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Sjogrens Topics => Living With Sjogren's => Topic started by: Nomad on December 29, 2020, 12:39:49 AM

Title: The COVID vaccine
Post by: Nomad on December 29, 2020, 12:39:49 AM
I know this is a little controversial. If it?s ok, I would like to know who has taken it, who plans on taking it, who will wait and who doesn?t plan on taking it and a little about their experiences and/or thoughts.

PLEASE, I beg if you...no name calling, sarcasm, harsh words, rudeness etc. There is just too much of that out there. We are all individuals entities to our own beliefs. And with our own personal circumstances. And goodness, we?ve all been through a lot.

In my case, I have several auto immune illnesses. I did have one peculiar and negative experience in the past from a vaccine. Mostly for these reasons, at this time,  I?m going to pass. I?m going to wait to see what side effects might emerge in the coming months. I?m leaning against it...but in due time, I might change my mind. My husband, for himself is similar. He wishes to wait a few months to see about side effects. The only slight variation is that he is leaning toward getting it more than I am.
Neither of us are at high risk...in terms of employment/high exposure...so that plays into our decisions.

Anyone take it or plan to take it soon? Again, please please no use of harsh words , no ugliness. Be kind , basically neutral and definitely respectful. Thank you.
Title: Re: The COVID vaccine
Post by: araminta on December 29, 2020, 04:47:23 AM
I'm not 100% sure about it (is anybody?), but probably lean towards having it.   My husband doesn't want to have it until he's waited to see if any side effects occur.

Title: Re: The COVID vaccine
Post by: rnathans on December 30, 2020, 09:24:46 PM
Happy to answer but search this site as there was another thread about this not too long ago.
I plan to get it as soon as it is available to me. I do not want to get COVID, I do want to be able to see my kids, not live like a hermit. I am not afraid of the vaccine. I am afraid of the disease.

My husband was able to get it on Monday because he works in heath care. I am very jealous. BTW, he had a sore arm, nothing more.

I never thought I would be so happy to be turning 65 in a few weeks. I know in my state it will still be awhile before it is my turn, but that will help.
Title: Re: The COVID vaccine
Post by: Jenny on December 31, 2020, 04:38:28 AM
I plan on getting it. I just turned 65 and live in Florida, so I am eligible now. Unfortunately my county has run out of vaccines so I don?t know when that will be.
Title: Re: The COVID vaccine
Post by: katie1111 on December 31, 2020, 04:58:05 AM
I also live in Florida and was able to get an appointment to get the vaccine a week from tomorrow. 30,000 people signed up in one day in Orange County using up all available time slots.  I was lucky.  I will let you know how it goes.  My cousin has the covid and has been very sick, though not hospitalized.  I have a friend who also has it and is hospitalized with  pneumonia.  I get the flu vaccine every year and really don't see the difference in getting this vaccine.

Katie1111
Title: Re: The COVID vaccine
Post by: meirish on December 31, 2020, 10:36:06 PM
I am waffling concerning the vaccine.....more about when and which one than if I will get it. I have 5 autoimmune diseases and had severely low t-cells that were almost to the point of life threatening. However, I managed to not get the bad pneumonia that the aids patients get....doc said the T-cells that I did have were working like little beavers. The 14+ years of IVIG has improved my immune system status but it still isn't up to par.

I am also allergic to about 5 antibiotics and had a bad allergic reaction to one IVIG product with hives over about 50% of my body including my lips but didn't go down into my airway. Thus I am running scared. I have taken the flu shots the past 20+ years and done ok. However, I am not at all trusting of the Pfizer as that vaccine that has come out with RNA ingredients and works in an unusual way.

The Moderna is made in the same way as Pfizer.  I have recently listened to a doctor speak of the University of Oxford vaccine called Astra-senaca that is made in the old fashioned way using DNA like the current flu shots we have gotten for years. I am more comfortable about that one as I feel that I probably would have less chance of  allergic reaction.

The doctor(don't remember his name) said that he feels this Astra-seneca is a game changer as it is running about 3-4$ a dose and the company was putting out 100 million doses in the next few weeks and plans to manufacture 100 million doses a month thereafter. The doc says this is the type of vaccine that will be more able to be used to vaccinate large amounts of people in the foreign countries. and makes it just cost and time effective.

