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Sjogrens Topics => Living With Sjogren's => Topic started by: Carebear on January 19, 2018, 11:02:21 PM

Title: Medical cannabis extract for pain management
Post by: Carebear on January 19, 2018, 11:02:21 PM
Hello friends,

I am not trying to convince anyone to consider using medically prescribed cannabis.  I just wanted to share my experience with you.

Medical cannabis has been legal here for several years now, and after much research I decided it was worth trying in my particular case.  It took two years for me to make my appointment, primarily because I had to overcome my personal bias. 

I was prescribed two types of the oil extracts.  One is for bedtime to help with sleep and to manage the inflammation.  The other is for daytime use, for inflammation only.

Because I can be sensitive to medications, last night I began by using just the bedtime extract.  I know it's early days, however I slept very well and I felt far less pain all day today.  I am surprised by this.  As I said, it is far too soon to draw any conclusions but I feel encouraged.

Some side effects though, including the driest throat I have ever had in my life, and this disappeared shortly after waking up.  Also some lightheadedness that will probably settle down after a couple of weeks.

I thought it might be interesting to hear from others who are using a similar product or have tried it. 

Title: Re: Medical cannabis extract for pain management
Post by: Joe S. on January 20, 2018, 09:29:16 AM
I take one +CBD (oil) Softgels in the morning and one at night. This reduces the level of pain without adding to the dry mouth. 5mg CBDA/CBD. As my experience has shown that there is a difference in suppliers, the brand appears to be CV Sciences.

If I have a bad day I take an extra CBD. It is derived from 60mg of hemp hemp oil.
Title: Re: Medical cannabis extract for pain management
Post by: Carebear on January 20, 2018, 12:10:04 PM
That's all good information, Joe.  Thanks for sharing.

The oil I used last night has an equal ratio of THC and CBD, and the daytime oil is 100% CBD.  I am slowly adding each with the plan to decrease the opioid I am taking.

Have you tried blending it with a lotion, and just applying to your skin in the most affected area?

Title: Re: Medical cannabis extract for pain management
Post by: Joe S. on January 20, 2018, 04:27:44 PM
No. I have not tried it as a lotion. I have had green butter. I do not know how to explain it but it does have ground (powder) marijuana in it. Typically it is used for cooking. I find a short thin narrow slice of green butter on a slice of bread with jelly or peanut butter is easy to eat. I do not use it that often as I do not like being stoned for an hour.

It does help with PTSD, anxiety and depression better than any other thing that I have used. When used with CBT (Cognitive Behavior Therapy) the two work better together.
Title: Re: Medical cannabis extract for pain management
Post by: Sharon on January 22, 2018, 03:10:06 PM
The lotion idea is interesting Carebear.
Give it a try and let us know if it reduces visual swelling for you.
Title: Re: Medical cannabis extract for pain management
Post by: SjoDry on January 23, 2018, 05:09:00 AM
Carebear,

I have been researching CBD oil for awhile. I ordered a sample pack yesterday.
I found a knowledgeable forum on facebook which has everything you ever wanted to know about CBD oil; comparisons of brands; identification of scam CBD oil brands and dosage amounts.

I am hopeful that the combination of LDN & CBD oil will alleviate most of my pain. I am still, however, going to obtain my medical marijuana card in the coming weeks.

Take Care.
SjoDry
Title: Re: Medical cannabis extract for pain management
Post by: Judie P on January 23, 2018, 06:38:54 PM
I am in the State of California and can now purchase CBD.  A vendor came in today and talked about CBD and how it has helped her tremendously with her pain from a form of RA affecting the nerves.  She also highly recommends the cream.  One of our practitioners stated that she gave her father a good amount of CBD through his feeding tube as he was dying of cancer.  Before being placed on a feeding tube, he was able to take the capsules and allowed him to be lucid during the day and keep away from morphine.  The same practitioner stated that she has heard from so many people and other nurses that CBD works.

Now that I do not need a medical card, I plan to go to the natural food store to purchase some.  Since it does not carry the "high", I believe I will be able to use it and work.

Another product I used before I knew I had PSS was Mucuna.  It relaxed some of my muscles and allowed me more mobility.  It is used in India for Parkinson's patients.

Does anyone know if CBD is a problem with Effexor or Amlodipine?

Title: Re: Medical cannabis extract for pain management
Post by: SjoDry on January 24, 2018, 04:59:06 AM
Judie,

I joined a very knowledgeable group on CBD oil on Facebook.

The group is CBDoilusers Group. If you do a search to find them, then click to join group. They ask you a couple of questions, but it has a wealth of information about CBD oil, good ones, ones to stay away from, etc. I just ordered 2 different types this week.

Good luck.
SjoDry
Title: Re: Medical cannabis extract for pain management
Post by: Carolina on January 24, 2018, 07:17:44 AM
Dear Carebear,

Are you using CBD, or an extract containing THC, or both?

THC is not available here because we have NO medical marijuana available in North Carolina.

