Poll
Question:
After the first sjogren symtom, how long did it take for dry mouth at night appear?
Option 1: 6 months
votes: 2
Option 2: 1 year
votes: 1
Option 3: 2 years
votes: 0
Option 4: 3 years
votes: 0
Option 5: 4 years
votes: 1
Please respond
why at night? mine was in the day and for me dry mouth was the first symptom bec i did not give much importance to some dry eyes that i had for years
What blue said. I discounted my dry mouth during the day due to my work practicing speech therapy daily for decades. Many days I could drink as much as a liter between sessions. (and then rush to pee before next one). When I was drinking THAT much water, at the same time, I was buying the OTC dry mouth products (DID NOTHING) and drinking water all night, up 4 or 5 times a night. Miserable. BUT...the nighttime symptom I suffered about the last two years was waking up coughing. A dry, non productive cough which I couldn't quench, nor could I stop. Many nights/mornings between 3 and 4 a.m. I couldn't go back to sleep due to this "cough". By that time I was retired, but did perform contract work 3 to 4 days a week for 4 to 6 hours per day. After dx and medication, I realized I was not swallowing (absence of saliva) and the "cough" was really an apnea "type" response--now that's a guess, not a diagnosis. I believe the autonomic action of swallowing was interrupted, and I would wake up with what I thought was coughing...and really, no saliva anywhere: oral cavity, esophagus, etc. I would wake up choking (again ==I think/believe) The degree of this day and night discomfort was about the last 3 or 4 years before dx. Let me remind you or anyone else, I was not SEARCHING for a dx nor did I ask a physician about it. I'd always consumed a great deal of water in my work.
ccc
Everything happened very quickly for me...
Over the course of several weeks, I had progressively worsening dry spots on my eyes, which eventually became corneal erosions. My right lacrimal/units produced more tears intermittently, causing a "runny" eye... this was an automic response to make up for the lack of tear production out of the left lacrimal/units.
Eventually the dryness progressed to inflammatory tearing and profound dryness by about week three. The faucet had been turned off. My ocular surface tested positive for MMP-9 for no good reason; my ophthalmologist suspected an active immune response (Sjogrens) and ordered a Sjo Test panel.
Prior to week 3 of my progressing immune response, I had no noticeable dry mouth issues.... but at that point in time, it began and became a persistent symptom, both day and night. My spit was watery at best... and Pilocarpine had me sweating all over, which was miserable just to have the little bit of spit I did.
On Rituximab, I have had good experience with regaining salivary function and quality due to the lymphocytic infiltrate in my MALT tissue and glands being significantly reduced... I stopped taking Cevimelline at it's peak.... one less thing for my liver to process.