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Sjogrens Topics => Living With Sjogren's => Topic started by: warmwaters on August 29, 2018, 07:51:29 AM

Title: Anyone had the Avise test?
Post by: warmwaters on August 29, 2018, 07:51:29 AM
I've been diagnosed with Sjogren's for almost 10 years. My rheumy feels there is something else going on, and I've had blood drawn for the Avise tests.  Anyone else had this? Did it help you and your rheumy with new insights?

Title: Re: Anyone had the Avise test?
Post by: ohiolady on August 29, 2018, 08:49:36 AM
My daughter has lupus and her rheumatologist ran this test on her.  That is all I know about the testing.
Title: Re: Anyone had the Avise test?
Post by: Tharrell on August 30, 2018, 05:34:04 AM
exagen.com/products/avise-ctd/
Looks like it's mainly used to look for lupus, but the panel also tests for sjogren's, ra, mctd, scleroderma. It uses a much more sensitive makers than run normally in rheumatologist office.
Hope this helps
Title: Re: Anyone had the Avise test?
Post by: trejonina on August 30, 2018, 04:07:55 PM
Hello Warmwaters, please tell me how much does the test cost ? TKS
Title: Re: Anyone had the Avise test?
Post by: warmwaters on September 05, 2018, 04:27:13 AM
Still waiting on results and costs, but will update when I know more.

Title: Re: Anyone had the Avise test?
Post by: Pete0211 on September 08, 2018, 01:50:05 PM
This was the first test my rheumy ran (after my doc and the hospital ran other (negative) sjogren's tests). I was negative on this one, too.

I believe I signed a document stating that I would not be charged more than $40 for the test, and if my memory serves correctly that's exactly what I was charged.
Title: Re: Anyone had the Avise test?
Post by: warmwaters on September 09, 2018, 02:23:15 PM
Update - after waiting several weeks for results, I contacted my doctor's office. There was some sort of screwup on their end, and the test was not processed correctly.

So now I have to go do it again. I'm wondering if I should bother.