think that the boosters did as much as they were said to deliver. AT this point I am sort of just biding my time. As time goes on there will be more vaccinations and I have no intention of taking a daily pill at this point as another pill just would kick my reflux in again. Im trying to decrease me medications.

I just live with the belief that I will probably get covid at some point and  I have done what I felt was the right thing to do for myself. So hard a decision to make for all of us. The inflammatory effects that the vaccination seems to cause scare me to death. I have 5 autoimmune disease and don't need anymore issues. Sometimes death is better than the chronic disease that we can develop. No matter what.....life is a crap shoot as they say. I sound rather cynical don't I? Old age does that to a person at times. Take care. meirish
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Confused on January 02, 2022, 03:09:57 PM

Irish, for whatever reason my hubby and the neighbor both took the booster shot on Friday, (madera) and both were sick that night and pretty sick trying to do some snow removal on the driveways, which are very small.  UGH.  Those two are both in good shape and the younger neighbor felt even worse than my hubby!  Things are so weird. 
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Floridalady on January 02, 2022, 08:37:50 PM
Here is an update for me. Vaccine in March. Labor Day weekend came down with Delta. Fast Forward to last week infected with omicron variant. Much sicker. Sore throat, headache, fever extreme muscle pain.
My husband and I should be full of natural immunity. I am glad we got the vaccine because it prevents death and hospitalization. We will not get any more booster shots though due to her natural immunity.
Anna
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: eye2dry on January 03, 2022, 02:26:27 PM
My husband and family have just kept up with normal living here in Ohio and none of us has been ill no doubt we've been exposed by now, it's been 2 years of this.  According to Fauci we should be dead by now.
The Amish are doing great....they don't watch TV and get worked up.

Lots of countries give out a Covid treatment pack if you get sick...consists of HCQ,ivermectin,zinc and azithromycin....some pass them out before you even need it. Really works....it's cheap too. Most of us with auto immune already use HCQ/plaquenil...been using ivermectin for 50 years safely in Africa to treat parasites.

They are talking about 3 shots now, Isreal is on shot #4..... basically your buying a subscription to the shot...if you don't keep up with boosters...your now considered "unvaxxed". As you nurses know, as each new Covid 19 variant comes along, it is easier to catch but your sickness level lessens.

This isn't political...this is your health....research.....

Stay safe.
Shelly
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: sunflower on January 06, 2022, 08:47:16 AM
I haven't gotten a booster because I reacted badly to Pfizer.  I have myocarditis and my AFib is back with a vengeance after being fine since March (ablation).  My cardiologist is giving me a deferral on the booster.

Also, my autoimmune symptoms have ramped up considerably since then after being quiet for nearly 5 years.  I'm grateful to my doctor.

Sunflower
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: MarieB on January 09, 2022, 05:56:35 PM
I don't know what to do.  My cardiologist didn't say not to get the booster, but he did say that he would not take it.  When I asked why, he said that the virus by now isn't remotely like the original so the booster wouldn't have an effect. 
I know they are saying on TV that the boosters will indeed help.  So I'm so confused it's causing me stress, along with life in general.
I had two Pfizer doses in March 2021 so will take Pfizer again if I decide to go forward with it. 
Sending my best to all, Marie
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: MarieB on January 24, 2022, 09:33:47 AM
Update:
I did get the booster earlier this month.  Many people around me were very getting sick (Omicron I would guess). 
It was a hard decision, but that's what I did. 
Marie
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Scottietottie on January 26, 2022, 12:38:23 PM
HI  :)

I'm glad I got boosted because I am more aware of people suffering from Omicron than I've been aware of any of the earlier variants.

I had a shingles shot today. In the UK you get offered one once you hit 70.

