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Sjogrens Topics => Living With Sjogren's => Topic started by: Deb 27 on September 10, 2016, 09:08:11 AM

Title: Caffeine, beverages and pain
Post by: Deb 27 on September 10, 2016, 09:08:11 AM
With this stupid disease, I've developed so many food intolerances and such. Now, it seems that I am reacting to something in drinks, I don't know if it is the caffeine or some other chemical but I am really peeved about it. I LOVE my tea. Gonna try some decaf to see if that might be it. Herbal teas are ok but I do love the regular black tea. I've read that tea is fermented, hence it might have allergens in it. I also seem to start aching when I drink Coke Life. It's got Stevia and a little sugar in it. I suspect the chemicals. Almost all bottled drinks have phosphoric acid. It can't be good for us but darn, it sure tastes good. Of course, I don't want to feel bad either, so I have to abstain. Does anybody else have this issue? I drink plenty of water during the day.  This is not fair. 
Title: Re: Caffeine, beverages and pain
Post by: Joe S. on September 10, 2016, 10:11:46 AM
My Mad Science kids loved it when we mixed tang, baking soda, anc citric acid with water. Orange pop. Kool aid may be an option also.
Title: Re: Caffeine, beverages and pain
Post by: SabbraCadabra on September 11, 2016, 09:23:11 AM
Natural caffeine in tea and coffee never really bothers me, but the kind in soda, especially fountain pops, always makes me feel sick for some reason.

Probably not the same thing you're experiencing, though.
Title: Re: Caffeine, beverages and pain
Post by: ppk on September 11, 2016, 11:26:09 AM
Quote from: SabbraCadabra on September 11, 2016, 09:23:11 AM
Natural caffeine in tea and coffee never really bothers me, but the kind in soda, especially fountain pops, always makes me feel sick for some reason.

Probably not the same thing you're experiencing, though.

There are other things that may be bothering you in soda, like high-fructose corn syrup. A huge dose of simple carbs can result in overgrowth of pathogenic bacteria, and also spike insulin levels, leading you to feel very tired when your blood sugar inevitably crashes.
Title: Re: Caffeine, beverages and pain
Post by: Nomad on September 11, 2016, 12:39:43 PM
I'm not absolutely sure, but I think soda was bothering my bladder and I just didn't seem to feel well while drinking it. So, at some point I gave it up. I do drink coffee. If I over do it, I will sometimes take over the counter Prelief. I also try to drink a lot of water every day. I really do like coffee (probably not ideal) But, yes, I found soda to be somewhat problematic for me health wise.
Title: Re: Caffeine, beverages and pain
Post by: SabbraCadabra on September 12, 2016, 06:08:14 AM
Quote from: ppk on September 11, 2016, 11:26:09 AM
There are other things that may be bothering you in soda, like high-fructose corn syrup. A huge dose of simple carbs can result in overgrowth of pathogenic bacteria, and also spike insulin levels, leading you to feel very tired when your blood sugar inevitably crashes.

I don't think it's HFCS, because drinks without caffeine don't bother me (with small exceptions, like fountain Sprite).

I don't really know how to explain it, it just kind of makes me woozy and sick to my stomach...I guess it could be a reflux thing, but it doesn't feel like it. I don't get the same effect from coffee with sugar in it.

I just assume it has something to do with the way they process the caffeine, versus drinks that naturally contain it (and are not processed foods!)
Title: Re: Caffeine, beverages and pain
Post by: Maria3667 on September 12, 2016, 09:27:59 AM
Hi Deb,

It's probably the caffeine in Coke Life. Contains 28mg which is quite a high amount. I also suffer from weird aches (even in my hips) when I consume high caffeine drinks. Best alternative is green tea, especially cranberry green tea (even though it contains some caffeine too). I know it's a hassle to sort out, but the pain and dryness is not worth the short lived pleasure...

Good luck!
Title: Re: Caffeine, beverages and pain
Post by: SjoGirl on September 12, 2016, 02:39:32 PM
I stopped drinking soda years ago, taste like poison to me now, which I suspect is the chemicals.

I too developed tons of food intolerances after SjS.

With regard to tea, if you have Trader Joe's nearby they have a great Irish Breakfast decaf tea that is robust. You can also order many types of tea through Amazon. I order some Harney and Sons teas because you can get them in 50 ct bags or boxes at a much lower price than in a retail store.

I sometimes mix caf and decaf and have been able to tolerate that.
Title: Re: Caffeine, beverages and pain
Post by: jazzlover on September 12, 2016, 06:40:41 PM
I have MANY food intolerances and can no longer drink tea or juice or anything. I am stuck with water.

You might want to look at "salicylates" in foods.
Title: Re: Caffeine, beverages and pain
Post by: Deb 27 on September 12, 2016, 07:29:11 PM
Yea, the Coke Life doesn't have a ton of sugar, it's semi- diet. It's not good for me, but sometimes I need a little lift.  I am starting to have problems with so many foods and chemicals, the list is growing and I run out of things to eat and drink. It's probably for the best.                                                                                                                                                                 It's been a rough few weeks.