When I am having a flare up, besides fatigue, aching in my bones is one of my worst symptoms. Does anyone else get this?
I am not talking about joint pain. I mean aching deep down in the long bones of my arms and legs.
I did a search on the forum and didn't find anything about this.
If this is a typical Sjogren's symptom, I guess I will just add it to my list of lovely symptoms and move on.
I do not know if it is a symptom of Sjogren's but after having it in my left leg for years, my leg did break.
Gorn, I?ve never seen that as a common issue. Did you mention it to your Dr?
I?ve had terrible bone pain when I was growing bone thanks to a parathyroid problem. It?s very different from joint pain. I had X-rays which clearly showed the bone growth. I can also feel the growth when I palpate the areas.
Sjogrens can affect the bone marrow so that might be what the pain is from. I would mention it to your doctor. Good luck Irish
I get aching in my arms and hands, it's not always easy to say if it's the joints or the bones, often seems to be both.
I used to have terrible bone pain. I told my GP about it and he ran a blood test for various things. It turned out my Vitamin D count was extremely low. I was put on a extremely strong prescription supplement for several months and my bone pain went away. I now take over the counter supplement of 2000 mg daily. It could have been a coincidence, but it?s worth a try.
Yes, When I am in a flare, my long bones (arms and legs) ache. It is a sickening pain. And since I also have severe osteoarthritis, every joint in my body lights up with pain. Flares are horribly painful for me.
Regards, Elaine
Yes, me too. I am going through it right now. My whole body is in a flare. My episcleritis is flaring too :( Bobbie
Hi :)
My bones ache. They have since childhood. I used to tell my mother that my legs had toothache when I couldn't sleep. She just used to tell me not to be so stupid. Anyway - they still ache and they hurt when they are pressed. Massage is my idea of torture.
Just seems to be one of those things.
Take care - Scottie :)
It seems I have at one point had every symptom in the book, I'm pretty sure this one included. At one point I had a bone marrow biopsy done and learned that I had zero storage iron, I had all sorts of symptoms then. It was not until I eventually had the right treatment for seronegative RA and my SJS that my iron levels rebounded, that is because my anaemia is caused by my autoimmune diseases, not by a lack of taking or being able to process iron.
Yes my bones ache. Worse at night. My Dr has recently put me on Tramadol and it has stopped! Knock on wood.
It took a while to get the dosage right. Normal painkillers did nothing.
Keep Smiling,
Jo 😊
Bigleyj I used to use Tramadol and found great relief from it. It did not prove to be a useful long-term solution for me but did help during the early stages of these diseases.
I haven't had the problem mentioned here, exactly. But, maybe to put a name to a similar condition, I sometimes get intense, aching, boring pain at points on my long bones. These are the places where tendons and ligaments attach to the bone - entheses - and the inflammation enthesitis. Mid calf, either side of my elbow, mid forearm, ankles, and other locations. These usually arrive at night and last for a few days. But I haven't found any relief from them except for general flare relief.
Thanks all of you for the replies! I did mention this recently to my rheumy, and we are currently working on making some changes...
Scottie! I feel the same way about massage. I thought I was the only weird one. I had one massage and I wanted to jump off the table, but I felt embarrassed.
And now that I have severe Small Fiber Neuropathy every inch of my skin hurts when 'touched'. ( I can touch my skin, of course).
Sometimes I think we live in a completely different 'universe' than most people inhabit.
Regards, Elaine
Oh Scottie, I can't believe your mum said that. As a child I had terrible aching in my legs at night. I was told it was growing pains. My mum would sit on the bed and rub my legs for ages. I was so lucky. Many of the children in our family get growing pains.
By the way I've recently had to increase my dose of Tramadol at night because it stopped working.
Keep smiling,
Jo. 😊