I have decided that when I die, I want to donate my body for Sjogrens Syndrome Research.
The only company that I can find that has Sjogen's Syndrome listed in the US is BioGift, and they do not take bodies from the state of North Carolina where I reside.
Johns Hopkins' has the Jerome L. Greene Sjogren's Syndrome Center, and, I have sent an e-mail to them as well as to the Sjogrens Syndrome Founcation.
Thank you for any help that you can provide me.
I think this is a great idea. Hopefully I'm a good way off but I think I'd like to do the same when I die. I'm in Scotland, UK though so haven't looked into this yet and can't give you any advice at all.
Johns Hopkins doesn't accept outside body donations for any research. I asked them many years ago.
Quote from: anita on October 01, 2017, 08:24:14 PM
Johns Hopkins doesn't accept outside body donations for any research. I asked them many years ago.
Thank you for letting me know. I may have to donate my body without it going to Sjogren's research. It would still do good things such as looking for a cure for cancer, Alzheimer's, osteoporosis or helping with medical training etc.
Hi :)
I'm another body donor - but not specified for SjS. I carry a 'body donation card' in my purse.
Take care - Scottie :)
I've never really wanted to do this .. and I won't, but something a nurse friend told me a few weeks ago confirmed this for me.
She said she went to a class once where there were about 20 HEADS of people on tables. She was NOT prepared for that.
No thanks.
Once I'm dead I don't care. They have to practice on something! :)
I dont see SS listed On Bio's website? was just looking into this..funny!