Sjogrens World Forums

Sjogrens Topics => Living With Sjogren's => Topic started by: helloz on April 07, 2020, 09:07:45 AM

Title: What seems to really help other than the major meds?
Post by: helloz on April 07, 2020, 09:07:45 AM
I thought it might be helpful for the community (and me :) ) to see what everyone has found to be most helpful for them other than the normal prescription meds like (plaquenil, evoxac).

Maybe we could list our top 2 or 3 things instead of the entire list of things that provide "some" relief,

It might be other meds, supplements, gadgets, strategies, etc.

* Neilmed Extra Strength Sinus Rinse - allergies and sinus infections
* Whole Home Humidifier on HVAC - in my opinion, it reduces the number of sicknesses during winter months
* Sinex - when I have cough, bronchial issues this seems to help

Title: Re: What seems to really help other than the major meds?
Post by: araminta on April 08, 2020, 01:31:28 AM
My top three nonmedical things are sugar-free chewing gum, Instituto Espanol 10% urea skin cream, and Vaseline for lips at night.
Title: Re: What seems to really help other than the major meds?
Post by: angeldancer on April 09, 2020, 04:17:33 PM
I use Aveeno cream, Essential Oils to help all the dryness.  I use heating pads for my pain and last I use waterfall, ocean, rain and thunderstorm sounds to relax my spirit.
Title: Re: What seems to really help other than the major meds?
Post by: helloz on May 04, 2020, 11:50:35 AM
Thank you for the responses!
Title: Re: What seems to really help other than the major meds?
Post by: Joe S. on May 04, 2020, 01:12:45 PM
Check the supplements in my signature. Before you try anything, check for counter indications, drug interactions and side effects.
Title: Re: What seems to really help other than the major meds?
Post by: jazzlover on May 04, 2020, 09:28:11 PM
LDN .. Low Dose Naltrexone
Title: Re: What seems to really help other than the major meds?
Post by: Gorn on May 05, 2020, 03:28:03 PM
Exercise.

It's really hard some days to make myself do it. But I feel much, much better if I get exercise.

If I'm having a flare and things are too bad to do some kind of workout, I at least make the effort to get my dogs out for a walk. 
Title: Re: What seems to really help other than the major meds?
Post by: Kathy57 on May 06, 2020, 12:16:28 PM
Xylomelts, Genteal eye gel, and Ambien.  Can?t seem to do well without.

Kathy