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Sjogrens Topics => Living With Sjogren's => Topic started by: Navigator on July 20, 2016, 02:06:11 PM

Title: Fainting
Post by: Navigator on July 20, 2016, 02:06:11 PM
I seem to be having close to fainting episodes more frequently.   Standing up from a crouch, walking more than a mile or so, even just getting up from driving the car (especially in hot weather) can all bring on a ?spell?.  I now walk with my cell phone in case I have to call my husband to pick me up.   Is this common????

Historically I have had low blood pressure although at my last doctor visit it was actually higher than I have ever seen. My doctor was not impressed when I said this was unusual.  I am usually 110/60 or so.  It was a 130 or so which I found surprising.

I don?t think I am dehydrated.  I am afraid of collapsing at the side of the road.
Title: Re: Fainting
Post by: Carebear on July 20, 2016, 02:40:48 PM
Hi Navigator,

I too have the near fainting, weak-like experience especially when the temperature is above 20 Celsius.  Although my blood pressure has often been low in passed years, it is perfectly normal now.  I think I am sufficiently hydrated as well.

I don't sweat though.  This may be my cause, or so I am guessing.  The other day I felt so awful that I had to lie down in the grass while I watched my granddaughters play, fearful I may pass out.

I guess I am no help really, but at least you know you have company.
Title: Re: Fainting
Post by: Navigator on July 20, 2016, 03:26:50 PM
It is good to know I am not alone.  Of all the things that SJS has done this has had the most visible impact. I hide the rest from others...this ...I am reluctant to participate in things where I might just keel over.
Title: Re: Fainting
Post by: Carolina on July 20, 2016, 03:52:19 PM
Dear Navigator,

I often feel dizzy and feel faint when I stand up.  I don't do anything outside in the heat and can't even walk a block, so I can't comment on that.

I've been tested for POTS and other blood pressure/heart related conditions and I don't have them.

It may be related in part to all the medications I take, that's true.  But I think it is just one of those things.

I have to move very carefully, but that's never been my nature, so it is hard for me.

Keep us posted, Navigator.

Hugs,  Elaine

Title: Re: Fainting
Post by: Navigator on July 20, 2016, 03:54:32 PM
I am only 62 and hope that someday I will have grandchildren.  Of all the things that I have had to accommodate this fainting is the most visible.
Title: Re: Fainting
Post by: JoanElizabeth on July 20, 2016, 07:05:07 PM
That definitely sounds like POTS/autonomic Neuropathy. The first steps to treat it are to increase your salt and fluids intake. Compression stockings can also help but I personally can't stand them. There are some meds to treat it as well if all else fails