Also this is the company that made penicillin and also one of the older better cancer drugs, plus wuite a few antibiotics plus the new cancer drug for Non small cell lung cancer that is really making a difference in this cancer statistic.

Astra-seneca runs about 70+% effective compared to the 2 earlier vaccines that just came out and are being used now. They are around 94-95% effective. The FDA requires the flu vaccines to be over 50% effective and the current vaccines we use for standard flu run between 55 and 70% effective which is adequate and generality if someone does get the flu they will get a mild case. Also, the Astra-seneca doesn't need the super cold for storage and can be stored in fridge like all the flu vaccines over the years.

Now, with all that being said and sounding good to me....there is nothing written in stone about the Covid or the vaccines and everything we think we know now may be changed in 3 months. Makes for another challenge, but seems that is the name of the game lately. Take care all and Happy New Year. meirish
Title: Re: The COVID vaccine
Post by: katie1111 on January 08, 2021, 05:47:02 PM
I had my first moderna covid vaccine about 11 hours ago and I have had absolutely no reaction.  The shot was painless, my arm is fine, no pain and no side effects.  I am scheduled for my 2nd shot on February 5th.  I feel quite happy that I got it.  It is the first time I have been able to do something to attack this virus and it feels good to take the offense.  Right now in Florida the vaccine is available to health care workers, first responders and those over 65.   Age has its benefits.   Years ago my primary encouraged me to get the flu vaccine.  He said if I got very sick with the flu, I might have trouble handling the strong antibiotics I might need, so he felt prevention was important.  I think the same is true now.  I am feeling some security with 1st dose and am sure i will feel even safer once I have had the 2nd.  I know 2 people (neither with autoimmune issues) who have recently been very sick with the covid.  Both are slowly recovering, but it has been a wake up call.  I will post after the 2nd shot and sooner if anything happens.

Katie1111
Title: Re: The COVID vaccine
Post by: Deb 27 on January 09, 2021, 01:24:20 PM
I got my first Covid vaccine yesterday and I feel OK. Of course, there was soreness in the arm. I am a little achy in my hands and feet today. Those are my weak spots but that's it. It was worth it to me. I want to be able to socialize again, go out for a nice meal and not live in fear.
Title: Re: The COVID vaccine
Post by: meirish on January 09, 2021, 02:07:52 PM
Please be aware that the vaccine takes some time to kick in. It doesn't give protection for a few weeks as I understand. Check into this so you are able to know for sure. They say to continue the same protection, masks, social distancing, etc. after the vaccine. I don't know what the information says about protection immediate, etc  after the second vaccination. meirish
Title: Re: The COVID vaccine
Post by: Calli66 on January 15, 2021, 06:43:07 PM
I'm going to call my rheumatologist on Monday and ask him about what he recommends. I have an appointment to get a vaccine on 1/27 at a local clinic, but first I want to know if there's a chance my immune system will do a weird reaction. I want to hear about some of his patients who have similar conditions to I have -- that they're doing OK. I have Sjogren's but also low platelets and white cells.

Calli
Title: Re: The COVID vaccine
Post by: katie1111 on January 16, 2021, 05:11:25 AM
my doctor told me not to count on the vaccine working until 2 weeks after the 2nd shot as that is what has actually been tested.  I still have had no reaction and assume that since I am in the 2nd week following the injection I won't.

Katie1111
Title: Re: The COVID vaccine
Post by: Nomad on January 16, 2021, 08:01:52 PM
Thank you everyone ...I?m very glad to read about so many positive experiences. It undoubtedly will feel like a huge relief once you get the second one.

I was feeling a little more relaxed about getting it even with my multiple autoimmune issues, until the recent ? situation? occurred in Miami in which a healthy physician died about two weeks after  taking it. Profoundly sad. His wife posted on FB a concise and yet detailed explanation of what happened. He developed ITP (low platelets) only three days after taking the vaccine. In fact his count was zero.  This is dangerous (obviously).  It?s also an autoimmune illness. One that I happen to have.  He was admitted and doctors all over the country were consulted for  help. Yet, his count did not go up. He was scheduled for a splenectomy. But never made it as he had a brain hemorrhage  and died. It is shockingly catastrophic. A dr Spivak from John Hopkins has already stated  that he thinks it?s a ?medical certainty?  his death was related to the vaccine...yet feels this reaction would be so very rare, the vaccine is still worth it. As a side note...the doctor?s widow asked that the death of her husband as she described be publicized.