Take care - Scottie  :)
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Confused on January 26, 2022, 06:48:26 PM
MarieB,

I don't think there is any right or wrong on whether you get a shot or what path you take.  You take the one you are most comfortable with.  No one has all the answers and everyone reacts differently.  You just get information and make your decision and I hope you ha e a very easy time with the booster!
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: SjoGirl on January 28, 2022, 01:01:08 PM
Had Moderna for all three. Had a delayed flare about two weeks after the second shot which my rheumatologist told me was occurring in some people with AIs. The booster knocked me for a loop. I did not feel ill except for the first couple of days but it took about two weeks for the fatigue, which was oppressive, to subside.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: susanep on February 06, 2022, 08:22:11 PM
I guess we all made it through another Christmas. Every where we have to go (store for food, pharmacy, doctor visits) we wear masks and gloves. Those are the only places we risk, but we haven't had any vaccines. The info out there is enough to confuse all of us. Now war talk. I don't watch much news.

susanep
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Jeigh44 on February 06, 2022, 09:27:17 PM
I know this is an unpopular opinion but I never got the vaccine.  I had Omicron and at this point do not want to get it.   I know way too many people at this point who have gotten it and really regret it.   I am going to take my chances on the natural immunity and maybe if a vaccine comes out that works long term then I will consider it.  I am not anti-vax. 
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: jazzlover on February 07, 2022, 08:21:04 PM
No vaccines for my husband or myself. We now have antibodies and were never "sick."

Hubby has some lingering fatigue but never had other symptoms.

We don't wear masks either unless forced.

(We did at first)

PS .. We care for others, but do not believe the masks are effective for viruses.

We are both 71.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: eye2dry on February 08, 2022, 06:41:32 AM
After 2 years of Covid being around my whole family and I are without being vaccinated. No mask either...Christmas and Thanksgiving full maskless house of fun.

If we have had Covid...we don't know about it. My husband is a recent heart attack survivor (2020) has 4 stents has high BP... I have sjogrens and RA. I have 90 year old father in law and he's diabetic.

I hope I live long enough to see what is in these shots...the FDA will release the info then.

Stay healthy everyone....spring is coming

Shelly
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Joe S. on February 23, 2022, 12:49:43 AM
I have had 3 shots and I am waiting for a 4th. After having it in Dec of 2019. I do not want it again.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Kathy57 on March 05, 2022, 10:32:32 AM
I have had the vaccine and have been boostered.  It was easy and it was such a relief.  I still wear a mask because I don?t even want a light case of it!😱😱😱😱

I know of so many people who have died because they refused to get the vaccine or take it seriously.  Very sad because they did not die easily.  For some it took weeks and months😱.  I think much of this would have been prevented if they had just took a free vaccine!

There is terrible misinformation regarding vaccines but the vast majority is coming from antivaxers. 

Sadly, even on this knowledgeable site I have read obviously incorrect information regarding the vaccines.  This shouldn?t be so political.  Save yourself, your family, friends, neighbors.  I encourage everyone to please get vaccinated.  Too many people have suffered and died. 

Please don?t answer this or bombard me with any false information regarding how dangerous vaccines are.  I know I?ll never reach some of you and that makes me sad. 

If you don?t agree with me - just move on and ignore me, please. 

Stay safe and stay well.  Please get vaccinated.

Kathy
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: rnathans on March 05, 2022, 02:07:31 PM
Completely agree Kathy57. Also fully vaccinated and boosted. Flu symptoms for a day each time but well worth it .
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: meirish on March 05, 2022, 06:43:51 PM
Had the J&J but did not get the booster as I was ill and was concerned about what was going on with me. Ended up being very ill. I have done a ton of research and am comfortable with my decision at this point. I have 5 autoimmune diseases and these vaccinations seems to encourage our bodies to make autoimmune issues. I figure my body makes enough on its own.

I am watching all the new vaccinations that are coming out and know that there will be some that have less side effects in the future and probably sooner than later. I should get my antibodies checked but always forget to ask when I am at the doctor. Anybody know if insurance pays for this and how much it costs???? meirish
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: susanep on March 05, 2022, 07:26:30 PM
Irish I wish I knew if insurance helps pay to find out about your antibodies, but I don't know. I hope you do find out something.
susanep
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Floridalady on March 07, 2022, 06:48:45 PM
Irish,

I had my antibodies checked and insurance paid. 