THC is very different fo CBD, I believe.

Would you clarify the difference for us?

Regards,  Elaine

PS  I do have access to Marijuana, but not in an oil form.   It is marvelous but not easy to 'dose' due to the form and method of use.
Title: Re: Medical cannabis extract for pain management
Post by: Judie P on January 24, 2018, 07:57:59 PM
SjoDry,

I just got a response from my PCP (main doctor) that I am okay to do CBD while using 37.5mg of Effexor (a day) and 5mg of Amlodipine (a day, blood pressure medicine).  I am going to try it.
Title: Re: Medical cannabis extract for pain management
Post by: Gorn on January 25, 2018, 02:21:29 PM
While visiting someone in Colorado, I tried a low-dose THC chewable. Not enough to get you high. There was no cbd in the chew, just thc.
I took one each evening I was there, and I have to say if felt quite good the entire time I was there.

Effect lasted for a few days after a got home, even though I wasn't taking it any more.
I would try it again but it is not legal here in New York, although there are rumblings about legalizing.
Title: Re: Medical cannabis extract for pain management
Post by: Carebear on January 26, 2018, 10:30:01 AM
Sorry for being silent for so long, friends.  Family stress and weather changes have hit my poor body hard this last week, and you all know how that goes.

To answer your question, Elaine, I have two different oils.  One oil extract that is CBD only.  And another is approximately 50/50 of THC and CBD for use a bedtime.  The CBD is supposed to work on inflammation and muscle spasms.  The THC/CBD mixture is for the pain and also with sleep.

I have been trying both oils, and have chosen to use the dropper method of placing the oil under the tongue.  Because I have widespread pain, it seems to be the best method of application for me.

It is still too soon to draw conclusions however i think the THC oil has caused me some added anxiety, so I am putting this one on hold for now.  The CBD oil is possibly reducing muscle pain so I will keep using it at very small doses.  It does appear to "enhance" the effects of the opioid I take however, and my plan is to eliminate this drug in the near future.  Provided things go well, that is.

Thank you for suggesting the Facebook group, SjoDry.  I will be checking this out. 

Title: Re: Medical cannabis extract for pain management
Post by: Judie P on January 26, 2018, 05:58:29 PM
Carolina,

Did you get your question answered?  Cannabidiol—CBD—is a cannabis compound that has significant medical benefits, but does not make people feel "stoned" and can actually counteract the psychoactivity of THC. It is an appealing option for patients looking for relief from inflammation, pain, anxiety, psychosis, seizures, spasms, and other conditions without disconcerting feelings of lethargy or dysphoria.  THC, or tetrahydrocannabinol, is the chemical compound in cannabis responsible for a euphoric high.

Title: Re: Medical cannabis extract for pain management
Post by: Judie P on January 27, 2018, 01:09:39 PM
seems there are some people concerned out there about the drug cartels.  First, I believe Carebear and Sjodry have taken the careful route as well as I will.  I have a Natural Life food store very near my place of business.  He has been in business for 15 years and we know him well.  He is not a dispensory nor does he sell the plant.  He is extremely knowledgeable on all herbs.  I will be purchasing CBC Hemp oil capsules and cream from him.  This is on the recommendation of 10 of my clients and customers who have only had results and no bad side effects.  Most of them have RA, Lupus or Sjogrens.  Only one of them purchases her plant product from a dispensory.  She says it helps her muscles relax but does nothing for the pain.  California allows you to go six plants at your home as of January 1.  I am not about to smoke anything nor do I want the high.

I plan on taking it very slow.  But if it works, I will be able to exercise by walking again.


Title: Re: Medical cannabis extract for pain management
Post by: Carebear on January 28, 2018, 10:23:04 PM
I live in Canada and I'm just now beginning to understand how our system works, and how it is different from other countries.  I'm no expert so keep that in mind as I try to explain how things work up here.

For us, medical cannabis in any form is legal. We must get a doctor's prescription, have paperwork submitted as required by Health Canada, and our physician resubmits the paperwork every 3 months (after our required appointment).  We cannot chose our cannabis producer.  The clinic determines the best strain, etc of product for our particular medical needs, then the producer works directly with the patient.

Health Canada regulates the amount that patients are permitted to purchase in a 30 day period, for example.  We cannot "give" any of our product to another person.

I am able to claim this as a medical expense.  And you can qualify for financial relief on the cost, if you are on disability for example.

We have about 75 licenced growers in the country, and I have heard the process to receive this license is rigorous and can take several years to obtain.  It is highly regulated.  Some produce dry cannabis only, while others produce oils as well.

There is no storefront.  We order via the internet or by phone, and it is delivered to your home.  The package is plain so neighbours won't be giving me the stink eye.  An adult must sign for the package, therefore it's not going to get into the hands of someone else.

I am not trying to convince anyone to consider using these products.  It took me years of investigation before I dared speak with a doctor.  I'm as straight laced as they come, I'm just saying...