My thought is....what about us folks who already have low platelets/ITP? I?m wondering if perhaps we should be in the same category as folks with bad allergies. I can tell you out of all my autoimmune illnesses...ITP has been the most quirky/unpredictable.

So even though I was feeling more relaxed about taking it...this has set me back. I think I?ll need to wait until there is more info. Maybe the one injection one will be a little safer fir me. I just don?t know.

Thank goodness most (by far!!!! ) have been getting it successfully without incident. And I pray life will get a bit more normal relatively soon. Some are saying by the end of April. Fingers crossed. 
Title: Re: The COVID vaccine
Post by: jazzlover on January 17, 2021, 09:55:15 PM
I read an article today about someone who HAD COVID and then got the vaccine.

They got really sick .. so I'm just here to warn everyone.

A doctor told her she should have never gotten the vaccine.
Title: Re: The COVID vaccine
Post by: jazzlover on January 18, 2021, 06:52:26 PM
Nomad .. sounds extremely dangerous for you. Why not try a different vaccine from the one the Dr received.
Title: Re: The COVID vaccine
Post by: meirish on January 18, 2021, 09:42:58 PM
There have been others who have had similar issues as the doctor from Miami but but have not died. A recent doctor said that the vaccine (at least the 2 that have come out) are new technology and the research is showing that some of the side effects are the development of autoimmune diseases. If you do research you will find that blood clots are one of the most prevalent side effects that have caused death in people. They have found that people develop clots in the small vessels in the lungs and the heart.

I am not trying to be a scare monger, but we must all be educated as to what is going on with these vaccines. The more they have given the more issues seem to crop up---which is understandable, but the reporting of things isn't as good as one would hope.  I also heard a doctor say that people with many health issues and autoimmune issues should be more careful about rushing into the vaccine. This is when I made my mind up for sure that I would not take it but wait awhile. I have 5 autoimmune disease and I can come up with these on my own and don't need a medication to add another autoimmune disease to my list.

There are several more vaccines coming out in the near future. Johnson and Johnson is coming out with one that only needs one injection. I don't know if that is the new technology or made the way the old flu shots are made. The Astra-Seneca vaccine thru Oxford University in England is coming out with a vaccine that is also made the way the old flu vaccines are. This is a reputable outfit that has made many antibiotics and some cancer drugs that are used very often. I figure that I have tolerated the old yearly flu shots so I think I will wait for these old technology ones to come out.

I hate being cooped up so much but guess I will just have to live with it. I find that if I get out a little each day it helps to cut down on the "cooped up" feeling. I keep missing my library down the street being open. That was always a good way to get out and visit a little with people.

This is such a hard decision for everyone to make and especially those of us with autoimmune disease. It is so easy for doctors to tell us to get a vaccine cause they don't live with our disease and the thoughts that plague us. Good luck to all of you struggling with this decision. I always have to tell myself that I could be in a bad car accident or step off the curb and be hit by a bus..But....you all know what I mean. Also, I don't know how many other vaccines are in the pipe lines by other companies. Seems like there were quite a few at first but may be that some of them did not make it through testing. take care., meirish
Title: Re: The COVID vaccine
Post by: Nomad on January 20, 2021, 04:03:18 AM
Jazz lover...Oh yes. One thought I have is to wait. A friend of mine who only has ITP, but a very bad case with often very low numbers, and was a nurse but simply couldn?t work anymore ...said that she was hoping new information and new vaccines down  the road will be safer for  us. Of particular interest to her are the ones with one inoculation. But see below...

Meirish...regarding blood clots... believe me this was hard to believe for me when I got the Dx...but I also have what is abbreviated as APS. It is anti body associated with lupus. AND the number one concern with this antibody is it can make you CLOT.On the positive side, the APS (clotting antibody) knock on wood has NOT been an issue fir me...thank goodness. Doctors and I through testing are just aware I have it. The ITP (low platelets) has been a big problem.

