My dentist office just called and said they had a rep stop in and they immediately thought of me (wonder why)?? for a new
prescription dental rinse that is supposed to help with dry mouth/cavaties.
Its called "NeutraSal" by Orapharma.
She is sending me a form-script and I will need to send it in. She mentioned something that if insurance doesn't cover it, they said that we might be able to get assistance for the first few boxes by contacting the manufacturer?? she wasn't sure.
I will let you know when I get it etc.
Has anyone heard of this yet?
Here is the link I found..http://www.neutrasal.com/about-neutrasal.html
Gursie
I have seen this advertised in the SSF Moisture Seekers Magazine.
Gurs,
The scrip was given to me before I was diagnosed and it was supposed to help with dry mouth.
I beg to differ. I never got it refilled again. It is an oral rinse that has high concentrations of the elements in your saliva that protect. It didn't do a thing for my dry mouth.
They also sent me a box that was for "sore mouth", which I haven't tried yet. It has the same stuff in it but has some added topical pain reliever in it, as well. If you have sores in your mouth, it was supposed to be good.
This was before I was diagnosed and given Evoxac. The good news is my insurance picked up the tab and I could get direct refills from the maker. (I didn't). I imagine this would be a godsend for many people, but it did very little for me.
Hope you have much better luck.
Kathy
Gurs,
I love Neutra-sal. It works well for me. Periodically, I get samples from them for our Sjoggies In Pittsburgh (SIP) group. I know some of our members really like it.
SjoDry
How often do you have to use it, and how long does the result last?
Hi Gurs!
What a coincidence! I was getting on here (I haven't been on since March) to see if anyone had any info on the NeutraSal.
I've had a Rx for Pilocarpine since February but have not taken it yet. In case I was going to have any side effects I wanted to make sure I would be able to be home for the first few days. There always seemed to be something that came up. Well, today was the day to start but I began to have second thoughts. I decided to Google to see if there were any natural ways to increase the saliva and help with my "burning/raw" mouth/tongue/etc.
I fell upon NeutraSal. Although still not all natural especially since it requires a RX, it appears to have not as near the amount (if any) of the Pilocarpine side effects. I was going to email my rheumy about it but decided to check here to see if anyone had more info.
One big factor for me would be the cost. What I see is a box of 30 packets. Even if only used 2x's/day that's only 15 days worth. I know each insurance plan is different but does anyone know about what the cost is of one box?
It looks like it's been around a few years.
A66eyroad - hoping I'm allowed to post directly from their website. If so, this is from neutrasal.com: "Use 2 to 10 times per day as needed for Xerostomia and 4 to 10 times as needed for oral mucositis." This was also taken from their website referring to their trials: > The duration of action for NeutraSal? lasted an average of 71 minutes.
Sorry Gurs that I didn't have any additional info but I'm really glad you started the thread.
If anyone else hears or has info re: NeutraSal, please post. In the meantime, I'm going to email my rheumy and call my pharmacy.
Have a great day! :)
Neutra Sal is formulated for people who are going thru chemo. Depending where the cancer is depends on how the treatment affects the various salivary glands. Once chemo is over the patient continues to produce a normal amount of saliva and the mouth returns to pre-chemo functionality. (again: Unless chemo and/or radiation has destroyed one or more of the salivary glands) A chemo patient (unless they have SjS) does not have the oral dryness problem we have. Depending on far SjS has progressed determines the outcome of the use of Neutra Sal. The effectiveness reported (71 minutes) is longer than the Biotene Oralbalance Gel lasts. Depends if you want to spend about 8 bucks a tube or the Rx price of Neutra Sal.
Good luck to all of you who suffer.
c3
I have been using Neutrasal for two years and it works great for me. I HAD to stop using Biotene because I became allergic to egg. It used to have egg in it.
My insurance pays for it without a copay.
I find Neutrasal lasts longer anyway. Good luck!
my experience with NeutraSal was not very helpful. I should add that I was so dry I couldn't stand it. I was utterly miserable with no sense of taste, smell, and inability to chew or swallow food without a tremendous effort.
I think I was just too dry for it to do anything for me. You can use it multiple times per day or a couple of times - depending on how bad you are. You mix a packet with 30 cc of water. They give you a a little minute glass timer for you to use. You have to rinse one half the solution in your mouth for as long as it takes for the little minute glass to run out of sand. Then you spit it out and repeat with the last half of the fluid and flip the minute glass over to time it.
