Sjogrens World Forums

Sjogrens Topics => Living Life In Spite of Sjogren's => Topic started by: sass on April 06, 2016, 04:50:27 PM

Title: It's been a while...Hi from Sass
Post by: sass on April 06, 2016, 04:50:27 PM
Just wanted to check in with everyone.  I have not been around it quite some time.  Still hanging in there...in spite of a lot of new things.  How many of you are on IVIG infusions?  Or have multiple muscle and nerve diseases?  They have added a bunch to my ongoing list.  Well, hoping someone may remember me and that all of you are doing well.
~Sass~  <3
Title: Re: It's been a while...Hi from Sass
Post by: Sleepy In Seattle on April 06, 2016, 07:06:45 PM
Nice to hear from you...welcome back!!!! I hope you are doing well, despite your new diagnoses/treatments.  :)
Title: Re: It's been a while...Hi from Sass
Post by: Joe S. on April 06, 2016, 08:02:45 PM
Welcome back. I hope you are managing well.
Title: Re: It's been a while...Hi from Sass
Post by: SjoDry on April 08, 2016, 09:39:30 AM
Hey Sass.

Welcome Back. I am on Sub-Q infusions every other weekend. Mine are for CVID, a severe immune deficiency. Others on the site here, are having infusions for Neuropathy.

Another day, another diagnosis, huh. Maddening.

Hope you are up to sticking around.
Take Care.

SjoDry
Title: Re: It's been a while...Hi from Sass
Post by: irish on April 08, 2016, 05:40:19 PM
Hi Sass, It has been a long time. I have forgotten what your ailments are but know they were many and bothersome. I am still on my IVIG 80 grams once a month going on 10 years. Also just found out that besides my 4 autoimmune diseases and the severely low t-cells I also have a low IgG level. I don't know why I didn't pick up on that earlier. We just keep on adding diagnoses to our list, don't we. Take care and hope things are going well. Irish
Title: Re: It's been a while...Hi from Sass
Post by: CMNK12 on April 16, 2016, 06:59:42 AM
Hello sass,
Who could forget you? Welcome back! So glad to hear from you, and glad you came back. I am not on IVIG, but some of the others are. You have been in my prayers and in my thoughts. I hope you are doing okay despite all of the diagnosis you have. Take care. CK
Title: Re: It's been a while...Hi from Sass
Post by: eija on April 16, 2016, 03:35:50 PM
Hi :)

I was a newbie when you left but I've often wondered how you're doing. Just this week, even!
Great to have you back!