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Sjogrens World Forums

Sjogrens Topics => Living With Sjogren's => Topic started by: happylife on June 08, 2018, 09:55:56 PM

Poll
Question: Chose how face pain evolved
Option 1: Sudden onset of trigeiminal neuralgia votes: 2
Option 2: First atypical face pain then trigeiminal neuralgia votes: 0
Option 3: Only atypical face pain votes: 1
Title: Trigeminal neuralgia or atypical face pain
Post by: happylife on June 08, 2018, 09:55:56 PM
Please share more details if possible.
Title: Re: Trigeminal neuralgia or atypical face pain
Post by: Navigator on June 09, 2018, 05:10:29 PM
My very first flare involved excruciating pain along the back of my head.   For a few days.  The doctors were stumped and I had multiple tests. Eventually they diagnosed SJS.   It went away by itself.   I was left with some hearing loss.  Since then I occasionally have teeth that ache for no reason.   Or a spot in the back of my head that will flare up when a flare is coming.
Title: Re: Trigeminal neuralgia or atypical face pain
Post by: Nomad on June 09, 2018, 07:38:35 PM
I replied but it was removed or disappeared.

I developed atypical facial nerve pain involving the trigeminal nerve a good five years ago after dental work.

Title: Re: Trigeminal neuralgia or atypical face pain
Post by: happylife on June 09, 2018, 11:49:39 PM
Hi nomad

Do u have atypical face pain only? Or has it changed into trigeminal neuralgia?
Title: Re: Trigeminal neuralgia or atypical face pain
Post by: Nomad on June 12, 2018, 01:37:00 PM
Although at times it still can be severely painful and does involve the trigeminal nerve,
I would still think it would be classified as atypical.
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