I take ballet for adults classes.
I was diagnosed with Sjögren's (and tested positive for Rheumatoid factor). After the first day of class I flared-up and my right ankle hurt real bad, but I love ballet too much...
Currently, I walk as much as possible, which is usually 2 -3 mi.
Ballet, tap, & jazz were a big part of my childhood through my forties; I am so glad you are taking
ballet class. Dancing is so good for the body & soul.
Whenever posible, I dance around the house with my 4 yr old grand daughter. Today, I tried to teach
her the Grapevine :). Fatigue is an issue, of course, and there is always the carousel effect: fatigue
discourages activity, but lack of activity causes harm.
Keep dancing!
Hi! I do water aerobics, physical therapy (for now), and work with the various machines at the fitness center.
Back in the day, of course, I did a much wider range of activities: ski, skate, hike, bike. But with profound PN my activities are reduced dramatically.
Exercise is crucial to my well being. It reduces pain, elevates mood, and gives an enhanced sense of physical well being.
Hugs, Elaine
Quote from: P.Trish on March 17, 2016, 10:11:13 PMFatigue is an issue, of course, and there is always the carousel effect: fatigue
discourages activity, but lack of activity causes harm.
Keep dancing!
Oh, thank you for mentioning the "carousel" effect! I had never heard of that and should probably Google it.
Quote from: Carolina on March 18, 2016, 04:08:47 AM
Hi! I do water aerobics, physical therapy (for now), and work with the various machines at the fitness center.
Hugs, Elaine
Do you need to know how to swim to do the "water aerobics" thing, or is it okay because the pool is shallow?
Hugs back!
Before I got sick I was already involved in Taekwondo which I still continue. I am a third degree blackbelt and certified instructor. I think because I was in very good shape it helped lessen some of the more physical symptoms. Since I got sick it's been more of a struggle to make all my classes, but I will not quit. It helps me both physically and mentally to continue.
I sit back in my recliner with my feet up and watch TV. I get up and hobble to the rest room or the kitchen. While listening to the TV, I post to this forum or answer emails. Oh, yes 3 cat naps per day is typical.
I walk with and without the dog. Goal is 5 miles a day.
Foam rolling, walk (usually 2 miles or more), Pilates, and tai chi.
While I do go to a gym 4 days a week, the best activity I do is volunteering. Some of you might not believe this, but I have experienced it. There is something in a smile - some sort of energy that it is literally transferred. This afternoon I will be volunteering at Give Kids the World, a resort for children with life threatening illnesses. Right now I feel horrible and I will really have to push to get down there, but once I hand out an ice cream cone or a bag of popcorn to a child who then smiles at me, I will immediately feel better - actually stronger.
I also teach remedial reading at a local jail. Many of the inmates have never met anyone who actually cares about them and them as an individual. They are amazed that someone cares enough to actually help them without pay. Many of them actually read well, but come to get their sentence lessoned. As we work with them, I can feel the room fill with what I guess is love. I don't know. What I do know is it gives me strength and I leave the jail feeling stronger and healthier.
I did not start volunteering as a treatment. I was surprised by its effect. Right now, I take too many pills to list, but volunteering has become my most effective medication.
I like to walk. It was to be on a flat hard surface.
I have to drive 10-15 minutes into town to walk where it is
safe, then drive back home. I do not get to do it often enough.
My treadmill is in the basement and I do not use it much
b/c it is boring.
shelly
I agree with Katie11111 volunteering is uplifting.
Walk as much as i am able, but not all at one time. I have back and neck issues + fatige so can't do too much all at once (though to look at me you'd think I could run a marathon).
I also do Wii things like dance, bowling, etc.
I will soon be starting PT for my back and one goal is to ask what I can and cannot do re: exercise (I have spondylitis in multiple spots).
I've been told I should swim, but don't know how. i am very familiar with the benefits of therapy pools and need to see if I can stand the heat.
Quote from: Joe S. on March 18, 2016, 04:52:06 AM
I sit back in my recliner with my feet up and watch TV. I get up and hobble to the rest room or the kitchen. While listening to the TV, I post to this forum or answer emails. Oh, yes 3 cat naps per day is typical.
For a minute I thought I was reading my post! LOL!
At the moment I'm with Joe. lol... I do a lot of sewing, but though it's not like walking etc. it wears me out, but good for my morale. Soon I hope to play around in with a few flowers re-potting etc. I wash some clothes and into the dryer, wash a few dishes, and sleep. lol... I have not arrived to any thing else yet. :o
Hug,
susanep :)
I ride an exercise bike. Riding is easy, but it's hard to sleep as my legs and hips hurt during the night. It wakes me up.
My doctor said walking is the only exercise I should do because of the RA. I had a knee replaced in July. The knee is great, but now I have a metatarsal issue and still limp even with my shoe insert. My luck!
I do water aerobics in a pool that is 1) shallow b) heated c) salt water. The temperature is about 85-90, the depth goes up to only 5 feet, but starts out much more shallow, and salt water is easier on my skin and eyes than all chlorine.
Hugs, Elaine
I want to exercise but the after effects kill me . I have to reserve any energy I have to make it through a week of work. I miss running so much. Now that spring is here I am hoping to try to walk a few times a week.
I know exercise helps me emotionally- all of those endorphins. Rt now I'm watching tv which is my weekend ritual and it is becoming depressing.
I have a 8 week puppy that needs to go out every 10 or 15 minutes cos he has little control over p'ing. Soon I will need to start mowing my lawn. Parts of it I can handle, but I may have to hire someone to help me. That's depressing for me.
I walk - but not often enough!
Like Joe, I have a great exercise program. I can turn from side to side in bed! I can get up to go to the loo! My fingers get a lot of exercise when I type things on the computer.
I've just started rituxan, and hope it will give me enough energy to do some tai chi, which seems like a good, gentle exercise program that I might be able to maintain.
I so much want to exercise again, to feel the good feeling moving my body used to give me. I hurt so badly most of the time, and am so tired, I don't exercise. I feel like I don't have the time because it takes everything I can muster to drag my body out of bed in the morning M-F to go to work. When I get home, I am too tired. I am trying to eat more real food and it takes all I have to cook and clean up the dishes. Then I just want to fall in bed. On the weekends, I feel I need to use what energy I have to get the house cleaned somewhat, do the laundry, groceries, food prep for the week. When I can manage to clean, I feel like that is my exercise, and I am exhausted when I finish.
I haven't given up though. I keep saying eventually I will feel good again and will start exercising.