Do anyone's symptoms suddenly worsen after physical activity?
Mine do after nearly any physical activity, no matter how light.
It causes a flare in eye dryness, joint pain, fatigue and dizzyness.
I've never heard of this being a symptom of autoimmune disease... ???
Often, it makes me very tired and achy, even a little physical activity. I don't think it increases the dryness though. I am thinking of joining a gym to see if I can lose some weight and increase my strength. Going to give this a try as I've gained so much weight. I'll let you know how it goes. I am going to have to start out very slow. If nothing else, I feel like I need to increase my strength. If this doesn't work, I swear I am considering getting some pharmaceutical help.
I have such exercise intolerance that the idea of joining a gym
is beyond me, but I hope it works out for you Deb! A brave idea.
What pharmaceutical help even exists for this situation?
Look up ME/CFS (chronic fatigue syndrome). Excessive excercise intolerance is one symptom for that. Also happens in Fibromyalgia, but not as badly as in ME/CFS.
That's not uncommon in people with lupus.
I find that exercise actually helps reduce my symptoms, as long as I don't overdo things. It's one reason that I resisted an initial diagnosis of CFS/ME. I try to exercise daily as it helps me generally feel better. I find that sitting in one place for several hours tends to increase my aches and pains.
I would echo eija - your exercise intolerance sounds more like CFS/ME and/or fibromyalgia. Still, we are all different and experience SS in different ways, so it could be related.
Thanks guys,
Exercise intolerance is also a symptom of Mast Cell Disorder,
an additional diagnosis I'm pursuing.
I just don't know which symptoms are coming from which condition anymore.