Anna
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: jazzlover on March 07, 2022, 08:17:47 PM
Quote from: Floridalady on March 07, 2022, 06:48:45 PM
Irish,

I had my antibodies checked and insurance paid. 

Anna
Absolutely they pay for it. It's a simple blood test. Why get boosters if you have antibodies?
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: sunflower on March 07, 2022, 08:41:29 PM
I am not getting any boosters.  Too much inflammation from two Pfizers.  My Sjogren's is worse after being stable for years, my old back problems have ramped up worse than ever and they were stable.  I have heart damage and my cardiologist says no more shots.

Even if I didn't have these issues I probably wouldn't because I don't see the point when cases are so low and the virus is mutating down.  I've also had Omicron and I'm not sorry.  I figure natural immunity is always better.

Third, we don't know yet what the long-term effects are of these shots.  Shortcuts were taken, new technology...it leaves me very uncomfortable.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: jazzlover on March 09, 2022, 03:17:32 PM
Quote from: sunflower on March 07, 2022, 08:41:29 PM


Third, we don't know yet what the long-term effects are of these shots.  Shortcuts were taken, new technology...it leaves me very uncomfortable.

Absolutely.

I hope you start to feel better soon and can get back on track.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: eye2dry on March 13, 2022, 07:25:49 PM


Bourla CEO of  Pfizer... just announced 4th booster now needed

Eye2dry
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Judie P on April 08, 2022, 12:46:30 PM
Just got my second booster (Pfizer) and I am doing fine.  However, the nurse was not very gentle on my arm, so the injection site is a bit painful to the touch and warm.  No lump or redness.  I needed to do it because I am having C2 through C7 decompressed and fused on April 25.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: meirish on April 08, 2022, 06:57:18 PM
You are slowly ticking off the chores to do prior to surgery. I know that you are very uneasy about this surgery and that is ok. Know that it is probably more wise to be fearful prior to surgery than to take the attitude that it is no big deal and nothing to worry about. I always worry prior to surgery and am so relieved when I wake up and it is over.

Try not to get overly concerned cause the stress is hard on our autoimmune issues. I have a lady living down the hall from me in independent living. She has had most of her neck immobilized and also a lot of her back. I can't remember the number of titanium plates she has in her spine but it an enormous amount. She uses a cane when she walks and she also does some of the cares for her husband who is quite debilitated and in a wheel chair. The nursing assistants do the harder cares as she isn't able to do these.

She is 84 and a former nurse and is quite amazing in her attitude and ability to keep on keeping on. The important thing to keep in mind is that we are always able to do better than we think we will do. Our attitude and perseverance is so important. I know you will come out on the other side of this surgery much better than you believe. Hang in there and keep us informed when you are up to sitting up and working on the computer again.  Prayers and thoughts are with you. meirish
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: twilite on April 09, 2022, 07:02:30 AM
Great information from the children's foundation regarding the covid vaccines and boosters


https://youtu.be/cIdsOfXnyy0
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: meirish on April 09, 2022, 06:26:06 PM
One of the doctors who has been on TV a lot discussing pandemic and vaccines was on today again. I can never remember his name. He has been researching all the info out about the 4th booster and he said that it does not sound very promising. Has not worked to well in some studies and he also said that we cannot be getting a booster every 4-5 months like this as it will raise havoc with our immune system. Just too much. I guess I feel the same way. I am waiting for the vaccination that will be less dangerous to our body and work better than all the vaccines that are out right now.

They all seem to loose effectiveness after around 6 months including the 4th booster that is out or coming out. meirish
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Carolina on April 19, 2022, 09:36:34 AM
We are getting the second booster on April 27, in our Senior Living Community.

We are tested weekly for Covid-19, by the way.

I get a flu shot every year, which is formulated to cover the expected strains of flu for each year.

I think the Covid vaccination will probably be annual, and in the same way: formulated for whatever is seen to be coming.

I imagine most of you had all of the childhood vaccinations.  Most school systems require them of entering students.

