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Sjogrens Topics => Living With Sjogren's => Topic started by: SSPNKD on March 27, 2017, 06:28:48 PM

Title: Anyone have dystonia?
Post by: SSPNKD on March 27, 2017, 06:28:48 PM
I'm going through the diagnosis processes right now. I've been diagnosed with a form of dystonia and have been living with it for the last 12 years. I've read online that a small percentage of people with shortens have dystonia as a result. Curious to connect with someone in similar situation
Title: Re: Anyone have dystonia?
Post by: wendyoh on March 28, 2017, 10:39:53 AM
yes I think so a mild case maybe but have not been formally diagnosed. I was initially diagnosed with fibromyalgia and Chronic Fatigue and cervical spine problems years ago after some medical interventions gone wrong.  I developed intermittent torticollis (self diagnosis) that I can usually control, happens more if relaxing, and also my eyelids have drive to blink a lot which again I can usually control if with people but its like an itch want to scratch.