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Sjogrens Topics => Living With Sjogren's => Topic started by: araminta on January 15, 2018, 01:16:40 PM

Title: Is it interstitial cystitis?
Post by: araminta on January 15, 2018, 01:16:40 PM
I first noticed this when I'd eaten chocolate or drunk some coffee - a pain and bloated feeling around the lower stomach/bladder area, usually lasting half an hour to an hour.   Quite unpleasant and making me want to sit still for a while.   I guessed maybe it was interstitial cystitis but it is not accompanied by any feeling of urgency or any urinary problems.   It sometimes happens now for no apparent reason, when I haven't been eating or drinking.
Title: Re: Is it interstitial cystitis?
Post by: jazzlover on January 15, 2018, 01:36:07 PM
Doesn't sound like it to me. Beware the coffee if you are having this reaction to it.
Title: Re: Is it interstitial cystitis?
Post by: Carolina on January 15, 2018, 03:23:35 PM
Dear araminta, I suggest that perhaps you just watch and wait.   Keep a diary, daily of your various sensations.

Certainly both chocolate and coffee are stimulants, but now you have the sensations even when you are not eating or drinking.

For what it is worth, you might as well go a day or two without coffee or Chocolate (I KNOW, that is insane), and see what happens. 

In the meantime, if more symptoms develop, even without the coffee and chocolate, you may want to see your gyn, primary care or other medical professional. 

This is true even if you didn't make it a whole day without coffee and chocolate. 

I think I might be able to do one substance, maybe for part of a day, but no way, giving up both at once.

Regards,  Elaine
Title: Re: Is it interstitial cystitis?
Post by: araminta on January 16, 2018, 04:13:45 AM
Thank you for your replies.   I actually gave up coffee three months ago, and hardly ever eat chocolate now, because of these symptoms.   So I'm not sure what's causing them now.   Yes I'll just hang on and see how things go, maybe see a doctor if they continue.