Polio was eradicated in this country due to the polio vaccine.    Children do not die from complications of measles and chickenpox.  I am protected from tetanus.  I am currently taking an antibiotic for a UTI. 

\Because I am asymptomatic with UTIs I have twice become septic, requiring 3-4 day hospitalization for IV antibiotics.  I would have died within days if I had not been treated.   Now I test my urine weekly with the same test strips they use in the doctors' offices....to be sure I catch a UTI before the bacteria gets to my blood stream.

Life is risky, but fear of medical treatments and medications is riskier, IMHO.

Regards, Elaine
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: jazzlover on April 22, 2022, 07:23:38 AM
 :-X :-X :-X :-X
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Judie P on April 23, 2022, 07:39:44 PM
I thank the universe that I got my second booster two weeks ago.  I was ready to have massive major surgery on my neck this coming Monday and it was postponed due to my COVID test showing positive.  I don't feel any symptoms.  I feel fine.  The neurosurgeon says it could be a false positive, but he does not want to take any chances because of Sjogren's and the six month recovery period with my surgery.

I have been off of anti-inflammatories (Naproxen) for 10 days now and after I find out when my new surgery date is, I might go back on it for a little while.  After the surgery, I will not be able to take if for a year.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Nomad on May 26, 2022, 02:41:05 AM
I have known folks who have gotten sick after the booster.
Both with pre existing conditions.
I suppose reaction to the vaccines is unlikely.
BUT I also suppose folks with autoimmune illness...slightly higher.

1. Friend with lupus...had a flare up of heart issues after second Pfizer vax. Had o get on medication. After booster, ended up in the hospital. Was diagnosed with heart failure and needed surgery. Doing better now, but frail. She is in her early 50s.
2. Friend with ITP (low platelets). After second vax had bad drop in platelets. Took Rituxan IV treatment. Did ok. After booster, had another bad drop in platelets. Hospitalized. Took Rituxan iv tx. It didn't work. Tried some other thing/meds.  Nothing worked. She bled to death. She was in her early 40s.

Absolutely recognize this is NOT the case for everyone. But strongly suspect adverse effects are slow to be discussed. Personally believe we should be fully aware of potential problems as well as benefits.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Scottietottie on May 26, 2022, 01:24:21 PM
I have a sister-in-law hospitalised at present with Covid. It is damaging her liver.

Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: eye2dry on May 27, 2022, 08:12:41 AM
Scottietottie,  Wondering if your sister in law was vaxxed?

Eye2dry
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Nomad on May 27, 2022, 05:19:50 PM
Did your sister in law get Remdemisver as part of her tx? No doubt Covid might damage liver, but so does this medication. Something not comfortably discussed.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Scottietottie on May 31, 2022, 04:01:56 PM
Hi

I think the small hospital  she is in in the far north of Scotland is very unlikely to have Remdemisver in stock.

She's home now but now my brother in law has it. He keeps throwing up.

Fun disease.
Take care - scottie  :)
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: meirish on June 10, 2022, 08:40:24 PM
Just have to add that there is the 6th variant coming through Minnesota. This one seems to be the Delta and Omnicrom (sp) combination as near as I can figure out. Well my son and wife both have it. DIL is nurse and has been working with covid patients over these years. We spend some holiday together and they left for home Monday morning and I left on Monday later in the morning. Four other members of the family left Monday afternoon.

Son became ill slowly with a sore throat and cold and ended up in ER with bad cough on Sat. No pneumonia but he is high risk as he has bad Hashimotos, Chronic fatigue syndrome and Fibromyalgia. he is lucky that is all he has as Mayos thought he had Leukemia or Lymphoma at first due to his crazy blood work which straighten out. They put him on the 5 day antiviral. He has had both his Pfizer vaccinations. DIL felt ill the next Wed and had neg test..got up Thursday and did a test prior to going in to work as nurse. She was positive. By Thursday she was having some problems with her breathing. She had problems with her breathing and flu symptoms 1 1/2 years ago when she had bad covid the first time. She later had the Pfizer vaccines and one booster.. Son had to take her to ER and she is on the antiviral med for 5 days also.

