Hello everyone!
I moved back to the states and I?m back in school. I?m in a statistics class. Unfortunately due to coronavirus, my classes are all online now and I can?t venture out to collect data for my project. So I thought I?d ask you guys, if you could help me and I can post my findings so we all learn something about our disease. I welcome as many people to respond as possible, but I need at least 25 people. I?m excited to learn the results and it?s something fun to do while we?re quarantined.
I need:
1. Your gender
2. Your ethnicity(you can specify more than one ethnicity if applicable)
3. The number of years it took to be formally diagnosed with sjogren?s by a doctor(Estimate as best you can)
4. The number of doctors you saw looking for a diagnosis of your symptoms before being formally diagnosed with sj?gren?s by a doctor.
If you have any questions please let me know!
Thanks in advance!!
Excellent and inventive use of isolation time!
I understand that, as statistics, you can't post this in the form of a poll, becaues you need more precise numbers, so, how would you like to receive responses, as replies or as personal messages?
Posting your findings at completion is a nice touch, thanks.
Replies or personal messages are ok! Which ever individuals feel the most comfortable with.
It is possible to set up an actual poll with your questions. The numbers will tally as people answer the questions, as well.
I don't know how it's done but someone here knows.
Regards, Elaine
Unfortunately, the poll only seems to allow me to ask one question at a time with 5 predetermined options of answers, but I?m asking 4 joint questions(the questions are paired together with an individual) with possibly more than 5 options of answers.
1. Gender- female
2. Ethnicity- Irish
3. time from onset of noticible symptoms to formal diagnosis- 6 months
4 Doctors seen before diagnosis- 3: optometrist, GP and Rheumy
I?d like to help:
Gender: Female
Ethnicity: Irish and German
Number of years til diagnoses: about 3 but I?ve had symptoms well over 10 years
Number of doctors seen: Internist (2), ENT (4) Oral Maxillofacial Specialist (1) Gastroenterologist (1)
Allergist/Asthma/Immunologist (1) Optometrist (1) Ophthalmologist (1)
Rheumatologist (1) Dentist (1) Also a couple of ER visits
I hope this helps,
Kathy
It helps a lot! Every bit of data paints a picture. Thank you!
Gender - Female
Ethnicity - American with Italian and Scottish background
Years to Diagnosis - About 4 years
Number of doctors seen before diagnosis - at least 8 that I can remember. 2 Family Medicine doctors, 1 Internal Medicine doctor, ENT doctor, ophthalmologist, dentist, chiropractor, then finally a rheumatologist to get diagnosis. And an ER visit in there too.
Hope this helps your study.
Liz D.
*Female
*White
*6 years to diagnosis
*5 doctors
1. Male
2. German, Swedish, Norwegian
3. More than 7 years, I think 12?
4. 6 doctors and lots of referrals for additional tests.
What school are you attending??
Is your school accepting any work on line for credit? Many are not.
What year are you in?
Thanks
1. Female
2. Black and Indian (Cherokee)
3. Approximately 20 years
4. about 11 doctors if i include ENT
1. Female
2. Cherokee & Irish
3. 20 (+) years
4. 5 doctors
1) Gender: Female
2) Ethnicity: German, French, Czech, Swiss, English, Scots, Dutch
3) Number of Years to Diagnosis: 20 years (from first noticeable manifestation which was Systemic Vasculitis with Pericarditis, Pleuritis, and Hemolitic Anemia)
4) Number of doctors seen while looking for Sjogren's diagnosis (underlying cause of Systemic Vasculitis): Total of 12 doctors seen ( 2 Family Medicine, 4 Internal Medicine, 2 ENT, 1 Optometrist, 1 Dermatologist, 2 Rheumatologists)
1) female
2) Irish, Welsh, German, french, portugese
3) 10 years
4) 3 drs.....GP, opthalmalogist, rhuematologist
Female
White: German, English & Scottish
Four years
Four doctors
1) Gender: Female
2) Ethnicity: German, English, some Irish.
3) Number of Years to Diagnosis: 10
4) Number of doctors seen while looking for Sjogren's diagnosis . 6
I hope this helps.
susanep
Ghostkiwi how are you making out with responses? Not sure if you are collecting data from other sources so I don't know if the 11 responses here bring you down to still needing 10, or if you are even closer to goal.
I have had 12 people respond. I still need at least 13 more responses.
1) Gender: Female
2) Ethnicity: Caucasian (Dutch).
3) Number of Years to Diagnosis: 4 (but feeling unwell long before)
4) Number of doctors seen while looking for Sjogren's diagnosis 9: GP, opthalmologist, endocrinologist, internist, dentist, naturopath, gynaecologist, sexologist, rheumatologist.
1. Female
2. English and Irish.
3. About 15 months.
4. 2- my GP and an ENT (who diagnosed me).