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Sjogrens Topics => Living With Sjogren's => Topic started by: Lotus1 on December 07, 2016, 03:17:53 AM

Title: Cyclosporia (restasis) eye drops
Post by: Lotus1 on December 07, 2016, 03:17:53 AM
Hello everyone

If anyone has had success with restasis eye drops when it comes to working on the computer in the office I'd love to hear from you.

Lotus1

Title: Re: Cyclosporia (restasis) eye drops
Post by: Navigator on December 07, 2016, 12:55:19 PM
Restasis is a drug taken twice a day ideally 12 hours apart. I take it in the am and before bed. I have no problem working on the computer as long as I take my normal doses.
Title: Re: Cyclosporia (restasis) eye drops
Post by: Lotus1 on December 07, 2016, 01:11:18 PM
Navigator

I work in an air conditioned, fluorescent light office on a computer or for 7.5 hours a day & am wondering if restasis would help my eyes.
Is this your situation?

Have a referral from rheumy to an opthalmologist to ask re restasis as she didn't think it's available in Australia.
A process through medicare to get it into Australia she thinks.
Rheumy may be behind times.

I'll see what opthalmologist says also.

Lotus1



Title: Re: Cyclosporia (restasis) eye drops
Post by: Jasper on December 07, 2016, 01:14:04 PM
As long as I use Restasis twice a day (morning and bedtime) my eyes are fine. I am on the computer several hours a day.

Before Restasis, my eyes were a major problem.
Title: Re: Cyclosporia (restasis) eye drops
Post by: Wal on December 07, 2016, 03:16:06 PM
I haven't tried Restasis but I may ask for it at my appt tomorrow. The Xiidra hasn't really made a difference.
Title: Re: Cyclosporia (restasis) eye drops
Post by: ohiolady on December 07, 2016, 08:41:45 PM
Restasis has helped me a lot.  My eyes are 0 and 2 on the Schirmer test.  I was miserable before Restasis kicked in.

I just asked my doctor about Xiidra and he said it is horrible.  His staff tried it and all had a bad taste in their mouth.

I do also have punctual plugs.

Anna
Title: Re: Cyclosporia (restasis) eye drops
Post by: lorigacc on December 08, 2016, 06:45:17 AM
I also work in an office and am on the computer all day, everyday.  I have been using Restasis for a year now, and still have a problem with it burning my eyes. I have also become sensitive to light (more so after I put the drops in).  I use it before bed because I can close my eyes and fall asleep and not feel the effects. I have had to discontinue the daytime dose, because I can't function with the effects.  My dry eyes (and my dry mouth) are getting worse.  Time for another trip to the eye doctor.  I am really worried about my corneas. :(
Title: Re: Cyclosporia (restasis) eye drops
Post by: lorigacc on December 09, 2016, 10:20:49 AM
It is the Restasis eye drops I use.  I am hoping that this extreme dryness is just a flare and passes, but I will make the appointment with the doctor soon.....as I do value my eyesight.
Title: Re: Cyclosporia (restasis) eye drops
Post by: Lotus1 on December 09, 2016, 02:16:44 PM
Thanks for your replies.

It seems restasis isn't that wonderful.

I'll keep searching while applying for the disability pension as I'm over these dry eyes/mouth.

Lotus1