Hi guys. As a SS sufferer, I've done lots of research and have found very little support and info on living with our illness and raising children (besides this group). Because of this, I decided to start including my struggles with SS on my YouTube channel. I am a YouTube mom vlogger and I recently started talking more about my illness. I was always hesitant to bring attention to my struggles, but the few times I did mention it, I got a huge positive response. Apparently there are many people out there like us, looking to others for support and inspiration. It turns out that my vlogs are helping to fill that void. I actually recently started a Sjogren's Syndrome Series that has been successful so far and I just wanted to share with you guys.
If you are interested, here is my channel:
https://www.youtube.com/channel/UCmrj6ilyMI5G2hnraXRWpEQ
...or you can just look up my channel name on YouTube: Surviving As Mom
I hope you like it and it helps you too! Thanks for listening.
Good for you. That is going to take a lot of your time but you are doing a service for a lot of people out there. Good luck. Irish
Cute family! I feel for you with dealing with Sjogren's and four boys. No days off! I'm a teacher and I gaurd my Collapsedays (i.e. Saturdays) so I can get through the week. I have read some other blogs by moms with chronic illnesses. You're not alone!