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Sjogrens Topics => Living With Sjogren's => Topic started by: CMNK12 on September 05, 2018, 10:26:47 AM

Title: Question about strange sweating
Post by: CMNK12 on September 05, 2018, 10:26:47 AM
Hello all


Hope you guys had a nice Labor Day holiday. I have a question I am baffled about sweating I am having recently. I have never, ever sweated before. Now I wake up dripping. I am on hormone replacement therapy that has stopped my hot flashes, in fact some times I feel cold now. But I still sweat under my arms at intervals. I'm sorry this is TMI. Is it hormonal? It just feels so weird that I can't stop sweating sometimes and it's only under my arms.???? Thanks for your help. Anyone else ever experience this, Help.
Title: Re: Question about strange sweating
Post by: Joe S. on September 05, 2018, 05:43:40 PM
It seems that part of Sjogrens is a stage of uncontrolable sweat. Changing the sheets twice per night or more before you go really dry.
Title: Re: Question about strange sweating
Post by: Deseree on September 05, 2018, 08:42:12 PM
I'm no expert and really new to all of this, but my guess is that it's hormonal or due to some other drugs you may be taking. I suffer from a severe hormonal imbalance, but before I was treated years ago, I used to sweat like crazy. Sometimes I still do even though everything's supposedly under control. I know that's anecdotal, but hormone imbalances are very well documented as causing severe sweating.
Title: Re: Question about strange sweating
Post by: ohiolady on September 06, 2018, 06:03:04 AM
Have you recently started Evoxac or Salagen?  I am experienced profuse sweating for several years on Evoxac. I have been on it now for 12 years so I no longer get this sweating. It is definitely a side of ffect of the med.

Anna

Title: Re: Question about strange sweating
Post by: irish on September 06, 2018, 09:09:42 AM
This could be some type of autonomic nervous system event. The sweat glands under the arms are triggered a little differently than other sweat glands if I remember correctly. The nervous system is affected in autoimmune diseases and can really raise havoc for us. If you see a neurologist I would ask him about this. And.....it might be that your family doctor would know. Good luck, Irish
Title: Re: Question about strange sweating
Post by: Judes on September 06, 2018, 10:11:39 AM
I sweat profusely about every hour since starting cevimeline (evoxac) 5 weeks ago. It's really more of an all over claminess as not a lot of sweat comes out. Prior to starting the drug I had intermittent hot flashes which I think are from premenopausal issues. Now they are ten fold!
Title: Re: Question about strange sweating
Post by: CMNK12 on September 06, 2018, 01:39:00 PM
Thanks for the replies. No evoxax or salagen. I tried that at one time years ago but could not take the


sweating. So I will research more and mention to all of my doctors to see what they come up with. I'm


sure they will think it's not a big deal but it's driving me crazy. Have a good afternoon all.


CK
Title: Re: Question about strange sweating
Post by: Sharon on September 13, 2018, 05:50:19 PM
Since SS I suffer from what I call "sweating attacks" every night (wakes me from sleep)
and sometimes during the day if I'm feeling particularly unwell.
I feel it's related to the inflammation in SS in some way or the nervous system becoming hyperactive.
Title: Re: Question about strange sweating
Post by: Judes on September 14, 2018, 04:12:09 PM
Hi i think there is something to that Sharon. I blamed my severe sweating on cevilimine, but have been off it for a week and I'm still having severe sweat attacks every hour. Wake me up from sleep sweating. I can't attribute this to premenopaus either it is so bad.
Title: Re: Question about strange sweating
Post by: Sharon on September 15, 2018, 03:13:34 PM
I agree it's a terrible symptom.
Title: Re: Question about strange sweating
Post by: Intelife on September 17, 2018, 05:41:13 AM
I started having severe night sweats as a young woman in my twenties.  Finally got a diagnosis if CFSIDS.

Note, this gas to do with an immune deficiency.  All very vague.  Fast Forward to today, and thus had all manefested as SjS.

The type of sweating one does I believe is very significant.

During my phase of strange night sweats, I would wake up and need to change pajamas mid night.  During my recent Pneumonia I told the PCP that I was sweating on my shoulders, arms, and places that I didn't even know I could sweat!

Now on prednisone for a week, my face swears profusely when I try to garden, or any other physical effort, 

So, to me, it is important and possibly significant to  be very detailed about the exact nature of any sweating issues.

Funny, cause in general, I don't sweat much cause I mostly always feel cold.
Title: Re: Question about strange sweating
Post by: Sharon on September 17, 2018, 02:25:52 PM
I too can get sweating attacks with any physical effort (without Predisone).
Question is: What is the treatment for this symptom?