You were not supposed to swallow the solution. You rinse your mouth for the appropriate time and spit it out. You also had to put just the right amount of water in or the concentration would be off and render it pretty much useless.
I was so dry that I only obtained relief for as long as the solution was in my mouth. I know it was good for my mouth and teeth, but I was so symptomatic that I found it useless. I used it up to nine times in one day out of pure desperation!
Biotene gel only worked for a minute or so on me and Biotene dry mouth rinse only worked for less than a minute.
After I was diagnosed, I took maximum pilocarpine dose 4 times per day and got about four hours total relief. Sometimes not even that!
Switching to Generic Evoxac was a life saver but it really took awhile before everything kicked in. Looking back, I know I was pretty darn sick and miserable.
Having said that - I feel so much better now! Thank God! I still have quite a bit if the NeutraSal left. I'm wondering if it would work better for me now? Probably because I am nowhere near as uncomfortably dry.
I'll try it again and get back to you. 😃. Glad we are having this discussion because I forgot about it!
Sorry I'm so boring! Ha ha!
Kathy
Hi, I haven't posted on the forum for some time because I am simply too exhausted after working a full time job.
I was prescribed NeutraSal a few years back by a dentist who helped to diagnose my Sjogrens.
It is a supersaturated calcium phosphate rinse that is labeled as helping with dry mouth. I have found that it doesn't necessarily help with dry mouth, but it has helped me with mouth sores and has also helped to improve the quality of my teeth.
My current dentist explained that it helps to remineralize the teeth because what little saliva that we do produce is lacking in important enzymes. The calcium phosphate in the product is what is beneficial. I continue to take Evoxac, which internally stimulates my salivary glands to produce more saliva. I also continue to take Plaquenil etc. Since I started with the product, my dentist has noticed improvement in my teeth.
This is a prescription and I order via mail directly from the company. It is on the expensive side and is not covered by my insurance, but i feel that it is going to help keep my teeth healthy. My goal is also to keep my natural teeth for as long as possible. I hope that I was able to be of help. Take Care.
LadyDi,
Thanks for your explanation. I think that about sums it up. If you want to keep your teeth, (and we all do!), it would be a good thing to use.
Happy Mothers Day to all!
Kathy
Ok so this post is four years old and a dentist just told me about this!!!! I went for a consult about an extraction and told this dentist I had Sjogrens. He was so nice and told me about this.
Is anyone else using it still??? Is it helping you at all????
I wonder if it doesn't help with dryness if it would help prevent cavities. I am having to get a tooth out because the crown and root canal decayed. I need to try and do something to help preserve my teeth. I wonder if this is really pricey though? I tried to use a coupon the other day for some name brand estrogen and it was still $100. Such is our life anymore with name brand drugs. Can't afford them!!! I am at least going to look into this.
Deb,
I have to admit that I haven?t kept up with the NeutraSal, but I?m using a prescription toothpaste for dry mouth that has extra fluoride in it. You use it before bedtime and right after you brush and floss your teeth regularly. After brushing, you spit the gel toothpaste out but don?t rinse your mouth out to keep it coating your teeth during the night.
My insurance pays for it but then they paid for my neutraSal, too. I don?t know if they still would since insurance drug coverage changes from year to year.
I have not had any new cavities since I?ve been using this prescription toothpaste. A tube lasts me a long time because I just use a small amount right before bed.
Wish I had more info on the NeutroSal for you but I never kept up with it. Sorry. Hopefully someone else will chime in on this.
Kathy
Kathy57,
What is the name of that prescription toothpaste?
Liz D.
I've been on prescription toothpaste as well and I guess it's helping some but I just had a crown and root canal fail due to decay under the crown......
It's called Prevident, made my Colgate. Things had been going well for quite a few years for me until this episode. I have to go get this tooth "drilled" out tomorrow because it is decayed, has a root canal and probably won't come out in just one or two pieces. Ugh, I am so dreading this.
I retired a year ago and when I was working, I chewed Trident gum all day long. I think the helped to protect me. Gonna have to try to do more of that again.
Liz,
Yes, it is called Prevident, but my pharmacy has substituted a generic tooth gel made by Cypress Pharmaceuticals and it is labeled SF 1.1% gel.
Hope this helps.
Kathy