I? ve met a fair amount of ITP patients with both And a lot of Lupus patients with it. THAT potential clotting issue alone concerned me re this virus and this vaccine. But it?s a good sign ( thank goodness) that I haven?t clotted yet.  But when that doctor died of A sudden bizarre case of ITP I was stunned. Right now my ITP is active. And I?m taking a powerful newish medicine. My hematologist has to be careful not to over Medicate me because on the flip side if my body is artificially pushed to produce too many platelets than the APS will kick in and I could (perhaps likely) get a clot. I am living in bizzaro world right now. I have thought of locating an expert on blood disorders and seeing if I can get a conference/zoom type call.

I agree with the above poster who said this is a hard decision for folks to make. And a very personalized one. If I didn?t have these oddities, I would me MUCH more inclined to take it. And I might still..but feel I have to wait.

I do hope folks who are concerned for health reasons and delay taking it or decide not to take it are not penalized....like for travel.  Perhaps a very recent Covid test before traveling would suffice. Very difficult times we live in.

Title: Re: The COVID vaccine
Post by: meirish on January 20, 2021, 07:43:23 PM
The Astra-senaca is a one injection vaccine which is much more interesting to me.

Also, I was under the impression that the other vaccine to come out soon was by Johnson and Johnson but saw another site that called it Jaansen. If anyone has the answer to this one I would be glad to hear it.

Also, the OB-GYN age 59 from Florida passed aways recently from a brain hemorrhage. He had no medical history and took no medication the way I understand it. He got the first flu vaccine and 3 days later had red spots on his body. Knowing that this was not a good sign he went to ER and they put him in ICU immediately after blood work. Apparently he had little if any platelets in his blood. They worked with treatment on him for many days and were almost ready to take his spleen out when he had the brain bleed that was very significant. I can't remember if he had the Pfizer or Moderna vaccine but they are the first two to come out that are made by the new technology.

The talk is now whether to blame the vaccine and of course they probably won't. However, I am sure that most of us feel that this is something we really need to have a good diagnosis and need to know just what is going on. It seems like we get a little info here and there that doesn't seem to answer all our questions. Now, I may have this all wrong, but I am telling the information as was given by medical person.. I have no way of knowing just who is giving opinion or truth. Best all of us can do is keep track of the information that is out there. Thanks and good luck all. meirish
Title: Re: The COVID vaccine
Post by: Sooki on January 29, 2021, 10:23:24 AM
I got my first dose of the Moderna vaccine a week ago with no ill effects other than mild soreness at the spot.  I'll get a second dose in a couple of weeks.  I know the side effects are apt to be greater then, but I look forward getting better immunity.  I'll still double mask when I go out, but I'll feel safer.  Especially when visiting my unvaccinated daughter.  I have lupus, Sjo, Hashis, and a double dose of APOE4 gene variant (which in itself gives a 4x greater chance of cytokine storm in COVID).,  My rheumy encouraged the vaccine because its risks seem lower than the risks in getting COVID.
Title: Re: The COVID vaccine
Post by: meirish on January 29, 2021, 03:47:18 PM
Did your doctor have any preference between Moderna and Pfizer??? Just curious. Seems like they are going to be sending different brands to different places. My thought at this time is that they send out the right brand to areas so people can get their 2nd vaccination. Im referring to having Moderna the 1st time and then maybe having Pfizer shipped to Moderna area when 2ns shot is due. Hope the management is keeping good track of this aspect. Thanks. meirish
Title: Re: The COVID vaccine
Post by: lighthouse33 on January 30, 2021, 11:13:18 AM
I had my first Moderna shot on January 8. Only had a sorr arm. I live in a long term care facility. The government is in charge of the vaccinations in the nursing homes. They have contracted with CVS and Walgreens to give the shots. I will get my second shot February.

For me personally, I have Sjogren's and leukepenia. Low white blood cell count. Not to mention my asthma. I know if I get Covid I'm a goner. And, knew I would have to get the vaccine.

