Hello,
32/f diagnosed with Sjogrens a few years ago. I also just saw an immunologist in order to figure out an "unspecified hypogamma... big word word.. Ha. Basically an immune system deficiency. On top of all that, I started to notice a light brown discoloration on both of my ankles along with cold feet and heavy tight feeling in legs when I walk. Better with rest. Just saw new primary care and she mentioned tje possibility of vasculitis after listening to my symptoms and doing exam. I am going for ultrasound and to see vascular specialist. I keep seeing vasculitis as a rash like purple or pink which I don't have but I assume Google isn't the best place to go for more info. Has anyone else has these symptoms? I'm trying so hard to not freak out and she reassure me would figure this out but i just feel so overwhelmed. Any words for me? Thanks
You may want to look into EDS .. It has a vascular component to it.
That's all I know .. Ehlers Dahlos Syndrome