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Sjogrens Topics => Living With Sjogren's => Topic started by: Skylar on July 13, 2018, 06:40:34 PM

Title: Is anyone cold all the time?
Post by: Skylar on July 13, 2018, 06:40:34 PM
I'm always cold. DH likes to keep the house at 68? F which should be a comfortable temperature for most people. Not for me - I always have to add a sweater or hoodie and sometimes I add a down filled coat or jacket - inside my house. There are times at night when I'm trying to sleep that I'm so cold under a down filled comforter that I can't sleep all night from being cold. I bought electric throws to use when that happens - and even with the added warmth it takes a while to get warm enough.

In the old days I could just do a couple of jumping jacks or other vigorous exercise and be warm again. Can't do jumping jacks now - no bounce in the knees - and I have to do extensive vigorous exercise to warm up.

On the other hand - when I get warm - then I get too hot - uncomfortably hot. It's as if I have no middle zone of just being comfortable. If I raise the house temperature up to 70? F - I get too hot.

I have extensive neuropathy which I believe is part of the problem. When my temperature is measured at the doctor's office (mouth) I'm usually 99.5 - 100?F which is on the high side of normal.

Does anyone else have this problem - and how do you deal with this kind of problem. This is so annoying.

Title: Re: Is anyone cold all the time?
Post by: jazzlover on July 13, 2018, 08:53:30 PM
I am more prone to being too warm these days, but I would be cold if it were 68 in my house.

We keep it at 72 in the summer when it gets really hot (as in 95-100 degrees).

My husband says it's like being in a meat locker!
Title: Re: Is anyone cold all the time?
Post by: Skylar on July 14, 2018, 05:54:28 AM
Quote from: jazzlover on July 13, 2018, 08:53:30 PM
I am more prone to being too warm these days, but I would be cold if it were 68 in my house.

We keep it at 72 in the summer when it gets really hot (as in 95-100 degrees).

My husband says it's like being in a meat locker!
Jazzlover - thanks for your response - your making me see my problem in a different way. If I was somewhere and it was 72 degrees, I would be too hot and have trouble sleeping at night.  Maybe my problem is not that I'm too cold all the time, but that I can't seem to be comfortable at a range of temperatures that most people would consider comfortable?
Title: Re: Is anyone cold all the time?
Post by: Gorn on July 14, 2018, 07:32:19 AM
I can get to feeling like I am having chills when I'm having a flare.

I find I don't deal with the heat as well anymore - but that also happens to ppl as they age.
If I am having some neuropathy symptoms I really don't like the heat.


Also, women in general prefer ambient temperatures 1 or 2 degrees warmer than what feels comfortable to most men.
(My ex was an exception. She liked the thermostat turned down to 65. Brr.)

Title: Re: Is anyone cold all the time?
Post by: cccourt1942 on July 14, 2018, 11:09:25 AM
Yes.  Before my husband died, it was duel of the thermostat...several times a day.  I keep my therm at 75....and still can get cold.  Any warmer, my house is uncomfortable at night.  So...I keep cotton gloves, thick socks, and sweaters/jackets and wraps around ALL the time.
ccc
Title: Re: Is anyone cold all the time?
Post by: Skylar on July 14, 2018, 07:03:35 PM
Quote from: Gorn on July 14, 2018, 07:32:19 AM
I can get to feeling like I am having chills when I'm having a flare.

I find I don't deal with the heat as well anymore - but that also happens to ppl as they age.
If I am having some neuropathy symptoms I really don't like the heat.


Also, women in general prefer ambient temperatures 1 or 2 degrees warmer than what feels comfortable to most men.
(My ex was an exception. She liked the thermostat turned down to 65. Brr.)
i didn?t realize that men and woman prefer different temps. Many of my female friends complain in the heat and want colder temperatures.

I get the chills even under my electric heated throw. I know it?s heating and I can feel the heat yet I get the chills. So weird.
Title: Re: Is anyone cold all the time?
Post by: Skylar on July 14, 2018, 07:08:13 PM
Quote from: cccourt1942 on July 14, 2018, 11:09:25 AM
Yes.  Before my husband died, it was duel of the thermostat...several times a day.  I keep my therm at 75....and still can get cold.  Any warmer, my house is uncomfortable at night.  So...I keep cotton gloves, thick socks, and sweaters/jackets and wraps around ALL the time.
ccc
wow, 75 degrees F is warm.  So I?m not the only one wearing coats and gloves in the house. I?ve even had Raynaud?s attacks in my hands inside at 68 degrees F although normally they start when the temps fall into the 40?s or lower.
Title: Re: Is anyone cold all the time?
Post by: Carolina on July 15, 2018, 03:46:50 PM
Cold all the time until age 45.

Now I'm hot all the time.

And have temp dysregulation, which means my body can't adjust.

My basic body temperature, with a thermometer is about 97 degrees, by the way.

at 98.8 I am not well.

Go figure.  Layers are the answer, and turtlenecks are a thing of the past.


Regards, Elaine
Title: Re: Is anyone cold all the time?
Post by: mollie carey on July 15, 2018, 05:37:36 PM
I feel less I tolerate the heat less, and I too am having some neuropathies, and the heat makes it worse. I get overheated easily, I used to be cold all the time when I was sued diagnosed at 32, now at 54, I feel hot alot of the time, not sure why.