I read that there is a sox werk incubation period after the second shot before you have full immunity.
Title: Re: The COVID vaccine
Post by: rnathans on January 30, 2021, 11:38:28 AM
I got the first dose of the Moderna vaccine on Thursday morning. By Thursday evening I had a sore arm. By this morning the soreness was gone.
Title: Re: The COVID vaccine
Post by: sixty on January 30, 2021, 04:35:10 PM
I got an appointment for my first shot but it's not until March 26th!!  Well I hope I can stay healthy till then.  I'm in Washington state and I'm in the eligible group of being over 65.
Title: Re: The COVID vaccine
Post by: meirish on January 30, 2021, 09:48:59 PM
lighthouse, I believe you are right about the time one has to wear a mask after the 2nd vaccination. I think it is 6 weeks but probably they will tell you the day you get the 2nd shot. Good luck. meirish
Title: Re: The COVID vaccine
Post by: rnathans on January 31, 2021, 04:10:28 PM
As long as mask wearing is indicated you need to wear a mask even 6 weeks after the second vaccine. You are not likely to get sick but you can still spread virus.
Title: Re: The COVID vaccine
Post by: katie1111 on February 06, 2021, 06:36:54 AM
I had my 2nd Moderna Covid vaccine shot yesterday.  So far the only side effect is a slightly sore arm.  I recomment you don't get the shot in the arm on the side you sleep.  Otherwise no side effects.  My husband who does have any autoimmune disease is part of the Phizer vaccine testing program and got his second shot on Tuesday.  He had a sore arm and felt slightly sick on Wednesday and has fully recovered.

We are both very happy with the sense of relief we felt after getting the shots.  My doctor told me it will be 2 weeks before we get the full effect.  But it will be wonderful to go out (yes, will wear masks) but we won't have to worry about catching the disease.

By the way, I was given about a dozen disposable masks as I felt the Convention Center - no sure why.

Katie1111

Title: Re: The COVID vaccine
Post by: Skylar on February 06, 2021, 11:04:29 AM
I couldn't wait to get my first shot. I got Moderna because that was what was offered by my county's health department. I was happy because that was my first choice. My doctors recommended vaccination. We all need to speak to our doctors about our personal health issues and what to do. I do believe that getting Covid is much worse than getting vaccinated.

My arm was sore later in the day and I had a mild headache, nausea and a slight feeling of not being well, but not really sick enough to say I was sick or to stop me from doing my normal daily activities. By the third day I was back to normal. I can't wait to get my second booster later this month. My husband had a sore arm and felt a little light headed the second day. We welcomed these side effects indicating our bodies were building a response to Covid.

I too felt a huge relief with the first shot and I can't wait til about two weeks after the second booster when theoretically I will have a more complete immunity.

I will still be wearing a mask even once I have had the second booster and until the incidence of Covid is extremely low in my community.

These vaccines are similar to the flu vaccines. They will protect us from getting so ill that we require hospitalization (or worse) but they may not be completely effective at stopping us from getting Covid or from passing it to someone else. Being vaccinated may allow us to be asymptomatic spreader of the virus. If you catch if from someone else unknowingly and you don't feel sick you may not realize you have it. It's unclear at this time whether or not you can catch and spread Covid from the various vaccine candidates.

I do not want to catch Covid - even if I have been vaccinated.
Title: Re: The COVID vaccine
Post by: trc1962 on February 09, 2021, 10:02:48 PM
I am very much for getting the vaccine and yet am scared too. I don't react well to vaccines, h1n1 was a nightmare and led to a 5 month flare and prednisone which I hate. My dad at 81 received the vaccine and at first did well, but 5 days later got severe blisters in his mouth, pain in his back and hips and his clotting factor rose and he needed a shot of coumadine...scary, but so is the virus. I am not quite old enough yet where I live, so a reprieve. I am a teacher and my immune system is scary strong and when it goes amuck it eats myelin off my pheripheral nerves. Most probably do well with this vaccine though and I will think about it.
Title: Re: The COVID vaccine
Post by: Spring on February 11, 2021, 06:32:45 PM
I believe in vaccines.
I had my first shot, moderna, Wednesday and so far only a slightly sore arm when I touch it or use it.
My 90 yr old mother had hers same time and she does not even feel that.
Title: Re: The COVID vaccine
Post by: engy on February 20, 2021, 02:48:48 PM
After talking to my doctors, I got my first dose of Pfizer Covid vaccine on Friday. It was offered to teachers in our district as we have been face-to-face full time since September.  I had a slight headache and chills yesterday but barely noticeable.  I felt great this morning except for a sore arm until this afternoon when I got severe stomach cramps with multiple trips to the bathroom.  Then more chills.  I took a nap and a shower and I?m starting to feel a bit better.  The side effects our teachers are having are pretty different but sore arm is the one we all have.

