So my dearest Sjogren's Angels,
I began the initial dose of Depakote last night. And immediate felt some major relief from the stinging, burning, stabbing pain and itching of my Small Fiber Neuropathy.
I haven't had any Myoclonic Seizures in the 5 days prior to beginning the Depakote, which is on label for myoclonus, so generally I would have one soon (the longest time between seizures is usually 4 or 5 days, and then I have a cluster of seizures sometimes \ several a day). So only time will show if the seizures have also stopped.
It was worth going through the discontinuance of the Gabapentin, since it wasn't helping my Seizures (in fact I thought Gabapentin might be causing the seizures).
So I am feeling less misery. However, I still have some itching and burning, and I'm such a baby that I want it ALL GONE. However, I will take this trial month to see what happens.
It is so great that I have a Neurology team (me, my Neurologist and his Nurse Practitioner, a brilliant young woman) and we are working carefully on these neurological problems which have complicated my life so completely.
anyway, I'm not 'all better' and never will be, but I take what I can get and will keep on keeping on.
Hugs, Elaine
Caroline, So glad to hear that you got started on the Depakote. Hopefully, this will be a good Christmas present for you and control the seizures and the pain. Hang in there cause you can never tell when a med is going to make life better. Irish
Elaine,
So glad they started you on something to control your symptoms and help your seizures. It is so good to have hope.
Happy Holidays!🎄
Kathy
Great news Elaine! I hope he keeps getting better!!!!
Hello Carolina, AMEN that you are experiencing some relief. What a gift, maybe better than any holiday gift?!
Since you have a good team, did they also check your B6 levels?
I hope you have continued improvement!