We created a petition seeking awareness that we'd ideally to lead to funding for all those pipeline eye drops (for dryness and corneal neuralgia) that have yet to come to market due to financial constraints. It's really about action more than simple awareness. I was told I cannot post the link and was asked that people send me an email if you are interested in signing. I know many won't do the extra step, but please know how important this is for all of us.
Clinical trials are very expensive and right now many of the pipeline drops are in various stages of the trials. But we don't have our lives to wait. This includes drops targeted towards Sjogren's dry eyes as well. These companies are not big like Allergan to be able to easily put out something like Restasis which worked in only 15% of patients during clinical trials. Meanwhile the smaller companies with better clinical trial results are stuck.
It will take just one moment to sign. We need as many signatures as possible. Please ask your friends and family to sign as well. The more people that sign, the better the chances of getting noticed. Thank you all for your support and please message me so I can send you the link, thank you!
Bumping this thread. I see 42 views but only a couple people asked for the petition link.
In the 10 years I have suffered with Sjogrens type symptoms, I have seen nothing come out to help us. There is power in numbers. I really hope that we can get these pipeline eye drops to consumers quicker with better results from the petition. I have a list of the pipeline drops if anyone is interested. As of right now we have Restasis which is only for aqueous tear deficiency, yet 87% of dry eye patients suffer with meiboian gland dysfucntion. I have both, plus corneal neuralgia, plus corneal erosions. Lifitgrast/Xiidra most of us cannot access yet but my understanding is that it too is for ATD only. We need more options than that and we deserve better.
I can't be here much due to computer worsening my eyes. I really wish I could just post the link here. I will try to check in when/if someone wants to sign this petition. Thank you.
> Lifitgrast/Xiidra most of us cannot access yet but my understanding is that it too is for ATD only.
What does this mean?
Lifitgrast/Xiidra FDA approves new medication for dry eye disease July 2016
http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm510720.htm
I have no idea what a pipeline eye drop is or why it would be important. So what are you talking about?
Quote from: Ohiocat on August 23, 2016, 04:38:32 PM
I have no idea what a pipeline eye drop is or why it would be important. So what are you talking about?
Rebamipide: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4456696/
Diquafosol: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3664386/
ML7: http://www.neuroptis.com/Biotech/Press.html
SYL1001: http://www.sylentis.com/?/108-sylentis-reports-positive-pha
Lacritin: http://www.ncbi.nlm.nih.gov/gene/90070
Lubricin: http://lubris.net/dry-eye/
Kineret: http://www.schepens.harvard.edu/news/news/dana-dry-eye.html
NGF0213: http://www.dompetrials.com/clinicaltrials/an-open-label-study-evaluating-safety-and-efficacy-of-recombinant-104
rhNGF: http://www.dompe.com/Ophthalmology/
KPI-121: http://kalarx.com/pipeline/pipeline-detail/
Tavilermide: http://www.mimetogen.com/
Lifitegrast: https://www.shire.com/research-and-development/pipeline
Topical Statin: http://sydney.edu.au/cdip/opportunities/pharmaceuticals/14447.shtml
RGN-259: http://www.oraclinical.com/articles/rgn-259-confirms-efficacy-signs-and-symptoms-dry-eye
Amniotic Membrane Extract: http://www.healio.com/ophthalmology/cornea-external-disease/news/print/ocular-surgery-news-europe-edition/%7B11e2d0b2-2d70-40e2-9fc8-ca63b47154b2%7D/amniotic-membrane-extract-shows-promise-in-treatment-of-corneal-epithelial-defects
Platelet Rich Plasma: http://www.healio.com/optometry/cornea-external-disease/news/print/primary-care-optometry-news/%7B41d6493c-4937-4d3e-93ee-efbf4a1a96de%7D/platelet-rich-plasma-successfully-treats-dry-eye
Why are they important? Because what's currently available does not work for the most advanced most severe and painful dry eyes. Patients in pain understand as they are the most likely to research to try to find relief.