My neurologist supports the Moderna and Pfizer vaccine but he said he didn?t like the preservatives and ingredients in the other vaccines (I think the 1 shot one) that were coming out.

I?m hoping a feel ?back to normal? by tomorrow.

I have Primary Sjogrens with Lupus overlap symptoms, Hashimoto?s, Celiac, POTS, raynauds, small fiber neuropathy and Antiphospholipid Syndrome.

Take care everyone.
Title: Re: The COVID vaccine
Post by: Carolina on February 20, 2021, 03:37:53 PM
Had my second vaccination with Moderna on Feb. 16.

The second day, the 18th, I was much more achy and tired than usual, so I think that was a 'reaction'.  My arm didn't get sore, however.  I just had a headache and felt sort of flu-like.  But no chills or fever.

This surprised me, as I'm 78 and have NEVER had any reaction to the over 40 years of flu shots, the shingles vaccines, tetanus, you name it.

Feel fine now.  Know the immunity with take a while to kick in.  IF it kicks in for me.  My immune system is wonky (deficient for one thing).   So I'm asking my Immunologist to check for antibodies when I see her in April.

Better safe than sorry.  So still masked everywhere, and wear gloves when I play bridge or Scrabble.

Hope you are all well.

Elaine
Title: Re: The COVID vaccine
Post by: Deb 27 on February 22, 2021, 04:06:32 AM
So, I had my 2nd Moderna shot two weeks ago last Wednesday. I felt pretty awful the day after with aches and pains. I didn't have any fever or chills. I don't know if it's the weather but in the past weeks, I have been in a pretty rough RA flare with lots of joint pain. It has crossed my mind that it could be the vaccine but I can't say for sure.  I still have no regrets..........I can get over and work with the RA flare. On top of my RA/Sjogrens, I have diabetes and high BP, so I needed this vaccine.
Title: Re: The COVID vaccine
Post by: Linda196 on February 23, 2021, 05:00:13 AM
The reason a lot of people react to the booster in a two stage vaccine is because of the way it works. It is supposed to set up the immune system to respond quickly to a recognized protein (in this case the recently injected one it recognizes as Covid) and respond fast and hard. The fact that you did react to the second dose, after a history or great tolerance to vaccines, is proof that it is doing what it's supposed to, reacting to a recently recognized protein.
Title: Re: The COVID vaccine
Post by: meirish on February 23, 2021, 11:45:59 PM
I may be the dumb one in the crowd but the hospital system in the twin cities called me last week and told me I was on the list of people to get their covid vaccination and I turned them down. I am still not ready to get the first 2 vaccines to come out. I have so many systems involved that I am sick much of the time now. Still able to get out to docs appts and grocery store but so many more health problems.

Also with my t-cell issues of the past I am also very leary. When ever I have a CBC many of the tests come back red which mean abnormal. My body just is out of whack all the time lately.. I also have been having an infection that has been brewing for a long time in my sinuses and urinary track. Klebsiella is a bug that moves in and resides and just picks away at me. I feel that with my present health status I would be worse off getting the vaccine at this point. MY gut tells me no and I just have to listen to it.

I live in a co-op with just about 25 people and we are all pretty much staying in our rooms and not gathering in a crowd. I still wear my mask whenever I am out of my room and everywhere I go. I do not go to any new grocery store and just keep a low profile. But...one never knows. Will be interesting if herd immunity is slowly coming as some docs are suggesting. Hope all of you are doing well. meirish.
Title: Re: The COVID vaccine
Post by: Cheryl on February 26, 2021, 10:50:28 AM
For months I declared, "I won't be a guinea pig.   I'll wait to get a vaccine after they have been proven to work safely."  In the meantime, I realized that I have lost a year of my life to this virus while avoiding it - a year of interacting in person with my children and grandchildren, being with friends, meeting with my church for worship, and doing normal daily activities.  At my age (68,) a year is a big chunk of my remaining years in this world!   