I have not been sick....one J& J vaccination 15 months ago. The other 4 relative from one family all are unvaccinated and had covid this past September. They have not gotten covid yet either. Does any of this make any sense??? I do not think so. The incubation period is supposed to be quicker and this variant is to spread faster than any of them. People with vaccinations got the covid. One with different vaccination didn't get covid and 4 people unvaccinated with past history of covid have not gotten the covid this time.

This makes me think this whole covid 19 is an immunologists nightmare plus what good are the vaccines at some time with some people. I am getting sick of the whole shooting match as are the rest of the country. I am on a high monthly dose of IVIG since 2006 and sometimes I wonder if that is a protection....but then I haven't found much research to cause me to have a positive opinion about this. Anyone else got a covid story that strikes you as hard to understand. meirish
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: eye2dry on June 11, 2022, 07:13:35 PM
In my immediate family....14 of us, we never got any vaccines and none of us has had Covid either. Few of our friends had gotten vaccines....different brands....different number of boosters and some of these have gotten ill. Besides not working to keep you Covid free....they have potential SE.
Now it's Monkeypox time
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: susanep on July 23, 2022, 07:02:36 PM
Me and my husband have so far been ok. We always wear our masks and plastic gloves. God bless all of you, and stay safe and healthy.
We have been busy just keeping things going, and taking care of each other. My husband had to have some wound treatments on one his legs. We both had good A1C's, but his legs are very fragile. I have continued to lose weight.
It has been very hot here as many others have dealt with. I use my sunscreen a lot these days. I try to do exercises to tone up some.
I get to see my son more often with a calming of the covid, but it's starting up again.
susanep
P.s. we haven't taken any vaccines or boosters.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: meirish on July 29, 2022, 09:53:35 PM
I had the covid on June 14 and spent a couple of weeks in quarantine at my senior living. Dr. put me on the Pazlovid and that seemed to keep me from getting terrible sick. Ended up with bad sinus and lung infection and was put on antibiotic.

My kidney function isn't good anyway and my creatinine went up so I was taken off of my metformin and also have no had my IVIG since May. I had my creatinine done and it is down but not low enough to start any diabetes meds or to restart me IVIG. I have been getting along better than I expected without the IVIG. Time will tell.

Hope everyone is doing ok. WE don't seem to get rid of this darn covid. Only 8 people have had covid since this latest batch is going around out of 90 people in our facility. Have to wear a mask except when we eat in the dining room. The air exchange in on so I think that helps.

Our county is pretty full oof the covid so I think most of us don't get out a whole lot. Which is also good as it has been so darned hot in Minnesota. Take care all of you. meirish
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: quiger on August 06, 2022, 02:46:50 PM
We have done well with the vaccines including the boosters. This area still has high numbers so we have always worn our masks. I stopped wearing the gloves but still go through a lot of hand sanitizer. We do everything we can to protect ourselves and others.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: meirish on August 07, 2022, 07:42:22 PM
Quiger, So glad to hear from you. I had lost track of you and wondered how you were. Hope to PM you soon. meirish
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: jazzlover on August 15, 2022, 08:40:45 AM
No jabs, no boosters. We are both 71 years old and we are fine.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: eye2dry on August 15, 2022, 05:25:11 PM
I am 64, hubby 65....been very healthy no covid...no shots. All family members ok , no shots...never any Covid either. (My father in law is 90... no shots, no covid)
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: deeindiana on August 30, 2022, 11:39:22 AM
It's been pretty unpredictable for me.
First vaccine: I wasn't in a flare and it only made me mildly sick.
First booster: I wasn't in a flare and got VERY ill for over a week.
Second booster: I was in a flare and, not only did I not get at all sick, but my flare disappeared.
Unpredictable for me!
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Nomad on September 03, 2022, 05:49:55 PM
No boosters here.

My husband got the J and J and didn't continue. I held off entirely due to my ITP (low platelets).  Reduced platelets is a documented potential side effect and I already have that. Probably an unlikely one, but a real one.

