So happy to receive news from the Sjogren's Foundation about a clinical trial for a new drug for SjS that is being run in my area. I meet with the doc/researcher next week to learn what drug they are testing, the potential benefits of the drug, and whether or not I qualify to participate in the trial.
Fingers crossed because my nervous system is being attacked by this disease. I am taking an increasing amount of meds to handle the nerve issues (some of which are also from spinal arthritis) and would love to find a systemic treatment that might halt this seeming disease progression.
I'll keep my fingers crossed for you!
I hope you qualify to participate in the trial and are interested in doing so after learning more about it!
Good luck with the clinical trial. I have been tested by the Oklahoma Medical Research project for Sjogren's. The ask me to take part is a clinical trial for a new drug but I had to decline because I have stage 3 kidneys disease. I can only test things like eye drops or creams or ointments if any are developed.
Hope you qualify!
Keep us posted and let us know which drug it turns out to be.