I decided to get my doctors' opinions and trust their judgement.  Both my gp and my rheumatologist told me to get the vaccine as soon as possible. I scheduled my appointment for the first day the vaccine was made available for my age group, and I received my first injection 4 days ago.   I'm looking forward to having the booster and living with less fear and more normalcy.  (Bring on the grands!)

For Meirish and others with doubts and/or reaction concerns, I'm not suggesting that everyone should follow my example.   I know that some of you will be advised by doctors to wait or decline the vaccine, and you should heed their advice.  I wish the best for each of you in reaching the best decision for your situation.

By the way, my vaccine was from Pfizer.   I had no side effects except for a little arm soreness the next day and some additional tiredness.

Best wishes!
Cheryl
Title: Re: The COVID vaccine
Post by: Way2dry on February 28, 2021, 05:55:57 AM
I had my second Pfizer shot a couple of weeks ago.  After the first one I had a sore arm and noticed some of my Sjogren?s symptoms getting worse.  I told my doctor I thought the shot was making my symptoms worse and asked if I should  skip the second one.  She told me to get it. After the second shot I went into a severe flare.  I am miserable now with zero saliva, aching teeth, receding gums, mouth sores, drier eyes and awful insomnia.  I may have been heading into a flair before the shot, but the timing of it makes me think it was the vaccine.  I am very worried that this flare may last a long time or I might not get over it because of the vaccine.  Hope others have better luck than I did.
Title: Re: The COVID vaccine
Post by: araminta on February 28, 2021, 06:19:40 AM
I've now had my first Pfizer shot.   No problems except for a sore arm for two or three days.
Title: Re: The COVID vaccine
Post by: sixty on March 02, 2021, 02:02:26 PM
I finally got an earlier appointment!  It's for Thursday this week!  I'm so happy.  My other one is for the 26th and I don't want to wait that long.  Well now I feel much better.
Title: Re: The COVID vaccine
Post by: Scottietottie on March 02, 2021, 04:17:17 PM
Hi  :)

I'm getting my first shot this Friday. Felt pretty fed up that my two youngest children got called for a shot before I did! (They don't live in the same area) Hubby had his jab about 4 weeks ago.

Best way to get to see my grandkids I reckon!

Take care = Scottie  :)
Title: Re: The COVID vaccine
Post by: meirish on March 04, 2021, 11:30:46 PM
Just to let you know, I had my Johnson and Johnson vaccination today. I had heard that it was going to be released this week and had called my neurologists nurse on Tuesday asking about this particular vaccine. Informed her the reasons that I waited for this one. Nurse was nice as they always are and she said she would get back to me. She never got back to me that day.

However, I got a call on Wed telling me when my appointment was(today) for my J & J vaccination. So, I think the nurse took care of it. This was the first day this vaccine was available in the USA and the town I go to for medical care happened to end up on the list to receive the vaccine. They said they were doing 160 shots to day and 340 shots on Saturday .They were also amazed that they got in so early. I have heard that they are to get more of this brand down the road.

The Mayo clinic in southern MN is doing the Moderna and Pfizer vaccine in 9 different cities and towns so they have been doing the vaccinations slowly but surely. It sounds like the nation is seeing an increase in the release of the shots so that is good.

I wont go into my reasoning for my desire for this one but I have continued to do more and more research and am happy that I waited as I feel this drug suited my health condition. There are so many variables out there... I have not found any good information on IVIG and this vaccine so time will tell. I had the vaccine today and it happens my IVIG is tomorrow.

