Sjogrens World Forums

Options are from 1 to 10 (10 is most severe).

Hard to know how to answer, exactly. Might be a bit easier if there were some descriptions.  I selected 10 because I can't work, have 1-2 hours a day when I can focus on things.   But maybe that's a 9, because I'm not in bed all day.

I tend to over think these things!

I tend to agree with warm waters as I have had a hard time for many months but have no clue what the fatigue is from. It is worse, but it could be from one of my other 4 autoimmune diseases. Just don't know what number to pick but will go see what I can do. Irish

It's hard to say since my fatigue can vary from day to day. Overall 8/10 for me. It's really changed what I am able to do. For me now... getting up and being able to be mobile outside or to do chores... or even to go to work is a really good day for me.

I would have to do two polls, one for professional and one for personal effects, since, when I was working, I pushed through the professional obligations at the expense of my personal life, and when I did make more effort in my personal life (honourinng commitments to attend family functions, etc) my professional life suffered.

Now, as a retiree, I can focus on personal life, but the effect of fatigue is still in the 7-10 range.

For me, fatigue has been a 10 in terms of affecting my professional and personal life.

I had to quit working due to fatigue. In addition, as time went by, even my personal life became nothing more than existing,. It was a major effort to do anything, even heat up soup or make a sandwich.

I say "was" because now I am getting Rituximab infusions every 24 weeks (2 infusions, 2 weeks apart, every 24 weeks) and my life has vastly improved. I am not back to my normal pre-Sjogren's level of functioning or my pre-Sjogren's energy level, but I am vastly improved and I now have a life. I have energy now. I can function, participate in activities, and go places. Thanks to Rituximab, I now have a life.

Linda, You are so right. I would push through those days at work and by the time I got home I had to nap for a couple of hours. I was so thankful this didn't hit me until my kids were mostly grown. My hubby wasn't very happy about it until he became very ill and almost died and then he quickly caught on to what chronic illness does to a persons work life, social lifer, personal life., etc. Sort of does a job on us all and it is really a challenge to keep all the balls in the air. Irish

I knew without a doubt my fatigue is a 10. It is probably the lupus and sjogren's in my case, but to me it's what I live with 24/7.

susanep

I'm going to have to think about this.
Some days I'm a 9 or 10
Some days it's not too bad.
If I'm busy, active for a few days in a row, have pain, stress, a cold...etc. all these things can cause havoc and the next thing I know I have very bad fatigue for several days.
This unpredictability leading to bad fatigue in and of itself causes havoc with any type of job. Coupled with pain issues...it's over the top.

I have many reasons to be fatigued. Not sure it's from Sjogren's or not.

I voted ten, because I couldn't handle work and even now I mostly just sit on my recliner under my laptop. Yay, what a glorious life I have! However, I too can't say if the fatigue is "just" from Sjs or something else, like Hashimoto, fibromyalgia, depression, screwed up sleep or something else.


At times, like today, I could vote for fatique of level 14 or more :P

I'm retired now but I had to cut down  to part time hours latterly when I was at work.  I find  it interferes with social life more.