I'm on a social media page for ITP. There has been at least a fair amount (if not more) of new activity and many of those believe they got  ITP from the vaccine, and particularly the booster. Keep in mind that ITP is classified as a rare disorder.

I WISH I was exaggerating, but someone I know VERY LIKELY got sicker with her ITP after the booster in particular. What I'm saying is as far as I know, nothing else "different" was going on in her life. Each vax caused problems, but the booster seemed to be very detrimental. No meds would work for her ITP after the booster and getting very sick and she got extraordinarily ill and passed away.

Here is something EXTRA interesting.
My husband and I got Covid around Fourth of July this year fir the first time.

He is 70 ish. I'm 60 ish. He was very sickly fir two days. Slept. The third day just tired. He was somewhat sickly for a week. No meds. I think his Covid test was negative in about 10 days.

I was more sick with a high fever. I was given Paxlovid that stopped the fever almost in its tracks. Had a sinus "thing" with a low grade temp and was given a z pac.

I was sickly fir about 10-12days. And didn't have a negative Covid test for two weeks total.

Husband is not interested in a booster.

Anyway, here is the most interesting thing: my platelet count went up to low normal. Yay! This is good for me. Omg. Happy about this!!!!! I hope it lasts for awhile. For me, the increased platelet count is a welcome side effect.

A nice handful of friends are unsure if they will take a booster or the next booster. There seems to be several. Possibly...just very unsure. They haven't ruled it out, but it's not a "given" either.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Linda196 on September 04, 2022, 04:24:01 AM
Hubby and I have each had vaccine plus 3 boosters, mixed brands. Worst side effect was a sore arm, which I had for 2 shots, he didn't have at all. Neither have ever tested positive nor had any symptoms. I still follow PPE, he no longer does.

In my immediate circle, I have 6 friends who all work in health care and have been fully vaxxed for the requirements at the time, who have tested positive. 2 of whom had mild to moderate symptoms, the others were symptom free.

Of friends who don't work in health care, several have tested positive, some vaxxed, some not. Overall it appeared that the adults had moderate symptoms for up to a week, while their children, if they were down at all, were down for a day. Only 4 were admitted to hospital.

One neighboor, fully vaxxed, had moderate symptoms, but 6 months later was diagnosed with "long Covid" and is experiencing many of the same symptoms as I have with chronic autoimmune, primarily fatigue, neuropathy and joint/muscle pain. Her hubby, not vaxxed, spent 3 weeks in ICU, ventilated for 3 days.

Early days, prior to vaccine, I lost 2 old friends to very severe Covid, and one of those families also lost 3 other members.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: meirish on September 19, 2022, 08:54:07 PM
Thanks for the interesting update on covid and the vaccines. Hard to keep up with what to do as it changes all the time as do the variants.

Really sorry to hear of you losing friends and so many family members. Take care and hope you are staying well. meirish
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Judie P on October 12, 2022, 01:06:24 PM
I just had my third booster this past Monday.  It was the Pfizer one for Omicron.  No side effects except the place where I had the shot.  Not like I haven't had this affect before.  It is lumpy, red and itchy.  I know it will go away in a few days.  However, where I had the flu shot 10 days ago, it bruised and is going away.

Needed to get it all done before my cervical surgery on December 15.
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: susanep on December 24, 2022, 05:18:51 PM
I lost my last try so I will try again.

Me and my husband last Saturday were beginning to cough with sore throats. I was feeling. Miserable so he took me to the clinic. They tested me for flu, strep, and covid. It was covid. He went in and has it too.

She put me on Lagevrio, doxycycline, and a steriod. He on Lagevrio which was hard to find, amoxcillin, and a steriod shot.

Our fevers have stopped, and we are feeling better.

All this after the past few years of no covid vaccines nor boosters,, but always wearing masks and gloves.

All I can figure is not long ago a couple of unannounced people came to our back door so we didn't have those things on and one hugged me. Who knows!