I called infusion center and they checked with the head doctor and he said there was no problem. But...I am still going to pay attention to the research. Some articles say that the IV gamma globulin can decrease the efficacy of the vaccination. Time will tell. Sooo, I am still kicking and have only a sore arm and will see what tomorrow brings. meirish
Title: Re: The COVID vaccine
Post by: sixty on March 05, 2021, 02:21:17 PM
I had my first Pfizer shot yesterday and my arms a little sore, no big deal.  I was impressed with how organized the staff was and how easy it was to get in and out.  I hope the rest of the country's as easy.
Title: Re: The COVID vaccine
Post by: rnathans on March 06, 2021, 09:27:27 PM
I had my second dose of the Moderna vaccine on Wednesday and around 8 hours later the side effects kicked in. First severe muscle pain, then a headache and eventually chills and low grade fever. I felt really crappy for about 24 hours, then just very tired for another 24 and have been fine since Friday evening. It did not seem to trigger a Sjogren's flare for me ( I am sorry it did for others). As miserable as I felt for 24 hours it sure beats the misery of COVID...and it will soon allow me to see my kids and dance at my son's wedding ( size still to be determined) 3 months from today. Trust me I will be dancing even if it turns out to be just 6 of us , though hoping for a few more.
Title: Re: The COVID vaccine
Post by: twilite on March 08, 2021, 08:00:45 PM
Got my first Moderna covid vaccine February the 28th last Saturday I was fine. The next day my arm hurt really bad but it only hurt for one day I had a little bit of nausea and I was very sleepy for a whole week just couldn't get out of bed but I was okay. Started feeling better and yesterday my arm started itching and I went to scratch it and it felt like a large mosquito bite it was really big the size of a I don't know a little bit bigger than a quarter. It was hard to the touch like a mosquito bite is when it spreads inside your arm and I looked that up online and it said moderna sometimes gives something called covid arm so I guess I'm one of the 244 count me 245 people that got the covid arm from moderna.

I don't have any other symptoms or a reactions from the vaccine as of yet I'm sure I'll be fine. But it just makes me apprehensive even though I'm going to get the second one on the 27th of this month I just don't don't want anything else to happen but I guess it's better than covid...
Title: Re: The COVID vaccine
Post by: jazzlover on March 09, 2021, 03:10:41 PM
It's a hard NO for me.
Title: Re: The COVID vaccine
Post by: Scottietottie on March 09, 2021, 04:28:33 PM
Hi  :)

Well I got my first shot of AstraZeneca on Friday. Ached yesterday but am fine today. One of my kids had the Pfizer vaccine and spent a couple of days feeling awful but that was all. Another kid had the AstraZeneca and got a splitting headache and ran a temperature for a night but then was fine. I got off the lightest. As a family we are looking forward to be able to get out of lockdowns (they are pretty strict here) and to be able to meet up again as we don't live near each other.

Take care - Scottie  :)
Title: Re: The COVID vaccine
Post by: Kathy57 on March 09, 2021, 05:54:13 PM
Dear friends,

I managed to be able to get a Johnson and Johnson vaccine yesterday, and I?m so glad and so looking forward to be able to see my grandkids, without guilt or fear.  I?ve been trying to get a vaccine for weeks now and I think I just got lucky, and persistence pays off. 

My husband is going through a cancer trial at MD Anderson and I was able to snag him a Pfizer vaccine over a week ago, but unable to get one for myself.  He did great!  Just a little sore arm, and I am so relieved because he is on some pretty strong immunologic cancer meds that aren?t FDA approved yet.   They did get FDA approval for the trial.  Now we just have to wait until he can get the second vaccine and hope all goes well.

I was worried about getting the vaccine yesterday because I had just started going through a mild flare a few days prior, but I figured I had better just do it.  My arm felt a little sore after the injection and feels just a bit sore today in that I can tell where they jabbed me, but other than that I am okay.  I?m still experiencing mild flare symptoms but no worse.  I?ve been trying to take it easy which I seem to be pretty good at!😂

To update you on my husband?s cancer trial - he has been on these meds for over 14 weeks now and feels fatigued and weak but otherwise is tolerating them well.  The good news is that they ran a bunch of tests, CT scans, and bone scan and they found a 58 percent improvement of his Tumor areas!  I started crying when the doctor told us. 

Prior to this trial my husbands cancer had spread to his kidneys and bones.  It was spreading so fast and I thought this is the end and the meds had stopped working.  It has been an emotional roller coaster ride,  but I now dare to look forward to some more family time in our future.  It is very scary and they watch my husband like a hawk.  He told me that he was a willing guinea pig and that is about right.

He and his fellow participants will be helping future patients.  If my husband continues to do well and can tolerate the meds than this trial is planned to last two years.  That is hoping he survives.  I believe that he will.

So glad so many of you have been able to get vaccinated and have done pretty well with it!  Stay safe and stay well.

Kathy

P.S. any and all little prayers for my husband would be much appreciated 😊