Hello everyone. I am 41 and I found this site last year because I got my Sjogren`s diagnosis in a very sad way.
I had a dry eye from 2009 without diagnosis. I got pregnant last year, everything was OK but in 20th week an atrioventricular block was detected in the fetus with severe bradicardia, things went bad and I lost my beloved girl 4 weeks later. This is so cruel.
So I discovered that I had a positive Anti Ro (what is that provokes fibrosis in the fetal heart electric system) in that sad way.
I visited several doctors and although we were scared we tried again. It has been a very complex and high risk pregnancy, I have received Hydroxychloroquine, plasmaferesis every 2-3 weeks in the second trimester and high dose immunoglobulins. I was monitored with fetal echocardiogram every 2-3 weeks. It has been very stressing.
After these difficult months, I delivered a healthy girl. It is impossible to know due to the rarity of these condition if she is healthy because statistics favoured us, or because of the medical treatment.
In any case, we are happy.
Thank you so much because last year when I discovered my disease I felt I was not alone and I have learned so much.
Up to now, I don't have serious symptoms, but now I am prepared and warned for the future.
Very happy to hear that after your heartache....you now have a precious baby girl.
Hope all remains well well for you and your wee one.
Shelly
Oh my goodness, so sorry for your loss........ so very happy about your miracle baby girl...
Big Hug ,
Katie
What an amazing hi-tech story. I am so happy to hear that you had this baby. Take really good care of yourself now cause you have been through so much. Rest when you can and congratulations again to you and your husband. Irish
congrats.
That's wonderful! Congratulations.
So wonderful to know that your story is happy in the end. I know that the beautiful baby you lost will be with you always ❤️
Congratulations! Great news!
Emics,
Congratulations on having your precious new little daughter!
Cheryl
I am sorry you lost your first baby girl, and I am so happy to hear you now have another baby girl. Praying for your good health and for your sweet baby girl.
susanep