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Sjogrens Topics => Living With Sjogren's => Topic started by: Emics on April 04, 2020, 01:55:05 PM

Title: Sjogren and hypersensivity?
Post by: Emics on April 04, 2020, 01:55:05 PM
Do you know or suffer from hypersensivity? Since some years till now, every little hit, it is too painful, more than " normal range". If I carry a heavy bag, my hands are painful also.
I don?t feel this like normal things.

Do you know if this is related to an hypersensivity in Sjogrens syndrome? Thank you.
Title: Re: Sjogren and hypersensivity?
Post by: Carolina on April 05, 2020, 06:32:57 AM
Yes, Emics, I have always been hypersensitive, especially to being 'touched'.

For example the only time I had a massage, I found it painful!

If my skin is touched the 'wrong' way it hurts or itches.  (and then my husband's feelings are hurt, alas, because he thinks it's a rejection of him). 

Loud noises are difficult for me, as well.  Room temperature is crucial, because I'm always too hot, but used to be always too cold. 

My sense of smell is wonky, and I smell things like wet cardboard, or something burning, when that's impossible.

I think it is related to our Immune Disorders.   And now I have small nerve neuropathy in all of my skin, so without heavy medication, my skin, lips, tongues, eyelids, everything, feels like I'm on fire.

The 'new normal' keeps changing.

Virtual hugs, Elaine


Title: Re: Sjogren and hypersensivity?
Post by: Jenny on April 06, 2020, 04:19:06 AM
I too am sensitive to touch. My husband can give me a playful swat and it will hurt like heck. Especially on my butt. I?m also sensitive to loud noises.
Title: Re: Sjogren and hypersensivity?
Post by: susanep on April 11, 2020, 02:47:54 PM
These new normal's are getting harder. :(
susanep
Title: Re: Sjogren and hypersensivity?
Post by: sixty on April 16, 2020, 08:36:28 PM
I'm super sensitive to noise!  Also, I feel like my thermostat needs fixing because I run too warm most of the time.  Very annoying.
Title: Re: Sjogren and hypersensivity?
Post by: Linda196 on April 17, 2020, 03:34:00 AM
Noise is my big complaint, I even asked for testing for spectrum placement because I heard that could be a factor, and as it turns out, I'm borderline Asperger's, but the audiologist and otologist both said the type of sensitivity I experience was more hyperneural than processing, so they seemed to think it had more to do with autoimmunity than spectrum. I'll never understand how they figure all these tangled puzzles out!

I also have some very sensitive skin areas, where a light touch feels like scratching a burn, but I also have some desensitized areas that feel like I've has local anaesthetic applied, and I can trace the areas by spinal nerve distribution, so it's probably a direct result of radiculopathy from bone spurs on all vertebrae.

Whatever it is, and whatever causes it, it's very annoying!