Hi.
Does anyone here suffer with Lichen Sclerosus?
I would be interested to know how common it is among Sjogrens affected people.
Did you get the diagnosis of LS by your Dr. or did you have it confirmed by biopsy? I hope it's not real bad for you.
I've been told by one Dr. on my yearly that matter of factly that I have LS but they never did the biopsy to confirm or acted like it was any kind of big deal that needed treating... He said I had some white patches and that was all he said. This was before I was diagnosed with SJS. They said the only way to know for sure is a biopsy. I just don't feel like having one. I had mostly a lot of atrophy down there, some burning and got back on estrogen. That seems to have helped me. But I am sure the bad dryness from SJS hasn't helped much. I also had a lot of skin splitting. I have not had any of the awful scarring you hear about. Again, much better on the estrogen. I use a skin patch and I am trying out the estring soon.