Hi ya'll.
So a question regarding kidney involvement, how do I catch/diagnose it?
Been feeling a dull ache in my low right back and I was wondering if I had any involvement, maybe a stone.
I know the full metabolic panel is the most essential and basic thing. What about other things like Renal Tubular Acidosis? What do I ask to check that for instance? I know Potassium blood level and urine pH are indicators, but I recall there needs to be more to go on.
I'd recommend scheduling an appointment with a nephrologist or urologist and just asking them. They'd probably get an xray to look for stones, a urine culture for infection, and urine testing for kidney function. I recently did a 48 hour sample through my urologist and Litholink (which also includes a blood draw), and it turns out aside from stones left over from my hyperparathyroid issue, my kidneys are functioning optimally.
Quote from: Pete0211 on January 01, 2017, 09:58:36 AM
I'd recommend scheduling an appointment with a nephrologist or urologist and just asking them. They'd probably get an xray to look for stones, a urine culture for infection, and urine testing for kidney function. I recently did a 48 hour sample through my urologist and Litholink (which also includes a blood draw), and it turns out aside from stones left over from my hyperparathyroid issue, my kidneys are functioning optimally.
Got it. Was it secondary hyperparathyroidism? Or adenomas?
It was adenoma - a single gland that grew to about 1 inch x 1/2 inch. I probably had the disease for 10-15 years before it was diagnosed in 2015, and had it removed about three weeks after diagnosis (had a 15.8 calcium level and a parathyroid hormone level of 2066).
Quote from: Pete0211 on January 02, 2017, 06:37:55 PM
It was adenoma - a single gland that grew to about 1 inch x 1/2 inch. I probably had the disease for 10-15 years before it was diagnosed in 2015, and had it removed about three weeks after diagnosis (had a 15.8 calcium level and a parathyroid hormone level of 2066).
Wow thats crazy high. Most PTH levels are between 10-55 pg/mL, unless you're using a different measurement.
No, it's the same measure. That's what makes them think (along with other medical history) that I had the disease, undiagnosed) for almost 15 years.
Even the docs (at a parathyroid center that does about 70 surgeries a week) told me that they rarely see numbers that high, because it tends to kill before that.
Quote from: Pete0211 on January 03, 2017, 04:46:59 AM
No, it's the same measure. That's what makes them think (along with other medical history) that I had the disease, undiagnosed) for almost 15 years.
Even the docs (at a parathyroid center that does about 70 surgeries a week) told me that they rarely see numbers that high, because it tends to kill before that.
Aren't the tumors usually benign?
The tumor themselves are, yes. The disease, and the elevated calcium levels are deadly over time.