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Sjogrens Topics => Living Life In Spite of Sjogren's => Topic started by: angeldancer on April 30, 2016, 12:25:22 AM

Title: Middle of the night thinking woes
Post by: angeldancer on April 30, 2016, 12:25:22 AM
Its the middle of the night and I need to write to get my head clear so I can get a little sleep.  As much as I would like to have a simple life where I just relax, drink tea, and laugh at silly jokes I know my life could never be that easy.  Having medical strife and then dealing with a son that has a disability takes a major toll on me.

I pray, I cry, but the real matter is my son although the awesome worker and talent he is will not live a life that is functional enough to not have help.  People will continue to use him and I won't find out until later when he just breaks down.  He says he doesn't want to tell me because he doesn't want me upset but my reality is I say a prayer for him every day knowing that someone is going to figure out that he is just wanting to make friends even if it means giving his whole self away.

I am going to take a sleeping pill now but my tomorrow will consist of trying to find his wallet.  Trying to get a new work ID and trying to put a freeze on his credit report because someone talked him into handing over his social security number. 

My daughter just says he will learn his lesson.  He is autistic...he won't learn his lesson because that is not where he is in understanding.  Ugh!  My pain today settled down from a 10 to a 5 so I am very happy about that and that will allow for me to get through tomorrow's woes and business to push through the fatigue. I guess that means I'm on break from doing nothing again.  Haha!  I better laugh at this or it will take me down.  I love my son and pray no harm comes to him ever.
Title: Re: Middle of the night thinking woes
Post by: Joe S. on April 30, 2016, 06:13:14 AM
(((( Hugs ))))
Title: Re: Middle of the night thinking woes
Post by: irish on May 03, 2016, 03:58:17 AM
More hugs from me. This is such a worrisome thing for a parent. We all have kids who have some character flaws that lead them to do things that aren't always in their best interest and cause us grief.

However, the dilemma of parents with autistic children is a different story. Is there any one that can help you and him with the learning process or some tricks to help put his brain on alert to things that may be unsafe for him. It is a hard row to hoe for you and I will keep you and him in my prayers. Hugs. Irish
Title: Re: Middle of the night thinking woes
Post by: angeldancer on May 03, 2016, 10:19:32 AM
Thank you Irish and Joe.  You guys know my plight with him.  I think God purposely made him a nice guy but oh boy it can get him in some dilemmas.

Peace to you al
angeldancer
Title: Re: Middle of the night thinking woes
Post by: SjoDry on May 03, 2016, 11:37:18 AM
Aww, Angel Dancer..I am sorry.

It is so hard to watch and worry over our kids. I understand your concern. My son is L.D. & ADHD. I was obsessively worried that he would be taken advantage of when he was younger. He was timid & shy & I even monitored his email in his very younger years, because I was positive that some internet perv would pursue him.

But a crazy thing happened. He grew up & found the right fit for his life. He joined the Marines. The Marines were a great fit for Jon and he excelled. My little timid son first of all...made it through boot camp. He then did great things in the Marines. Next he challenged himself to try out for a very challenging (very few pass) Marine Security Guard Program and was accepted. He went on to excel through that program & be chosen as a Marine Security Guard. He was stationed at the Embassy in Rome & spent a year guarding John Kerry, the Pope,national documents & dignitaries.

As I write this, he is now stationed in Lahore Pakistan & is shot at every day. He was 7 miles from the explosion on Easter which killed many people. He will be there until Sept. of 2017.

My point is that he grew up and now it is up to a higher power to keep him safe. Of course I still pray & worry...but I no longer have to worry about my timid little guy that I was sure was going to be taken advantage of. God will protect him.

Stay Strong Mom!

Take Care.
SjoDry
Title: Re: Middle of the night thinking woes
Post by: irish on May 03, 2016, 12:42:53 PM
The good thing is that our kids, with all their highs and lows in personality traits, do all have something in which they excel. The problem is that it is really hard to find what those traits are in which they will excel.

I do think that guidance from their exhausted parents is so important along with support of friends and other relatives plus lots of love, support and prayers from everyone in their lives. It often doesn't show up until they get a little older and that is really hard on the parents, etc. Every once in a while some little thing gives us hope and relief as they go through life.

The goal as parents is to know that when we die we have done all we could to help---even though it exhausts us and drives us nuts at times. Only a mother's and father's love.....................Good luck. all. Irish
Title: Re: Middle of the night thinking woes
Post by: angeldancer on May 03, 2016, 03:33:46 PM
Irish and Sjodry...such words of wisdom.  Leaning on the lord to keep us grounded in this journey.  My son is so understanding when it comes to my daily struggles so I try to have patience with his.  Its a long journey for us all and we need faith love and direction to maneuver through it all.  I love your wisdom.

Thanks
angeldancer