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Sjogrens Topics => Living With Sjogren's => Topic started by: Carolina on February 03, 2019, 06:14:58 AM

Title: A Story of Persistence Resulting in Diagnosis
Post by: Carolina on February 03, 2019, 06:14:58 AM
Dearest Sjogren's Angels,

I post this with mixed feelings. On one hand it is a joy to read of success in finding a diagnosis which resulted ln a successful treatment.

On the other hand I am still grieving that there is no successful treatment for me.

The takeaway is Persistence  in self advocacy as a patient is vital.

DIAGNOSIS

The Patient's Wife Thought Her
Husband Was Being Treated for the Wrong Disease.
She Was Right.

https://www.nytimes.com/2019/02/01/magazine/the-patients-wife-thought-her-husband-was-being-treated-for-the-wrong-disease-she-was-right.html

Regards, Elaine
Title: Re: A Story of Persistence Resulting in Diagnosis
Post by: Nomad on February 05, 2019, 09:13:38 PM
The link seems to go somewhere else.
Can you try the link again?
Title: Re: A Story of Persistence Resulting in Diagnosis
Post by: Carolina on February 06, 2019, 05:01:30 AM
I fixed it, I hope.

Here's the right link.

https://www.nytimes.com/2019/02/01/magazine/the-patients-wife-thought-her-husband-was-being-treated-for-the-wrong-disease-she-was-right.html

Regards, Elaine
Title: Re: A Story of Persistence Resulting in Diagnosis
Post by: Jenny on February 07, 2019, 03:10:37 AM
Wow! He?s a lucky man. I?d never heard of that disease.