It's all a mystery.

susanep
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: meirish on December 25, 2022, 10:50:45 PM
Sorry to hear that you got Covid but have to tell you that this variant is extremely infectious. I live in independent living in a facility that has many assistive living, memory care and a care unit for people who need care during post hospitalization, surgery, hospice, etc.

WE have had a lot of covid in the past 3 months but we manage to keep it down to low numbers at one time. WE have about 100 beds here so when we get a case and it starts in we have to wear masks at all times plus we can't eat with 4 at a table-only 2 to a table and they cut down on some of the activities. These measures seem to work as it manages to keep the numbers of sick people quite low. They also do nasal swabs every other day a lot of the time til the spread is contained.

The problem with having such a high numbers of people living here is that if they all got sick at once there would be no way that our small staff could care for them. Everyone with Covid is put in 10 days of isolation or quarantine and that means if staff needs to care for the them they need to wear gowns, masks, goggles, etc. plus these people need their meals usually at least 2 times a day and meds passed. This all makes an enormous amount of work for staff. Ten people at a time is tolerable for staff.

All of these people had the bad sore throats as pretty much their first symptom. Some were hardly sick at all and some felt pretty lousy for 4-5 days and then improved. Our state has a lot of rules that facilities and nursing homes, etc have to follow so that is good as it gives people the information needed to deal with a "chronic" infection like this.

Sound like your doc has given you folks medication that helps settle things down some. Fatigue is common so with this weather just resting and staying warm and eating right plus fluids is important. Hope you can get over this in a hurry.

Hope you have had a good Christmas in spite of all the things going on in your lives.  AS we get older it seems that we still have a lot of stuff that continues to interrupt of lives and keep us on our toes. Stay warm and safe and I think we all need to pay for patience cause it seems like this could be a long winter. God Bless. meirish
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: susanep on December 26, 2022, 09:03:10 AM
I hope you and your family had a blessed Christmas. It will be a long winter, but these days it gets long all through the year.
I don't plan to take any vaccines.
I just want to be helpful where I can.
Praying for everyone to have a safe, healthy, and joyful 2023
susanep
Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: Nomad on January 06, 2023, 12:22:11 PM
I'm not anti vax.

To my surprise, my GP doctor, sent out a very slightly different recommendation to patients on who should get the boosters. It included some exceptions like people who had a negative reaction to one of these shots previously.

I've felt from the beginning that it was not a one size fits all type of thing due to a variety of factors.

I've modified my post...there is too much on my mind.

I have two friends with autoimmune illnesses who did poorly after the boosters. One died. One got a bad case of myocarditis.

I have lost several friends and acquaintances the last two years and none from Covid. It's just weird and makes you wonder what might be going on, IF anything.

I also have three , formally healthy friends , with cancer. All fully "inoculated".

 ****A friend I met on this site with SJOGRENS   died a few weeks ago. She lived near me and we got to meet in person.  I have no idea if there is any correlation to the vax. Probably not. But, it's still very troubling and sad.  I can tell you she was fully vaxed. She developed a very very rare skin disorder that is thought to be autoimmune in nature. She was a super nice woman.

 I DO hope legit research is being conducted to answer real/legit  questions and concerns . Are our health agencies gathering data to make the vax safer? Is info being gathered and work being done that might be helpful for all of us, but maybe in particular those with pre existing conditions.


Title: Re: How have any of you folks been doing in regards to your covid boosters?
Post by: meirish on January 16, 2023, 02:04:09 PM
I have to add that I did a lot of research prior to my getting my one tax of J & J and I found out that the vaccines could kick up inflammatory reactions. Not in all people but with my history of having 5 autoimmune disease I was just super hesitant about these vaccines. As time has gon on I have read more info about increase in inflammation in people. There was a post on here some time ago by someone whose doctor was telling his autoimmune patients not to get vaccinated because of this issue. The thing is it takes so darned long for all these side effects and issues to show up and to bee brought to light so that a study can be done. It is not like everything weird happens in the first 2 -3 months. Takes years sometime and this is true of many meds also. Take care. meirish